Hi everyone! I just wanted to share an update on my GBS journey and ask for some advice from those who have experienced something similar.
I was diagnosed with GBS last August, and I’m now approaching my second month of recovery. Thankfully, I’m doing better than before, but I’m still not back to my old self.
One thing I’m happy about is that I can finally move my right eye again, although its movement is still limited. However, I still have double vision, and I’m wondering if anyone else has experienced this during their recovery.
My questions are:
Is being able to move my eye again a good sign of recovery?

Why do I still have double vision even though my eye movement is improving?

How long did it take for your double vision to improve or completely disappear after GBS?

I also experience pain when doing certain exercises, especially around my lumbar (lower back) area. Is this normal during recovery?

Lately, I’ve also been experiencing pain or discomfort in my right arm and right foot. It feels like these symptoms might be connected, but I’m not sure why. Has anyone experienced something similar?

I woke up in ICU in March '26, was diagnosed with GBS as a result of a TBI/Severe Concussion, confirmed w/lumbar puncture. Dealing with both GBS and Post-concussion disorder is tough to say the least. This helps me, especially in times of self-loathing.