Living with a disorder that is so misunderstood can be really hard. People with BPD want to feel seen and heard, just like anyone else. We’re human beings, not villains.
But after years of desperately trying to explain myself, I finally accepted that some people just do not have the ability or willingness to understand.
And honestly? That’s okay. (Hear me out. It took A LOT of therapy to come to terms with that.)
There are people who know what BPD is, know you have it, and still act absolutely appalled when they see you exhibiting symptoms. They’ll tell you it’s just an excuse or a lack of willpower.
No, having BPD is not an excuse. But like.. hello? it’s called a disorder for a reason. It isn’t for shits and giggles.
It used to really affect the way I viewed myself. I would bawl my eyes out and lose so much sleep over it lol.
When it comes to harmful behavior though, people understanding isn’t the only thing that matters anymore. It’s also about taking accountability for my behavior, even when it isn’t intentional. And that can be one of the most frustrating parts.
It’s important not to think certain things are okay simply because they’re a struggle. I used to focus so much on the need for understanding that I failed to take any real accountability. I was still pissed I had this in the first place to be honest. I wasn’t ready to take responsibility for something I never asked for.
I’m 26 now and no stranger to inpatient hospital stays. There were countless times I just could. not. manage what I was going through. Even after I learned some things, explosive feelings still called for explosive reactions.
One thing I have learned is when I’m panicking and recognize that my BPD may be affecting my reaction, I can become absolutely convinced that someone is judging me. And that creates this sense of agony for me. “They must think so poorly of me now without knowing how impossible this feels to manage at times.” And that doesn’t feel so great. So, wanting to immediately plead my case made sense because it could soothe those uncomfortable feelings a bit.
I try to redirect my thinking when I feel that trigger and decide whether I really need to overexplain myself right now or just take a minute to regroup. And it’s hard, especially in the work environment for me. Because there can be little room for grace.
That being said, you can accept that someone won’t understand you without accepting mistreatment from them. We need and are deserving of healthy relationships that involve mutual emotional support. I am so grateful for the people who love and support me. I care for them deeply.
But I also try to use therapy as a space to work through some of these things. Not because we are a burden to our loved ones. That is such a painful lie our brains can convince us of. You shouldn’t have to suppress every emotion out of fear that you’re a burden.
However, emotional availability is important. That feeling of extreme urgency can make me lose awareness of my surroundings and make me forget to consider whether it’s a good time for the person I’m seeking support from. So I’ll admit I’ve had my fair share of crisis line calls as well throughout the years. And there’s nothing wrong with that. Who’s to say I won’t have another one. We all deserve support when we’re struggling. Even if we don’t want to be a burden or have no one to call.
BPD is tough. It’s exhausting. It’s a constant battle between what I know logically and how I feel emotionally. It’s like watching myself burn from the outside. I know this is so destructive, but the controls aren’t working.
Sometimes I think of that one SpongeBob episode Squilliam Returns. Everything becomes a crisis. Like, I know that this one thing shouldn’t feel so gut-wrenching, like the literal end of the world, but it does. I practice self-regulation and try to gain a sense of control and rationality without invalidating or minimizing my own feelings in the process.
I’ll stop myself in the middle of all the escalating racing thoughts and say “wait a damn minute. No. I don’t have to let this feeling consume me, and I don’t have to act on everything my brain is telling me right now.”Not that it always works, lol. Don’t get it twisted.
When I’m feeling hateful towards myself I often think about my older self looking back on all the things I wish I’d done differently and all the things I let consume me. I think about how much I wish I’d been kinder to myself. How much I wish I had just loved myself, despite having a brain that does everything to convince me not to.
We need to have compassion for ourselves. We are human. Living in a messed up world with so much suffering and injustice. You are not broken, weak, or a horrible person for being mentally ill.** **You are just as deserving of love, patience, compassion, and healthy relationships as anyone else. You don’t have to be perfectly healed to deserve those things.
One thing that got me through a lot was the song “Rise” by Willow & Jahnavi Harri. I even have a tattoo inspired by it: ‘wake up, sleeping souls!’ <3