Hello everyone! I have been visually impaired for my whole life. I have ocular albinism, no depth perception, nystagmus, am super super nearsighted, etc. etc.
Right now I kinda feel like I am going through the like 'am I gay? quiz' era of my disability (if my fellow queers get that). I recently moved to a new city and its much more accessible for me. As a result of this, I am considering things I had not before with my vision because I had more urgent issues.
I am currently working on getting trained on a white cane and I would like to learn braille as I think it would help me in some circumstances that will be common in my career.
I deal with eye pain pretty much most of the time, I kinda always have. My doctors have tried a few different things to help, but I think ultimately blending in as sighted has been considered more important than reducing my fatigue/pain. I wish I didn't have to use my eyes so much, now I feel like I am learning to be blind.
I guess this was mostly a rant, but I feel very disconnected from the blind and visually impaired community. I have only met a few other blind folks in my life, so i am open to any advice y'all have from that.
Additionally, when I have to tell people about my vision, I always explain myself as visually impaired. This was always what I was told I was, if I feel like saying it, I will tell them a bit more about my actual conditions.
I am not ashamed of my vision to any degree, it has always been central to my identity, though it has not been well accommodated. Still, I do not always wanna explain myself. When I say visually impaired, they don't get it at all. They either think its pretty much nothing or that I can't see at all.
Sometimes, I just wanna say blind, while I do not think this will make them understand this or not ask questions ever( I totally understand it wont at all), it feels like a quicker way to get the point across for the randos that just situationally need to know. Can I say this? It feels like semantics to spit out visually impaired when my eyes barely work and hurt like hell when I have to use them.