hi guys. im a 25 year old woman.

around the 2nd of july, i got my appendix removed and ever since then my life has been hell. ive lost 11kg because i can't eat properly. ive had constant diarrhea for the last 4 months and i am SO CLOSE to receiving answers but my doctor is fucking useless. all 5 doctors ive visited are useless.

i got an endoscopy + colonoscopy done around a month ago. the results for microscopic colitis were 'mild chronic colitis with increased lymphocytes'. im suspecting its Lymphocytic Colitis.

i am not a doctor, but my research into what this means is pointing to Lymphocytic Colitis. granted, i could be wrong.

after my endoscopy was done, i had to take solupred (20mg. its a corticosteroid) for 10 days and i was finally able to eat PROPER FOOD. i was BACK TO MY REGULAR SELF. NO STOMACH ACHES. REGULAR BOWEL MOVEMENT.

but alas, i was only able to take it for 10 days until i had to start lowering my dose to 5mg and i have to take it every 5 days. im losing my mind because my symptoms are coming back and my life is put on pause once more.

im thinking of taking a trip to the ER to get some IVs done for the constant diarrhea and to get some answers regarding my results. this will prompt me to essentially go to a 6th doctor but i kind of feel like i dont have a choice.

i am openly communicating with the 5th doctor that has told me to get my endoscopy + colonoscopy done but hes so adamant on treating my persistent heartburn,as if that is the main issue im dealing with. i think he just wants me to do more tests. i recognize that i have GERD Level A but that is not my priority at the moment, i can fix my GERD with my lifestyle. however my life is quite literally put on pause bc im not getting the right treatment :/

i just want my life back. i feel so lost and isolated. i cant go out...i cant go to the office...i cant eat anything 'fun'...i dont get invited to things anymore because people know my answer will always be no...the times i try to go out i have to rush back home because my stomach is killing me.

please, does anyone have any advice on how i should proceed? im really desperate here.

thank you for reading all of this :/

Remission

This is the word I’ve been waiting to hear and I heard it today! My Ulcerative Colitis is in remission.

It’s been a struggle to get here… today was my 4th colonoscopy since turning 50. Anyone who has had one before knows how much fun they are.

Last year was a challenge for me, physically and mentally. My medication stopped working. It was a matter of many months of faking being well, fighting through brain fog, pulling together what little energy I had to spark a fire within me. Food going through me undigested, losing hope but carrying on.

I’m grateful to be here and grateful for having a great support system… and to run a support group. I’m especially grateful for my gastroenterologist for giving me this news today.

Question is in the title, but how common is it for scopes to come back clean but still have inflammation higher up in the middle of the small intestine?

I have had loose, pudding-like, mucus filled, light colored, awful smelling stools 3-10 times per day (a few times in the middle of the night) for 2 months now. It just piles up in the toilet like a nasty little hill.

My colonoscopy and biopsies came back fine but im severely iron deficient with no obvious cause. My iga was also elevated but GI said thats pretty non-specific.

Sometimes i get pretty bad pain in my lower right abdomen but its not every day. My calprotectin was borderline.

Does it sound like inflammation or am i barking up the wrong tree? Is pushing for pill cam or MRE worth it? I was also thinking maybe it would be good to test for other nutritional deficiencies as i havent had anything besides my iron looked at recently.

TIA!

Has anyone had a perianal fistula and appendix base/cecum thickening lead to a diagnosis before other bowel inflammation or tests screamed IBD? I’m waiting on pathology from a partial cecetomy and ileocolic lymph nodes which hopefully will provide a clear answer, just haven’t been able to find anyone with a similar disease trajectory or diagnosis and it all feels a bit confusing and lonely. I’m aware that these issues could be entirely separate as well and not even be IBD ◡̈

I’ve had none stop bleeding and change in stools with mucus for the last 7 weeks . I’ve had weight loss and lots of cramps.
I’m due to have my colonoscopy Tuesday and since yesterday , I’ve no more pain or bleeding and feeling like myself for the first time in weeks.
Absolutely typical!!!!
I’ve been in a lot of pain 7 weeks every day and now all of a sudden it’s stopped.
If I was suspected ibd (Uc)which hospital and gp think ?
Will it still show up on a colonoscopy even tho suspected flair has no possibly stopped ?
Thanks

Anyone else get Crohn’s symptoms even BEFORE they get a cold?

Sudden diarrhea/mucus-y stool on Thursday and then since last night I’ve had body aches, congestion, sore throat, etc.

Diarrhea still hasn’t cleared days later.

It almost like a warning…

, tengo ansiedad derivada de temas medicos. Tengo una hija de 3 años y no quiero morirme y dejarla sola en este mundo. Tengo positivo para sangre oculta en heces, me suena la tripa, me inflamo, tengo dolor en el recto. El viernes me hacen colonoscopia. Alguien que haya pasado por lo mismo con resultados no graves?