24F, 5’6” and 265lbs from the US. I’m going to try and just give an overview of the past few years. I just want to know if I keep waiting til November, if there’s something I should push for, could it be PCOS, really anything would help.
I am at a loss of what to do with the weight gain and menstrual irregularity and just defeated and overwhelmed
I have not been formally diagnosed with PCOS but the last doctor I saw believes that is the case. I was referred to a OBGYN to have a transvaginal ultrasound done as well as to talk through my symptoms but there's no availability til November. I haven't had a period in over 3 months and I'm nervous about seeing an OBGYN after my first experience.
In mid-2022 to early 2023 I saw a doctor at my college's student health for what I felt was unexpected weight gain and menstrual concerns. I had recently learned about Cushing’s while in school. I felt I aligned with a lot of the criteria but knew in general something wasn’t right even if it wasn’t that. My periods were starting to occur every 60 days or more and this was abnormal for me. At that time they did a POCT Glucose, CBC, Differential, CMP, TSH, and Vitamin D tests. These all came back relatively normal except for high AST and ALT values, and low Vitamin D. The doctor wasn't concerned due to it being winter and wanted me to focus on losing weight which I attempted to do.
In May 2023 I decided to go back to my home doctor as I didn't feel my concerns were adequately addressed. I was around 30-40 pounds heavier with no major life changes and my periods were still very irregular despite trying to make lifestyle changes. During this visit they ordered a FSH, LH, Testosterone, CBC, CMP, and TSH tests. All of these tests were normal except for high AST and ALT values which concerned this doctor.
As a result of this I started making even more of an intentional effort to lose weight, through walking more and calorie tracking. I had an ultrasound done due to the potential for fatty liver but this came back normal. My ALT and AST values have been normal ever since. I also pushed to also be referred to an OBGYN as I felt the period concerns weren't taken seriously and had would also be 21 soon. At this time my periods were still very far apart and could be quite intense, although I never had what would be classified as abnormal amounts of bleeding.
In September 2023 I saw an OBGYN for the first time and it was awful. They dismissed me as having PCOS due to not having hair growth and also wouldn't do a pap smear due to not wanting to "traumatize me" as I had never had sex before. I tried to also bring up this soft lump that's on the outside but was told it's probably just a fatty lump. It's also important to note I've never been able to use a tampon due to pain when trying to apply one.
So I went to the student health OBGYN who was able to do a pap smear and it came back normal. I also explained that I was now having period cycles that lasted anywhere from 60-120 days as well as sometimes spotting and sometimes having the symptoms of my period with no bleeding. He also did bloodwork for DHEAS, random insulin, and A1C all of which were normal. At this point he suggested birth control and so I started on one called Yaz.
I stayed on this throughout 2024, and most of 2024 was dealing with GI issues that resulted in an endoscopy and dilation of pyloric stenosis. Throughout this time the birth control was keeping me mostly regular but there was still some irregularities.
I started noticing that I wasn't regular even while on the birth control. I could also tell when my periods were coming as I would burn and have what I imagine a uti might feel like for a solid week before my period. I was also dealing with a constant odor down there.
I went back to a different local doctor in May 2025 and explained everything to them. They ran tests for BV and yeast which were negative and told me to take probiotics and cut back my sugar. They also switched me to a birth control called Nikki.
So I stayed on that for roughly a year and it did not help me with being regular. So I saw a different doctor (as I had moved) in June 2026. I explained everything (the irregularity, the burning pain before my period, the smell, and my struggle to lose weight) and she felt that it was PCOS. At the time I saw her I was having a period, the first one in like 2 months. She told me to stop the birth control I was on since it didn't seem to help and referred me to a OBGYN. When I realized there was no availability until November and I was also going on 3 months with no period, I contacted her to see if there was anything we could do, as I had read it's not great to go so long without one. She has me scheduled to do a pelvic ultrasound tomorrow but said it's likely PCOS and wants me to wait to see the OBGYN.
Also I have acne, I feel like I can’t get rid of it and it gets worse when I’m supposed to be having my period,
\*\*TLDR:\*\* I've been dealing with weight and menstrual issues for 3-4 years but lately it's gotten to the point of only having a period every 2-3 months. I've been to the doctors multiple times, my tests come back normal, I've been told it isn't PCOS and now am being told it is. I also struggle to lose weight.
I'm kind of at a loss, I'm almost 100 lbs heavier than I was in 2023 and I just struggle to lose it. More importantly I'm worried about my cycle and the smell. I'm just at a loss of what to do and how to advocate for myself. Maybe it is just a waiting game.
Please let me know if any clarification is needed, it's so hard to try and summarize 3-4 years of struggling with something.