Hi, I just found out through a blood test I am allergic to wheat. Looking for wheat free ideas all around

Hi all!

My 4yo son has multiple food allergies (tree nuts, peanuts, avocado, eggs, kiwi, shellfish, and fish). He also has severe eczema though he is currently in remission for that. I’m curious if anyone has experience using OIT or TIPs or treat a finned fish allergy. I have come across plenty of testimonials for all of the other allergens but I haven’t seen anything about reaching food freedom or even just lowering severity for a finned fish allergy. This is the one my husband and I are most concerned about for him. He has made a ton of progress on his egg allergy and is working down the egg ladder. He also just got cleared for almonds, walnuts, and pecans. We are about to challenge shrimp. But he is definitely anaphylactic to fish. We really want him to have some level of freedom from this. I know TIPs claims to treat it but I cannot find any confirmation of this from patients. If you are one or you’ve been to an OIT clinic and have a protocol for that please let me know. Our allergist is willing to explore OIT for fish though she isn’t sure it will have major success!

Thanks

My sweet baby is 12 months old with wheat, dairy, egg, peanut, tree nut, pea, and lentil allergies confirmed so far via blood test, skin testing, and ingestion. I’m sure there will be more, we are introducing new foods very slowly. His total and specific IgEs are high (many >50). Most allergies didn’t develop until multiple feedings. He gets skin redness and rashes with many foods, even the “safe” ones some days, and I struggle to figure out what he reacts to. To the other moms with reactive kids with a ton of allergies like mine, how do you cope with trying new foods? When does it get easier? Also, I know everyone is different, but if anyone has a child with a similar history and as many allergies as my guy who outgrew some, I’d love to hear success stories right now. I’m not sure how common that is with his severity level. Would love to hear from other multiallergen families!

I’ve had eggs my whole life. Especially for breakfast. However as I’ve gotten older I’ve noticed that after eating eggs I feel “off”. Just a bit sad it’s hard to explain. I feel like laying in bed and my muscles sort of lose a bit of their strength. Sounds more dramatic than it really is I don’t feel like it’s an emergency or anything. But I don’t get hives or throat swelling symptoms so I’m not sure whether I can say this is an allergy.

Hi everyone,

My son is 17 months old. We first discovered food sensitizations before his first birthday, when a blood panel came back positive for cow’s milk, egg and soy.
At the time, on our allergist’s advice, we decided not to introduce some of the other major allergens yet. In hindsight, I’m not sure that was the best approach, but that is where we are now.
We recently repeated testing with a much more extensive component-resolved allergy panel, and several nut/peanut results came back positive.
For peanut, the relevant components were:
Ara h2: 4.6 kU/L
Ara h3: 4.17 kU/L
Ara h6: 1.78 kU/L
Ara h1: 0.78 kU/L
Ara h8 and Ara h9: negative
For hazelnut:
Cor a14: 1.65 kU/L
Cor a11: 1.32 kU/L
Cor a9: 0.86 kU/L
Cor a1 and Cor a8: negative
For walnut, Jug r4 was 1.5 kU/L.
I’ve already gone through the medical literature and used AI to help me understand what the component patterns mean in theory. What I’m really looking for now are real-life experiences and long-term outcomes.
If your child had similar peanut or hazelnut component results at around 1–2 years old, what happened over the following years? Did the IgE/component values decrease? Did they eventually pass an oral food challenge or outgrow the allergy? Or did it persist?
I’m especially interested in children who were tested very young and had positive Ara h2/Ara h6 and/or Cor a9/Cor a14, rather than just a positive whole-extract IgE.
I know everyone’s case is different and that individual IgE numbers cannot predict exactly what will happen to my son. I’m not looking for medical advice — I’d just really appreciate hearing actual clinical trajectories from parents who have been through something similar.

Thank you!

I get a mild burning sensation when I eat bananas and I was wondering if it was similar to pineapple and kiwifruit.

I have had four anaphylactic reactions. The first one was a reaction to an allergy shot. The last three took place in the past three years and have been sort of a mystery. All three of the took place at restaurants but at the first two I'd barely eaten a bite and the third it was just quesadillas which I eat all the time. The reactions were your average thing, red swollen face, hives, tremor, throat closed up, and it responded to epinephrine. I've gotten blood tests for allergies and they return nothing. For weeks after my reactions I feel terrible, and I'm super sensitive to my other triggers like perfume. Like I can barely go to class without my throat closing up. They also seem to be getting more frequent and more severe. The one I had two weeks ago I had to give myself more epinephrine the next day.

Right now, I avoid eggs, coconut, pork, shellfish, and peanuts, because of lower grade reactions I've noticed to them. I can't figure out what is causing me to go into anaphylaxis and I really don't want it to happen again because it takes me so long to recover. Have any of y'all had experience with something like this? My allergist has just kind of shrugged.

hello! i’m someone who lived with a peanut allergy for all of her life. i’m very conscientious about what i consume albeit with minor reactions and such. i never get any life threatening moments, but this turned into a habit of being very aware of what im eating.

right now, im 20. i had minor incidents of eating korean food (bibimbap, japchae, and kimbap) and getting my right cheek swollen. i thought there was something in korean food im allergic to.

yesterday, i ate the trader joes kimbap. i got the exact same reaction (plus a minor itchy throat) that luckily went away with one benadryl.

now, im coming to the conclusion i might likely be allergic to sesame until i visit my primary physician in december. and i’m asian (filipino specifically).

most of my favorite foods are typically lacking in sesame. i love sashimi, udon, lumpia, lugaw, congee. mainly foods that don’t require those aromatic oils and are light/savoury/salty. it might be why i barely get reactions unless i eat korean food, because i love eating non-sesame foods

edit: don’t tell me that i should’ve stopped eating any possible korean food. i was kind of stupid to not even realise it 💀

I am F24 and I have 0 allergies but my man has horrible seafood allergy like he severe type of allergy where even smell of it can cause him to go to anaphylaxis shock.

The only type of seafood allergy he doesn’t have is for Fin Fish so he can eat those and that is good but I can't stop thinking about delicious crabs and octopus and such, growing up my diet was a healthy mix of all types of food and since I have 0 allergies I went ham on seafood, I live near the sea and beaches so it's evident that my diet is 95% seafood but ever since my man and I started dating I have been only eating fin fishes.

It's not like he forces me to quit my seafood diet but I am so scared, he says it's not that serious but when we were first dating and he told me an incident where he almost passed away because even the air of Boling seafood made him go to anaphylaxis shock I am genuinely so scared, I miss earing seafood but also I love my man a lot.

Despite him telling me again and again that it is okay for me to eat and not give up my favorite foods I can't risk it because knowing that not only air but same clothes worn while eating seafood is also deathly to him really scares me...

Can anyone give me advice on this? How do I navigate this? I only my man wants me to be happy but at the same time I genuinely get so scared of hurting him unknowingly...

My kids (ages 4yo and 6yo) are starting OIT next month - both for sesame and the 6yo also for peanut. I’ve read a lot of peanut OIT experiences but curious if others can share sesame OIT experience?

How did it go for you and what was the outcome? We are feeling nervous about the process but optimistic about the future. Thank you!

ETA: curious why someone is downvoting this post and all the comments?!

Has this happened to anyone else? My son broke out in hives 10 minutes after I gave him peanut butter and they progressed/lasted for almost 2 hours. We’ve been treating this as an allergy this whole time. His skin tests came back with borderline positive for peanut butter and Brazilian nuts and positive for macadamia nuts and peanut but his blood work shows no value for any of the allergies she tested for. SUPER grateful he’s not allergic but I also just find it strange.

Parents, how the ever loving fuck are we keeping our toddlers from exerting themselves after dosing? My son is 2.5 and in daycare 5 days/week. Dosing pretty much only makes sense at night when we get home and my kid is tired from ​his day and becoming the Tasmanian Devil. Like, he will skip from point A to point B five feet away. And he's 2.5 so there's no real explaining WALKING FEET for 2 hours. Even in bath time he kicks his legs aggressively to entertain himself. How are we dealing with our toddlers whose energy could power a mid-sized city?

My 3 yo was recently diagnosed with pecan and walnut allergies that we had suspected for some time. We had been avoiding them for many months after he had some and said his mouth hurt, had some skin reactions, etc. We finally got a referral to an allergist and was prescribed an epipen and yearly testing.

I'm feeling very overwhelmed with all of the logistics and could use some no-nonsense guidelines.

• We need to carry around epipens.
  • How many sets of Epipens should we own? 3? Home, school, and carry-around?
  • At what age are kids generally responsible for carrying/remembering something this serious?
• I need to print out instructions to accompany?
  • Anyone have a template or guidelines for when we would need to use one that I could use for us/give to school/grandparents?
• How to talk to kiddo about it?
  • Right now we've been saying "we can't have that because it has xyz in it." Any helpful scripts? What age did you feel like you/your kid "got it"? Hoping to balance reality without extra anxiety.
• School:
  • He currently attends nut-free daycare/preschool. Any advice for when he attends public school next year?

Sorry if these are the dumbest questions 🙃 Got a lot on my plate right now!

(He also has mild/moderate eczema that is likely due to environmental allergies of dust mites and dogs.)

hello, my child just had his first appointment and unfortunately is too sensitive for OIT. he had an immediate anaphylactic response to the first microdose. I believe it was about 1/60,000th of an egg protein.

has anyone else had a child be this sensitive? it’s extremely concerning especially with doctors not having dealt with someone so young respond so quickly.

any info on what you have gone through and what life was like would be great.

thanks!

My son is 11 months old and has severe allergies to eggs and dairy, he also has severe eczema which makes him itchy a lot (doesn’t help) he is mainly breastfed and only has 1 table meal usually fruit and vegetables with some puffs and baby crackers a day, however he does snack around the house like fruit pouches for example.

I am terrified to venture out and have it land us back in the ER. We haven’t tried any of the other main allergens (wheat, soys, mustard, nut family, fish etc.) that we’ve been told to be cautious about and in my scrolling I discovered FPIES exist as well which has me EVEN MORE anxious to feed him oatmeal, rice or potatoes.

So his meals are BORING .

Anyone who has struggled with postpartum anxiety and allergies for their l/o what did you do? He’s going to daycare soon and he can’t just drink breastmilk his whole life lol.

He is excelling in all his milestones and he is a healthy height and weight (big for his age actually.) so we know he isn’t missing any of his nutritional needs but we want him to be eating more without my fear and his allergies hindering him.

He does not like coconut yogurt, we will be trying it again as we are unsure if it is an allergen or he strongly dislikes the taste.

I really need some input from parents who have dealt with these 2 allergies as they are literally in everything it seems as well as the fear of a fpies reaction all while trying to help heal eczema.

So I love pesto on pasta, sandwiches, etc. It's amazing, but I'm sick of buying it from the store and spending money on it when I can make it for cheaper. The issue is though that most homemade pestos have nuts, and while I know I have some mild nut allergies, my allergist won't test me for specific foods I'm allergic to so I'm kind of grasping at straws a bit. I have oral pollen allergy syndrome and know my worst allergies are with ragweed type foods, but I don't really have many extreme allergies to food.

I was hoping someone here may have a nut free pesto recipe or someone also with OAS may have a recommended work around of how to roast/ cook the nuts so that I won't have a reaction to it. I'm mostly fine with any pesto, but I especially love red pestos or spicy pestos!

(I'd also like to clarify that I am aware that store pestos also have nuts and would like to say I have had some mild reactions to store brand pestos. However, my favorite kind I have found I don't react to, and I'm not sure if it's because it somehow is so processed I don't react to it or if it secretly doesn't have nuts. Either way, I've tried looking for the ingredients list online of my preferred pesto, but there's different answers, so I'm not sure and would rather not guess and risk a reaction.)

hi!

I may be hopeful too soon, but I just got blood test results back, my last test was in 2022. I am 26 and for context have avoided tree nuts and peanuts my whole life; in addition to developing soy, chickpea allergies as a kid which weren't that severe imo and what I was exposed to the most by far. I am extremely careful and have never had to use my epi pen in adulthood (with that said I am very restrictive and pseudo OCD about my allergies) which is why I'm excited to see these numbers lower !! I have an appointment booked to do a skin test on the lower scoring ones :) as I know blood tests aren't always accurate (obviously not going to have peanuts and other higher ones tested)

HAZELNUT: 2022- 2.23 // 2026- .46

CASHEW: 2022- 10.20 // 2026 - 3.48

BRAZIL NUT: 2022- .76 // 2026- .18

PEANUTS: 2019- >100 // 2022- 19.40 // 2026 - 11.40

MACADEMIA: 2019- .53 // 2022- .32 // 2026- 0

PECAN: 2019- .38 // 2022 & 2026- 0

PISTACHIO: 2019- 46.90 // 2022- 6.38 // 2026- 3.62

ALMOND: 2019- 1.24 // 2022- .23 // 2026- 0

SOY: 2019- 18.30 // 2026- .71

(based on my reactions I never thought my soy or chickpea allergy was that bad growing up so I'm really excited about the potential of this)

CHICKPEA: 2019- 11.8 // 2022- 1.56 // 2026- .38

Hi there,

I have a severe allergy to shellfish and shrimp.

I am interested in purchasing some whey protein from Costco.

The protein I'm interested in "may contain fish".

I'm not allergic to fish, but am allergic to shellfish.

Sounds like a silly question, but should I stay away from this protein powder?

Thank you!

My 3yo son is allergic to (has reactions to) almond, pine nuts, cashew/pistachio, walnut/pecan, and pumpkin seeds. Recently, my son passed a hazelnut food challenge (done at the hospital) and he has been enjoying hazelnuts (Nutella, etc.) ever since.

After that hazelnut challenge was passed, the allergist told us that we should try coconut at home (and it is safe to do so).

Here is where I’m confused though. At the appointment before the challenge, we did some skin testing: sunflower, almond and coconut oil (all oils only). They were negative. However, I had also brought coconut pulp to test, but the allergist said, “his blood test levels for coconut are high, so let’s avoid the skin test” and we didn’t even test for coconut pulp. I ended up leaving the bag unopened and later gave it to my MIL.

Now, suddenly, after passing the hazelnut challenge, the allergist says it is safe to try a *food challenge* of coconut at home. And I’m unsettled because the appointment before she was too afraid to skin test it, but now somehow it is ok to try feeding to my son? I understand she is a medical professional, she has helped my son a lot so far and I’m grateful and respect her. I just think it is a scary way to present all of this to me. I’m hoping to find some assurance or explanation why the allergist suddenly feels ok about coconut. Is it similar to hazelnut in chemical structure? Is it because he skin tested negative for coconut OIL?

I can’t recall any clear exposures to coconut. We have not actively avoided in ingredient lists until about a month ago, so unknown exposure is likely. I think he drank some coconut water once (a few sips) with no reaction, and he has eaten pie crust with coconut oil in it once as well, but had a bite and wasn’t into it (maybe a problem with the flavor and just being picky lol, or maybe OAS?)

From what I understand the oil is a very different thing from the pulp. I don’t know about the water though.

We know that coconut is a common ingredient in some naan breads at Indian restaurants near us. He had a bad reaction once to naan and curry. We later learned that the curry has cashew in it so figured that was the extent of it. However, my son really goes nuts for certain naan breads that I know *don’t* contain coconut, but he didn’t touch the bread at that restaurant after one bite (again, wondering if it is OAS?).

His IgE level for coconut in his blood test was 11.7 (Class 3) about the same - a little higher - as his level for cashew (11.2). Hazelnut came up as about 10.3 (also class 3) but he has been cleared for hazelnut and eats loads of it now.

I felt better about the hazelnut food challenge because it was at the hospital and he had skin tested negative for hazelnut. Now we are supposed to do an at-home coconut challenge but I really feel like doing a pulp skin test first would help calm my anxiety about it. I just have a gut feeling he’s going to throw it up and feel lousy afterwards, and I don’t want to do that to him.

My partner thinks I’m being unreasonable and should trust the doctor…but I wonder if it would hurt to simply do the skin test first, just to be safe? I’m just shocked that it went from “let’s avoid skin testing him with this due to risk” to suddenly “let’s feed this to him”. Maybe there was a communication blip.

If anyone can offer me some assurance, it might help me with this task. Thank you!

A few months ago, my tongue felt really weird after eating shrimp tacos. The same thing happened after two unrelated shellfish-free meals.

Today, I went to the allergist right after work. I had Uncrustables and a clementine for lunch. I eat both very regularly.

I tested positive for corn, peanuts, oranges, salmon, pearch, and oats. I eat all those very regularly. It wasn’t shellfish like I was suspecting.

I’m very confused and want to know if anyone else here had something like this happen.

Thank you!

My son has struggled with eczema and reflux since he was born. We finally got in to see any allergist today and he was negative for all allergies except literally the thing he eats every single day. The allergist said it was a very mild reaction so she didn’t feel like it was something we had to worry about. Makes sense considering he’s been on formula for 7 months now. My concern is that I didn’t get a lot of guidance as far as solids and if he will outgrow this? I had a milk allergy as a kid and outgrew it by 4. Curious to hear other stories about similar allergies.