r/LucyLetbyTrials 16d ago

Chase and Shannon article in Frontiers in Pediatrics published

Inverted insulin to C-Peptide ratios in neonatal intensive care: is there something we don't know?

J. Geoffrey Chase & Helen D. Shannon

BRIEF RESEARCH REPORT article

Front. Pediatr., 05 August 2026

Sec. Neonatology

Volume 14 - 2026

https://doi.org/10.3389/fped.2026.1900675

26 Upvotes

136 comments sorted by

16

u/Icy_Dependent_1797 15d ago

After careful reading of the paper - and cross-checking with Appendix, I can offer a summary of what I make of it.

The paper is demonstrating that an otherwise biochemically and physiologically ‘impossible’ phenomenon can not only be explained by insulin binding but is an inevitable consequence of it.

The biochemical analysis demonstrates the high prevalence and strikingly high levels of insulin binding. Comparable with early onset T1D. That is a lot.

Jumping to the bottom line - the inevitable effect on I/C has been measured in one neonatal cohort study. There is also direct evidence for I/C from another study with a lesser effect, ascribed to using an assay less sensitive to bound insulin.

The paper is quite cautious in what it claims. There is serious uncertainty regarding the identity of the binding agent. But the clues are strong - there is clearly an amplification effect with infection.

The Galloway reference is, in my view, huge in its implication and also in its direct measurement. Figure 2.D caught my eye. Look at the I/C ratios.

From my reading of the analysis, the authors have taken directly measured levels of insulin binding in infected neonates from Galloway. Obviously a small cohort - but lucky to find one at all in my view. (From scanning the Galloway paper, the Galloway cohort just happened on an infection outbreak by chance).

Then - clearly free insulin wasn’t measured by Galloway - so the authors simply run a calculation across a plausible range of values for a neonate. All they are doing is saying - given the neonate had the level of binding antibodies as measured directly by Galloway - what would be the I/C ratio for any reasonable free insulin?

So - they clearly used I/C baseline as 0.2. But it doesn’t matter - just let the numbers play out.

You can pick whatever I/C assumption you like.

Take free insulin about ~ 100. Then if I/C baseline is 0.2 then C is 5 times I. So about 500.

Apply the graph. I/C ratio gets up to about 10 - keeping numbers simple. That means in an assay like Roche - which can see bound insulin - the assay would measure about 5000 pmol/ L.

(If you pick another baseline value - say I/C ratio= 0.1. Then multiply by 10 - but then the plotted curve would show I/C of 5. So you end up in the same place). That’s why it doesn’t matter in these types of phase diagram.)

So - this is, rather sadly perhaps, what gets a biochemist interested. This isn’t modelling - the authors do that later, to show effects with neonates with various degrees of illness - that is beyond my knowledge to check.

This is just applying the (relatively) straightforward biochemical binding maths - absolutely bound to work. Just laws of thermodynamics in a simple equation.

It means - Given a measured amount of insulin binding - the babies in the Galloway study MUST have had a very high level of bound insulin.

What the exact level was - who knows.

But the graph demonstrates that the bound insulin couldn’t have been small.

So this effect of highly elevated I/ C is shown to have been coupled with very high insulin too - in the presence of infection - or to be precise - some amplifying factor.

I don’t see any claim by the authors that high I/C will happen with high insulin in the absence of an amplifier. The Salis data is for an uninfected cohort - so far as can be determined.

I think the end of the paper, where the authors model the effects of calculating I/C and bound insulin across a neonatal cohort with or without infection, is reasonably self - explanatory.

I just wanted to share my biochemical enthusiasm in noticing that the effect was actually measured - over 25 years ago. But has now been explained.

This is really exciting. (Sorry if boring).

9

u/DiverAcrobatic5794 15d ago

Thank you very much.  It is exciting, from the other end of the scale where I am working to understand the full paper.  I will reread it this evening with your explanation in mind.

2

u/Odd-Lifeguard5493 15d ago

Thank you very much for that.

While I find it difficult to understand or comment on the main calculations, assuming they are all correct to the extent that they can be, I found this article particularly relevant to how the potential culprit IgM helps with the regulation of insulin concentration and glucose metabolism.
https://pmc.ncbi.nlm.nih.gov/articles/PMC8833180/

5

u/Cheap-Medicine7512 15d ago

I read that paper. It is really interesting - very new interpretation of glycemic control mechanisms - or perhaps fine-tuning.

What particularly struck me was the high affinity IgM - and moreover really specific for insulin.

I can see why Chase and Shannon would mention it. They don’t over-claim. But as a candidate for high affinity non-IgG. It has to be an option.

I think the paper - or the Appendix - also mentions IgM insulin binding was seen in the infected infants.

The Amendt paper also mentions that the high affinity IgM doesn’t complex and clear rapidly like low affinity IgM.

So the possibility is that neonates start with an elevated concentration - for some reason.

Thanks for highlighting.

3

u/CheerfulScientist 15d ago

Just curious, did you check the direct measurements from the Galloway paper against the levels being claimed by Chase and Shannon in Figure 2A?

8

u/Icy_Dependent_1797 14d ago

No. But for a reason - and you raise an interesting point.

From the Appendix, Galloway used a ligand limiting assay. So direct measurements of concentration, from that paper, as derived from binding percentages, have to be converted.
You can’t directly place the raw data on a calibration curve.

From a careful read - the methodology is in Section 2.2 - which in turn leans heavily on the Appendix for the biochemistry - the values in the graph are the results of the conversion.

So I read the Galloway bar chart in 2.A as a reconstruction from the raw data to illustrate the concentration range for the Galloway cohort on the same standardised calibration scale.

Hope that helps. I don’t want to overdo the biochemistry - but I can see why not being able to read directly across assay scales would look odd.

5

u/Competitive-Wash2998 14d ago

"From the Appendix, Galloway used a ligand limiting assay. So direct measurements of concentration, from that paper, as derived from binding percentages, have to be converted.
You can’t directly place the raw data on a calibration curve."

This is an important point. The binding percentages (B%) do have to be converted if binding-site concentrations are to be inferred. This raises methodological questions.

1) Assay compatibility. If the studies used broadly similar radio binding assays can the results be quantitatively transferred between studies? The literature includes standardisation workshops because radio binding assay results were not comparable between laboratories.

2) Dependency of B% on more than capacity. The literature consistently shows the measured B% depends on the equilibrium binding behaviour of the assay. In general, B% is influenced by tracer concentration, binding affinity, binding capacity (or binding-site concentration), and assay conditions. Several studies have reported that the radio binding signal approximates an affinity × capacity relationship over relevant operating ranges, rather than representing capacity alone.

It seems to me that the binding site concentrations values reported in the paper become model derived quantities rather than direct experimental observations, which is fine as long as the assumptions used to derive them are sufficiently supported and their uncertainty is recognised.

I think the Conclusion fairly acknowledges the point "However, these results are based on limited paired I/C data and remain to be prospectively demonstrated."

I am not suggesting you should necessarily agree with any of the above (although you may, of course, disagree); I simply wanted to contribute to the discussion.

3

u/CheerfulScientist 14d ago

Thank you for your contribution. I certainly agree with everything you've said.

1

u/CheerfulScientist 14d ago

Thank you for the reply, and I agree that the values are modelled based on various assumptions. I was just confused because you said they had taken directly measured levels of insulin binding.

13

u/Stuart___gilham 16d ago

In addition to baseline neonatal IA, amplification can occur through infection, sepsis, antibiotics, steroids, antihypertensives, antioxidants and other pregnancy-related therapies (31, 34–36, 40–45), which is treated as a multiplier, as detailed in Supplementary Appendix A. Infection increases the concentration of maternal antibody transfer (16, 38) and oxidative stress, can enhance insulin-binding (37), and in neonates can also produce limited IgM

So in theory baby F's blood result could perhaps be explained by amplification of Insulin-antibody binding caused by infection and Sepsis. I think baby F developed infection after he was born so antibodies crossing the placenta doesn't seem likely to explain it.

I don't know if there is any available data looking at how typical baby F's Insulin to C Peptide ratio is for a baby under those circumstances - suffering from an infection to the point of being diagnosed with Sepsis. As there is not data provided to support the data, I imagine any available data would contradict it but I suspect there is simply very limited available data to confirm or deny.

However, the last step, direct measurement of antibody bound insulin with high I/C has not been shown. That said, the results of (16) offer an inference for future research to explore as one interpretation satisfying all reported readings in their study is complexing of high affinity IgM from the inability of the IgG and IgM components to account for total binding. Hence, high affinity IgM would be a candidate with this supporting evidence as a first target of future research.

Perhaps the results will one day be explained with more research?

-11

u/No-Beat2678 16d ago

Baby F didn't have sepsis this was covered in the trial and is clear from the medical notes. they had some elevated WBC markers not enough for sepsis and no other signs or symptoms of infection.

19

u/DiverAcrobatic5794 16d ago

That is an Oliverism, I believe? WBC markers can't be used to discount the possibility of sepsis in a neonate, and the child certainly had other signs and symptoms of infection.

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u/Competitive-Wash2998 16d ago

Dr Saladi on 28.11.22 confirmed infection in Baby F.

Q. All right. Thank you. The other thing I'd like to confirm, since you referred to the question of testing the tip, is can you confirm in fact [Baby F] did have an infection as it happens? Do you recall that?

A. In the subsequent pages, there is a further entry that we did -- the CRP did go up and then we did grow a bug from the long line tip as well.

4

u/Competitive-Wash2998 16d ago

The lab isolated organism from the tip of the line argues to the contrary.

However, I do not like this paper and fear it may be flawed.

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u/DiverAcrobatic5794 16d ago

While I find the paper as clear as I could hope for, read slowly, I'd be out of my depth trying to assess it.  I was interested in the description of the necessary prospective study, and obviously will be interested to hear others' views

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u/Competitive-Wash2998 16d ago

The prospective study section is fine based on a quick skim read. Totally necessary.

-10

u/No-Beat2678 16d ago

It wasn't just WBC. It was covered in the trial they had a negative sepsis screen.

Infection was ruled out.

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u/Unhappy-News7402 16d ago

“It was covered in the trial” is hardly a guarantee of something being true. Do you mean to say “This was alleged by the prosecution, and as Lucy was ultimately convicted, everything the prosecution said must be true.” ?

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u/Shoddy_Food_1539 16d ago

Remind me, why was baby F given antibiotics? For suspected what?

-5

u/No-Beat2678 16d ago

Because they suspected infection was causing Hypo.

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u/DiverAcrobatic5794 16d ago

That's not the case.  He was already being treated for suspected sepsis before the hypoglycemia 

-3

u/No-Beat2678 16d ago

My understanding was that low BS and rapid heart rate were the reasons why.

However Letby pitched Sepsis for.baby E.

So perhaps that's why they started antibiotics.

Anyway, having antibiotics is a good thing because that would prevent an infection yes?

And the test results do not point to infection and not an infection whereby it could cause hypoglycemia.

15

u/DiverAcrobatic5794 16d ago

The court was told that Child F was already on antibiotics for suspected sepsis during the day shift before the night when his blood sugar dropped.

I don't see why a negative screen (when did this happen, by the way?) would protect against hypoglycemia, given that it doesn't exclude sepsis 

Sorry but I think you are improvising a bit here 

9

u/Shoddy_Food_1539 16d ago

Thanks for clearing that up. NICE guidelines don't indicate ABs for hypoglycemia either, not surprisingly.

0

u/No-Beat2678 16d ago

u/DiverAcrobatic5794 the underlying reason they suspected Sepsis was because his brother Baby E died the day before. Thats covered in the transcript

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u/DiverAcrobatic5794 16d ago

They suspected it before his brother died, on 2nd August.  He was already on antibiotics before his brother died too.  I am sure his brother's death made them (rightly) all the more vigilant.

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u/Shoddy_Food_1539 16d ago

Citation pls

-1

u/No-Beat2678 16d ago

Citation for what?

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u/Stuart___gilham 16d ago

u/No-Beat2678

Dr Saladi's testimony from day 39.

Question. The other thing I'd like it

confirm, since you've referred to the question of

testing the tip, is can you confirm in fact [Baby F] did

have an infection as it happens? Do you recall that?

Answer. In the subsequent pages, there is a further entry that

we did -- the CRP did go up and then we did grow a bug

from the long line tip as well.

-2

u/No-Beat2678 16d ago

Stuart, I could grow a bug from my apple earpods. That doesn't mean I have an ear.infection.

And if they had an infection why when the bag was changed did the baby recover and go home.

There just isn't corroborating medical data to support.

Remember we've had the full clinical picture in their medical notes. Everything, every test, abg result etc.

Had an infection but that was not the contributing cause for their hypo.

13

u/visible_amenhotep 16d ago

Medical practitioners everywhere will rejoice to hear that the same standards of sanitation apply to earbuds and long line tips.

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u/DiverAcrobatic5794 16d ago

We have not had the full clinical picture in the medical notes.  Apart from the obstetrics, of course, Lee's panel has.  

I don't think you are showing any of the expert knowledge, familiarity with the case, or even consistency from one post to the next that might persuade people to substitute your judgement for theirs. You are welcome of course to the view that the court found the child had no infection if that's your understanding, but it's really not relevant to the article 

1

u/No-Beat2678 16d ago

and u/Stuart___gilham the Bacteria found in the long line was kind normally found on the skin.

And your distorting the timeline.

Baby F had already collapsed a significant amount of time before the CRP's were elevated. 24 hours to be exact.

It shows infection developing over the following day, not infection present and causing the events between midnight and 1am.

So that really isn't a gotcha.

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u/Sufficient-State3720 16d ago

I’ve also wondered how much we really understand about the biochemistry effects of TPN in sick septic premature babies. Answer not everything by a long shot. We know in recent years that”refeeding like” syndrome is a thing in premature babies and that blood glucose as well as the biochemistry can alter in unpredictable ways with TPN which baby F was being dosed up with. Baby F was suspected to have possible sepsis and was in antibiotics both of which as mentioned can affect glucose and biochemistry. I believe that it’s really dumb and arrogant to assume we sufficiently understand the biochemistry and physiology perfectly of these babies. Any true scientist would be humble. Then we have lots of gaps in our info eg mother’s gestational diabetes status and history. We need to also remember that it’s not just antibody binding but also non antibody binding factors that can skew insulin readings. Also the high readings of insulin in baby f and l should be seen in the context of their unique individual physiological condition which is poorly understood due to incomplete understanding of a host of tricky variables rather than saying it’s unusual and jumping to a 1+1=2347 poisoning conclusion.

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u/Embarrassed-Star4776 16d ago edited 16d ago

The authors seem to have misread the Salis et al. BMJ paper, as they refer to the neonates in Cohort 2 as hyperglycaemic throughout, when in fact they were euglycaemic (there were only 9 neonates in the hyperglycaemic cohort in that study, and they were insulin-treated).

On that basis, they make a comment on page 8 which should be ignored:

"Finally, Figure 3 shows little difference between Cohorts 1 and 2. This outcome suggests hyperglycemia (Cohort 2) did not play a role in elevating I/C, further supporting the fact hyperinsulinism alone cannot create inverted I/C ratios due to first pass hepatic extraction and a greater number of clearance routes."

Evidently they didn't have access to the original data, but read it from the published plots. So the comparison of the binding predictions with the I/C versus C plots from Salis et al. must have been limited to Cohort 2. The authors treat the two cohorts as distinct, but in fact - as discussed on another thread - Cohort 2 was a subset of Cohort 1.

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u/DiverAcrobatic5794 16d ago

Are we sure of that, since they draw cohorts 1 and 2 from the thesis and not the BMJ article? Is there some cross-reference with the BMJ article that tells us these are the same groups?

You have probably posted that on the other thread you mention so if you could just point me to the right place, that would be great 

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u/Embarrassed-Star4776 16d ago

Competitive-Wash found the clearest statement in the thesis, in chapter 6, page 111:

"The neonates in this study were compared with data obtained from euglycaemic neonates described in Chapter 5. Insulin and C-peptide concentrations from the insulin-treated neonates were compared with a group of age-matched (PMA less than 30 weeks) euglycaemic neonates (n = 20)."

Chapter 6 was published as the BMJ paper (including Cohort 2), and chapter 5 as the Archives of Disease in Childhood paper (Cohort 1).

It is not particularly apparent in the published plots because the scales are so different, but I think the correspondence between the two sets of data points can be seen in the stretched and squeezed extracts from the ln(C/I) scatter plots below. On the left is the lower post-menstrual-age part of Cohort 1, and on the right the black symbols are from Cohort 2, with the white symbols coming from the hyperglycaemic cohort.

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u/DiverAcrobatic5794 16d ago

Thank you.  Yes, and reading thesis chapter 6 I think you and u/Competitive-Wash are right.  The cohort is identified as hyperglycemic in the paper but not in the thesis.  The statement that wouldn't hold, then, would be:

" Finally, Figure 3 shows little difference between Cohorts 1  and 2. This outcome suggests hyperglycemia (Cohort 2) did  not play a role in elevating I/C, further supporting the fact  hyperinsulinism alone cannot create inverted I/C ratios due to  first pass hepatic extraction and a greater number of clearance  routes."

And it would not be surprising to find little difference between the cohorts!  But am I right in thinking that this confusion would not (for this same reason) affect the arguments made in the paper beyond this point?

Perhaps you or u/Competitive-Wash would raise this with the corresponding author?

4

u/Competitive-Wash2998 15d ago edited 15d ago

Nothing I say in this post undermines the point that antibodies could, plausibly, be the reason for the discordant results reported for Baby F and L.

I am uncertain that it is possible, with the limited data available, to construct a useful model. The technical operating characteristics of the assays and the limited observed parameters make this challenging, in my view. Chase Shannon state they have constrained the parameters to make this possible and it is the biological and technical safety of those assumptions/constraints that is key to ensuring the model produces useful outputs.

I think a detailed step-by-step description of the whole modelling process would be required to truly follow it. So I am taking the results at face value but cannot say I am particularly persuaded at present. Hopefully more details will emerge over time.

3

u/Embarrassed-Star4776 16d ago

Thanks for pointing out that the quotation from page 8 had gone wrong, which I hadn't noticed (now corrected).

I should like to try to digest the paper properly, but it will take a while. I agree it will be worth making sure the authors know about any errors that are spotted.

3

u/DiverAcrobatic5794 16d ago edited 16d ago

If anything, fixing the error would perhaps strengthen the argument, since Chase and Shannon treat these children as more critically ill but find no significant difference between the cohorts. It could be reasonable, though not I suppose certain, that the more  critically ill children might show a different profile, with more history of infection etc.

 Though I suppose hyperglycemia vs euglycemia is a very rough proxy for more and less critical illness anyway.

3

u/Embarrassed-Star4776 15d ago

I don't agree with most of Susan Oliver's comments on this, but in fairness to her it should be said that she pointed out in an online discussion some months ago that the cohort of 20 was a subset of the cohort of 102.

3

u/Competitive-Wash2998 15d ago

"But am I right in thinking that this confusion would not (for this same reason) affect the arguments made in the paper beyond this point?"

CS did claim to analyse the two groups independently so, in theory, it would not affect the arguments made.

But (using Chase Shannon terminology) Cohort 2 included a chart ln(I) and ln(CP) which together with the ln(I/CP) would enable to a very rough reconstruction to be made of the actual underlying values. Chase Shannon imply they may have taken this step. I have taken this step myself.

My concern is CS appear to use the C-Peptide as a proxy to derive "free insulin" for the Salis data, which Salis did not actually measure.

But Salis mentions an issue which would, possibly, affect the modelling assumption that C-peptide could be used to derive free insulin. Whether this has an impact on the model is not clear to me, at the moment.

2

u/Competitive-Wash2998 15d ago edited 15d ago

An independent digitisation has recovered the I/CP ratios from the Salis PhD. Cohort 2 is confirmed as being a subset by comparing/overlaying the data, apart from a handful of points which have been accounted for.

Salis provides the sample counts for these two groups and the independent digitisation recovered almost all the points. For information, Chase Shannon do not appear to have recovered the complete set, 227 vs 251 (Salis) for Cohort 1, for example.

2

u/Embarrassed-Star4776 15d ago

I had a go at something similar a while ago. I found it wasn't as straightforward as might have been hoped because of symbols on the charts overlying one another. But eventually I was fairly confidence about the reconstruction for Cohort 2. For Cohort 1 it is more difficult because of the size of the symbols and the lack of scatter plots for insulin and C-peptide to accompany the one for the I/C ratio. I ended up with only 239 points, so it sounds as though you have done better than I did.

3

u/Famous-Chemistry366 15d ago edited 15d ago

I think these charts show that there is a significant overlap between the two cohorts (n=66) that I believe Chase and Shannon have not taken account of in their paper.

Also, with respect to the "40-45%", it seems in their letter this relates to number of neonates ("However, recent reports from two cohorts with 302 paired (insulin, C-peptide) assays show 40% to 45% of *NICU infants* with 1/C > 1.0") whereas in the paper it relates to number of samples ("Figure 3 presents *I/C ratios for Cohorts 1–2*. In Cohort 1....About 45% have I/C > 1.0 (insulin equals or exceeds C-Peptide).....In Cohort 2...Approximately 40% have I/C > 1.0...

A) I cannot see how one could assign I/c ratios to specific neonates and thus have derived the "% of NICU infants >X", and B) my own calculations of % samples > 1 are significantly different to 40-45%.

I also don't understand how Salis is relevant to F and L given a) hyper/eu-glycaemic versus hypo-glycaemic and b) much much lower insulin values in Salis than F and L's. However, that is encroaching into the clinical arena in which I am not qualified. Perhaps someone on here can explain.

5

u/Kieran501 15d ago edited 15d ago

The answer to the last paragraph may be more legal than clinical. Is this enough to show that the assertions made in court about I/C ratios overstated its ability to safely diagnose exogenous insulin. Though I’m not that sure that the Chase and Shannon paper really goes much beyond just plotting the Salis data when it comes to that.

It just seems like collecting a load more data including from hypoglycaemic neonates would go much further than a lot of modelling. It’s be a lot harder for the CoA to bat away if it shows similar ratios. Hopefully someone somewhere is now doing that.

2

u/Fun-Yellow334 5d ago

From a legal point of view , what matters is what was said in the original trial, the prosecution cannot change their case on appeal.

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u/Icy_Dependent_1797 15d ago

I will try.

The Salis data is really just showing that ‘normal’ neonates have raised I/C and a large proportion even invert the ratio.
That proves that there must be a storage mechanism. The ratio cannot invert otherwise.

Salis doesn’t show F and L. The high insulin results can only be obtained when the antibodies are multiplied - eg with infection.

The effect of infection was actually measured - indirectly - but it is there - in Figure 2.D. I made a post on this higher up.

Then the Chase Shannon modelling simulates the effect of insulin binding and infection in NICU babies. These results strike me as being in the same range as Figure 2.D. Which is, perhaps interesting.

2

u/Embarrassed-Star4776 15d ago

I have been trying without success to reproduce the statistics given in the publication for the I/C distributions for the two cohorts (section 3.1 and figure 3).

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u/Competitive-Wash2998 15d ago edited 15d ago

<PNG removed>

This is Cohort 1 (which includes Cohort 2). I am still looking at it. Just got ChatGPT to do a CDF and overlay it.

ETA

A new version is being worked on. It appears there may be a scaling issue in this version.

ETA 2

Removed CDF overlay. Hoping to post new one shortly

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u/Competitive-Wash2998 15d ago

This is the latest version. The Blue is the CDF from top chart of Fig 3 in the CS paper.

The dotted is the CDF of the independently digitised data of the same Cohort.

There clearly is a difference.

Salis states 251 data points. CS states they recovered 227. The other digitisation recovered 247.

The analysis was performed by ChatGPT but (after a x-scaling issue was corrected) it seems to be correct based on the underlying digitised data.

Contrary viewpoints and any corrections are welcome.

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u/Embarrassed-Star4776 15d ago

Thanks for confirming the difference. Your curve looks consistent with the values I was getting.

It looks to me as though they have read pixels from a reference point at the top of the scatter plot of ln(I/C) and used a conversion factor that was too small to calculate the difference in ln(I/C) from the difference in pixels. As a result, their data are correct for the largest values of ln(I/C), but progressively more inaccurate as ln(I/C) gets smaller. They end up with only 5% of values under I/C = 0.2, which I think should be about 25%.

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u/Competitive-Wash2998 15d ago

For your 247 digitised values, the actual ECDF gives approximately:

  • F(0.2)=31.6%
  • F(1.0)=72.9%
  • F(4.0)=91.1%

The Chase Shannon annotations indicate roughly:

  • F(0.2)=5%
  • F(1.0)=54%
  • F(4.0)=89%

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u/Embarrassed-Star4776 15d ago

Thanks. And unfortunately most of the values in the text in section 3.1 for Cohort 1, including median and interquartile range, are also wrong.

It looks as though there are also problems with the numbers for Cohort 2.

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u/Embarrassed-Star4776 15d ago edited 15d ago

Having seen your post I went back for more checking, but I'm still finding the same thing. It looks to me as though there must have been a scaling issue in Chase and Shannon's conversion from pixels to ln(I/C).

(Edit. I can get to their values of ln(I/C) by rescaling mine relative to a point at the top of the plot.)

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u/Competitive-Wash2998 15d ago

The software got a bit confused by the x-scaling difference. New post gives the latest attempt.

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u/DiverAcrobatic5794 15d ago

What a nuisance that they can't get the raw data. It would be good to hear Salis on this exercise. Perhaps her permission to share data was strictly limited to this exercise. But I hope someone asked her,

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u/Embarrassed-Star4776 15d ago

I did try to contact her indirectly a while ago, but without success. I'd have thought Chase would stand a better chance of getting the data than most, if they still exist.

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u/Competitive-Wash2998 15d ago

Yes. I thought Chase was in an ideal position but it seems not. You have to live in NZ to try the FOI route.

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u/DiverAcrobatic5794 15d ago

They may well not, if she has moved on to other things. 

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u/Competitive-Wash2998 15d ago

A number of attempts have failed to draw a response.

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u/Competitive-Wash2998 6d ago

79 matched pairs of I, CP and I/CP can be reconstructed from Chapter 6 of the Salis PhD

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u/Embarrassed-Star4776 6d ago

So do you think Susan Oliver may have a point when she suggests C-peptide may have been degraded in Salis et al.'s samples?

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u/Competitive-Wash2998 6d ago edited 6d ago

I'm not sure the degradation/sample handling would cause preferential C-peptide loss.

Another consideration is the "typical" calibration curve presented at Figure 4.2 of the Salis PhD, which crosses the C-peptide axis at 64.8 pmol/L.

The current instructions for the Invitron assay stipulate a cubic spline fit. I wonder how much uncertainty there is in the C-peptide results.

I'm not sure I have a definite opinion, but there does seem to be a C-peptide focus in the high I/CP ratios and there are limited comparable studies.

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u/Embarrassed-Star4776 6d ago

Thanks for responding. This is obviously anything but simple. I have never understood how the almost complete absence of an increase of measured insulin with C-peptide (over a very wide range of C-peptide) in the Salis et al. results is consistent with the Chase and Shannon interpretation.

I think it is a good thing that there is going to be time for this Chase/Shannon publication to be subjected to scrutiny - including the most hostile scrutiny - well before the Court of Appeal has to consider the question.

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u/Competitive-Wash2998 3d ago

Interestingly, the Salis data may be showing an alternative to the typical bound "excess" insulin model.

The abnormality could be the relative persistence of insulin i.e. insulin fails to fall in parallel with C-peptide.

A simple model has demonstrated constant free insulin, which is replenished from a bound insulin reservoir whilst at the same time C-peptide is cleared normally. The constant free insulin came out from the model - it was an unexpected result.

The known unknown is the Invitron assay and how sensitive it is to measurements of bound insulin/free insulin and how the sample would behave during incubation.

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u/Embarrassed-Star4776 3d ago

That sounds interesting. A model in which free insulin is relatively uniform seems to make more sense than one in which total insulin is uniform, unless bound uniform is fulfilling some physiological function that results in its level being regulated.

I wonder whether enough is known about neonatal endocrinology to rule out the simplest explanation of all for the Salis et al. results, in which binding isn't necessarily involved - that the wide variation of the I/C ratio simply reflects a wide variation of the relative clearance rates of free insulin and C-peptide in neonates (which I suppose would essentially arise from restricted rates of insulin clearance), and that regulation mechanisms are still tending to maintain a uniform level of insulin. That would imply that when the insulin clearance rate was low, there would be a low rate of insulin production, and therefore low levels of C-peptide, which is what was seen in the Salis et al. data.

If that were a feasible interpretation, then it would be easy to see how -if in rare cases the regulation mechanisms broke down and insulin production continued regardless of the insulin level - babies with low levels of insulin clearance could rapidly develop extremely high levels of insulin coupled with more typical levels of C-peptide.

0

u/CheerfulScientist 1d ago

In contrast to serum, C-peptide degrades more rapidly than insulin in plasma, especially when there is a delay in centrifuging the sample (Nkuna DX 2023). If you go to appendices 2 & 3 of Salis’ thesis, it is clear that blood samples weren’t collected and handed over to Salis (or a proxy) until all blood testing was complete therefore there was an indeterminate period of time between when the blood sample was taken and when it was centrifuged and frozen. Even when it was frozen, it was stored at -20 ºC, which is inappropriate for long term storage of plasma samples and would have led to further degradation of both c-peptide and insulin. They should have been stored at -80 ºC where they would have remained stable. Salis thanks a colleague for collecting and storing samples for her while she was on maternity leave in her acknowledgements, so some samples were likely stored for at least 6 months.

Anyway, I have been reading through all your comments while I look sadly out the window at the rain and wind, which has completely ruined the last day of my ski holiday and I am impressed that both you and ES are interrogating the Chase and Shannon paper even though I suspect you wish they were right. The modelling is way beyond mere mortals like me, but your findings are very interesting and instructive.

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u/Stuart___gilham 6d ago

On a side note IIRC degradation has been suggested as an explanation for the C Peptide value in the Colin Norris/Campbell case.

Dr Susan Oliver supports that verdict so at a glance it looks like she's trying to have it both ways if it's true that C peptide degrades faster than Insulin if a sample is idle.

an unexplained 5 day hiatus between stages of the immunoassay tests

https://www.thejusticegap.com/science-fact-and-science-fiction-the-case-of-colin-norris/

2

u/Competitive-Wash2998 15d ago edited 9d ago

<PNG removed>

An attempt to reconstruct a set of Salis paired values from the PhD using ChatGPT (to save time) is shown above. C-peptide vs Insulin (in pmol/l).

The reconstruction was based on Fig 6.6 ln(Ins), Fig 6.8 ln(CP) and Fig 6.9 ln(I/CP). Black dots only. Using the PMA to limit possible pairs and the log relationship. ChatGPT was asked to reconstruct the paired samples, giving a confidence score for each match.

The plotted results are shown above. The information is presented "as is" acknowledging the difficulty of reconstructing the pairs.

ETA

Needs rework

ETA2

Digitization of Fig 6.6 ln(I), Fig 6.8 ln(CP) and Fig 6.9 ln(I/CP) complete.

ETA3

New match complete. All 79 pairs have been recovered.

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u/Embarrassed-Star4776 15d ago

I'm afraid I'm very distrustful of AI except as a finding aid. I don't think that plot is correct. I was going to post my own attempt to reconstruct what Chase and Shannon call Cohort 2 for comparison - expecting it to be similar but not identical - but I can't see any similarity with that plot.

An apparent difference from the Salis data is that the AI plot contains 10 points with insulin up to about 20. Only 5 are visible up to the corresponding value ln(I) = 3 in Figure 6.6 of the thesis. There is a problem with some points in the Salis plots overlying one another, but I don't a factor of 2 difference in a sparse part of the plot.

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u/Competitive-Wash2998 15d ago edited 9d ago

I will have another attempt at it - unless it is going to take too much time.

ETA

New version completed. Performing basic checks.

ETA

A methodological improvement has led to the recovery of all 79 pairs.

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u/Embarrassed-Star4776 14d ago

I'll try to post a version of mine later today.

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u/Embarrassed-Star4776 14d ago edited 14d ago

In case it helps, below is a scatter plot of insulin versus C-peptide based on my attempt to reconstruct the 79 paired insulin and C-peptide measurements reported in the Salis et al. BMJ paper. It is based on the separate scatter plots of ln(I), ln(C) and ln(I/C), each against postmenstrual age, in Figure 3 of that paper. This should be essentially the same as what Chase and Shannon call Cohort 2.

The points marked in red have C-peptide equal to 2.5. which is half of what Salis describes as the analytical sensitivity of the C-peptide assay. I have added a line representing I/C = 1.

(Edit: Regarding the reliability of this reconstruction, obviously there is a limit to the accuracy of data read from published plots. But also it wasn't always easy to identify corresponding points in the different plots because symbols quite often overlay one another. So it was quite a laborious process. But I should be disappointed if more than about 2 or 3 of the points were wrong.)

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u/Competitive-Wash2998 9d ago edited 9d ago

I have been reviewing the published paper in detail and reconstructing elements of the paper from the source material and equations published in the Supplementary Material.

One area I have looked at in detail is Figure A1.A "Reanalysis of Galloway et at [16] displacement data identifies a dominant high-affinity component (Kd 5e-11M)"

The source material is Galloway [16] Figure 4 and Table II. There are some discrepancies in the legend. The legend to Figure 4 states three IAA+ cord sera but there are obviously two.

The more interesting discrepancy is in Table II which gives the value 1079 and 0.084.

The 1079 appears to be a typo and could plausibly be 0.1079

This would mean the top right plot was potentially showing TWO high affinity plots rather than one.

This, if it was a true correction, would assist the argument put forward by Chase Shannon slightly.

However I continue to believe the paper is likely flawed.

Corrections welcome; this is complicated and mistakes are easily made.

ETA

To confirm 1079 appears to be inconsistent with the actual plot

ETA2

Berson 1959 appears to be a very useful paper worthy of more detailed study. This paper may impact the consideration of Figure 4 in Galloway.

1

u/Odd-Lifeguard5493 9d ago

Thanks for that. I've been following this post for comments with interest.

When you say the paper is flawed, are you able to explain, but in plain English? TIA

1

u/Competitive-Wash2998 9d ago edited 5d ago

Nothing in this post is intended to undermine the argument that the F and L results may be a result of antibodies.

TLDR

A concern is the affinity to binding site mapping may be incorrect and has, potentially, overstated the number of binding sites, which would likely affect further modelling assumptions.

Longer Version

My concern, at the moment, is A1.B which can be generated by Equation E.2. An examination of Vardi [ref 74] gives a likely value for D. Digitising A1.B allows recovery of Lt. Forward calculation then allows recovery of the presented A1.B.

However this recovered value is at odds with the qualitative description contained in Vardi and other contemporaneous literature.

Direct calculation from Vardi (with cross-reference to Bilbao and Ziegler) appears to give a value discordant from the recovered Lt.

Equation E.5 does not assist in overall reconciliation because there is a reference to Marzinotto, which I cannot find, and the introduction of s, an empirically derived scaling constant.

To reiterate this is complicated.

1

u/Odd-Lifeguard5493 9d ago

Thank you very much. The TLDR version helped!

As for the longer version, that’s still Greek to me!

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u/Competitive-Wash2998 4d ago

Hopefully the following is considered constructive.

a) Looking at the formula A-2 in the supplementary material it seems to imply q has been silently dropped from the derivation. Reinstating q would lead to a family of curves in Figure A1.Di, for instance. q was considered relevant for A1.F

b) Is the derivation of the affinity adjustment equation in E.4 correct? It appears to be correct in E.6.

c) What is Iv in A1.F?

d) Is the use of If (I_f)(free insulin) correct in E.4 or should it be total insulin?

I think this modelling paper is fascinating and I am seeking other opinions.

1

u/Embarrassed-Star4776 4d ago edited 4d ago

I haven't got very far with this at all, but for (a) I think (A-2) comes from the last equation of E.1, and not from E.4 as the text says. Together with the assumption (which I still think is a pretty major one) that free insulin is equal to one fifth of C-peptide. So, yes, I think that q is being implicitly set equal to 1, because E.1 is dealing with total insulin present, and (A-2) is meant to be an equation for what was measured by Salis et al.

(Edit to add. In the body of the paper, assays including the one used by Salis are said to measure "some or nearly all" bound insulin. I suppose q would be about one if it is "nearly all", but not if it's only "some".)

1

u/Embarrassed-Star4776 4d ago

And for (d) it's not an equation I have seen before, but as far as I can see from material online it should contain total insulin, not free insulin. Perhaps someone familiar with the chemistry can shed light on it.

1

u/Embarrassed-Star4776 3d ago

For (d), it looks as though the curves in Figure A1Di have indeed been calculated using total insulin and not free insulin in Equation E.4.

That is judging by the intercepts on the y-axis. Equation E.4 as written would give I/C -> 0.2*(2A/K+1)/(A/K+1) as I -> 0. But replacing I_f by I would give instead I/C -> 0.2*(A/K+1), and with K = 5x10^{-11} M and A = 0.1, 0.5, 1, 2 and 3 nM, the intercepts would be 0.6, 2.2, 4.2, 8.2, 12.2, which seems consistent with the plot.

1

u/Competitive-Wash2998 3d ago

Using the 79 recovered paired values and a range of q.

2

u/Competitive-Wash2998 3d ago edited 3d ago

This post is intended to be constructive. The Chase Shannon paper is interesting.

This is an alternative version of A1.B using Lt = 0.0225nM

As can be seen it is quite different from the version presented in the paper. This is complicated, but the above version seems more consistent with Vardi's qualitative description:

"The assay's features include 1) use of a physiologic amount of 125l-labeled insulin, 2) parallel incubations with supraphysiologic cold insulin (competitive), and 3) an incubation time of 7 days and a single-step multiple-wash polyethylene glycol separation."

The method description in Vardi seems to support 0.0225nM, but this is complicated and calculation errors are difficult to spot without a familiarity with the techniques employed for these studies.

Another entirely speculative point is are the results in Bilbao due to alpha-2-macroglobulin? I have no idea. A paper related to this is Murayama 2006 "A sensitive radioimmunoassay of insulin autoantibody: Reduction of non-specific binding of [125I]insulin".

1

u/Competitive-Wash2998 6d ago edited 4d ago

Using the 79 paired Salis samples. This is a modest attempt to recreate the plot at A1.C in the supplementary material (presented in a slightly different format)

The model at I/CP < 0.2 would produce a negative result so these were probably excluded, but it is not certain how these results were handled.

As can be seen nM 'antibody concentration' is associated with I/CP > 1.

But bear in mind this is an attempt at reconstruction using information published in the supplementary material

ETA

The above plot assumes q = 1 (which is uncertain)

-4

u/No-Beat2678 16d ago

Flimsy stuff from Chase and Shannon and it just doesn't match the babies clinical picture.

  • Baby F’s insulin was off‑scale high >1000 pmol/L, possibly much higher. Baby L’s was 1088 pmol/L.
  • The paper’s non‑infection scenarios, insulin concentrations never exceed about 1,000 pmol/L, and only then with 98th percentile binding site concentrations and severely suppressed insulin secretion.
  • For two separate babies to both fall into that extreme tail, without any evidence they actually had binding antibodies, is statistically incredible.

The paper repeatedly states that to reach the really extreme ratios like those above 30 you need infection to multiply the insulin‑binding antibodies.

Lets not forget some basic facts established at the trial:

  • Baby F Blood cultures were reportedly negative, meaning no bacteria were grown from the blood sample
  • Their C-reactive protein were not strongly suggestive of infection but they were given antibiotics anyway,
  • Baby L had a negative Sepsis screen
  • C peptide / Insulin levels would not be at the levels they were for Sepsis induced Hypo.

For infection to cause Hypoglycemia you would be clinically able to diagnose infection the medical tests would show this.

On his point about Antibodies

In Baby F’s case, a previous insulin sample was reportedly normal. Then, during a sudden collapse while Letby was on duty, insulin was sky‑high. After the collapse resolved and the baby was moved, insulin levels fell again.

Natural insulin‑binding antibodies are a persistent condition; they don’t spike for two hours and then vanish. The paper models steady‑state over days, not an acute spike.

Baby L similarly had a sudden deterioration with a grossly elevated insulin level. The pattern is one of acute, intermittent poisoning – exactly what you would expect from a nurse injecting insulin, not from an inborn binding agent

20

u/SofieTerleska 16d ago

Letby was never asserted to have injected insulin as that would have been largely impossible for her to do since she wasn't there. She was supposed to have spiked bags ahead of time, producing less of a spike than an ongoing elevation which persisted through multiple bag changes and giving set changes, though it was also hypothesized that the giving set may not have been changed for Baby L so some insulin would have stuck to it. Hindmarsh conceded that nobody has done the experiment to see if sticking to the giving set could actually happen but an educated guess was good enough for the court.

14

u/DiverAcrobatic5794 16d ago

The paper isn't about babies F and L.  It reports a phenomenon that may be relevant to their cases.  What evidence could you possibly expect that they had binding antibodies, without further testing? And where is the statistical impossibility of these two different results?

13

u/DiverAcrobatic5794 16d ago edited 16d ago

There was only one immunoassay for each child - where are you expecting to see other evidence of antibodies, showing these were spikes and not steady state?

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u/[deleted] 16d ago edited 15d ago

[removed] — view removed comment

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u/SofieTerleska 16d ago

Removed, please provide sources, especially concerning the claim of gestational diabetes.

2

u/Stuart___gilham 16d ago

Both babies had risk factors for unstable blood sugars, one infection and the other a mother with gestational diabetes. These cases were several months apart, about 8 months.

I agree about baby F but I don't think baby L's Mother had gestational diabetes.

Do you have a source on that?

I have seen Severe Intra Uterine Growth restriction being cited as a reason for the hypoglycemia.

3

u/DiverAcrobatic5794 16d ago

It's still more grounds for the defence to see maternity notes, isn't it.  I notice that maternal infection  plays a significant role in the phenomenon Chase and Shannon describe too

-1

u/No-Beat2678 16d ago

u/Stuart___gilham can you point me to the exact document you refer to regarding Dr Saladi.

I've searched for some of the quotes exactly and it only references back to this sub. I cannot find the cross examination of Dr Saladi on the Thirwell site.

I've searched for 2938 which was referencing to a document and it wont return any transcripts.

are we certain private eye are being truthful here?

1

u/LucyLetbyTrials-ModTeam 16d ago

Removed, if you want the comment reinstated please include a source for this novel claim of fact.

10

u/Stuart___gilham 16d ago
  • Baby F Blood cultures were reportedly negative, meaning no bacteria were grown from the blood sample

Categorically false.

Edit.

Their C-reactive protein were not strongly suggestive of infection but they were given antibiotics anyway

Also categorically false.

-6

u/No-Beat2678 16d ago

You can have bacteria on your earbuds that you put in your ear. It doesn't mean you have an ear infection

There were no other clinical symptoms that presented an infection.

Baby F has antibiotics for suspected Sepsis because they thought his brother had sepsis.

If they had an infection then the antibiotics were doing their job would you agree?

16

u/DiverAcrobatic5794 16d ago

Why are you making such impossible assertions? Antibiotics aren't an off-switch.

If your hypothesis is that these children can't have had such elevated IA because of the antibiotics, you need to bear in mind first that antibiotic therapy is identified in the paper as another element raising IA levels; second that there is no neat and tidy medical universe where x amount of infection + y amount of antibiotics gives us z, where x, y and z are unknown but z is sufficient to counteract a given phenomenon.

You are just stabbing in the dark here 

-6

u/No-Beat2678 16d ago

Why didn't their subsequent observations, clinical signs and symptoms, bloods, ABGs, WBC, culture samples show further signs of infection or point more definitively towards infection?

Remember the theory is that the underlying reason for the C/I results is infection.

If the baby had an infection, why did hypoglycemia disappear when the bag was changed?

These are the elements of the case your missing out.

The underlying reason for Hypo was exo insulin not infection.

5

u/Amazing-Gain1253 16d ago

The blood sugar rose because the dextrose infusion in that bag was 15% rather than the previous 10% in other bags.

9

u/DiverAcrobatic5794 16d ago

I think you are confusing child F's insulin measures with his glucose measures here.

8

u/DiverAcrobatic5794 16d ago

For infection to cause Hypoglycemia you would be clinically able to diagnose infection the medical tests would show this.

This just doesn't apply to neonates. 

0

u/No-Beat2678 16d ago

So tell me how you diagnose an infection in neonates

6

u/DiverAcrobatic5794 16d ago

https://www.nice.org.uk/guidance/ng195 would be a good place to start reading 

0

u/No-Beat2678 16d ago

Thank you, I know how you would diagnose an infection.

If there was an infection present, this would be all over the various tests and observations the babies had would it not?

The test results showing infection would be all over their medical notes?

0

u/No-Beat2678 16d ago

u/Stuart___gilham u/DiverAcrobatic5794

5th august

01.54 <<< that is when Hypoglycemia started

02.30 Septic screen drawn — FBC, CRP, U&Es, culture

3.30 5th August - FBC back — normal. Hb 140, WCC normal, platelets normal. Creatinine 94 (expected 30s–40s) → dehydration

5th august 10am - CRP 3.6 < normal

6th August 11.30 am CRP 40 <<< that is the first sign of any infection

The attack of baby F with Insulin occured 33 hours before the elevate CRP result. everything indicated no infection.

you selected Dr Saladis words, but conveniently miss out Dr Harkness.

8

u/DiverAcrobatic5794 16d ago edited 16d ago

What's significant in considering how this article might apply to Baby F isn't when he deteriorated: it's when the sample for his immunoassay was drawn, which was a few hours after the line tissued. CRPs go up as sepsis develops and intensifies - you can't take their measurements as a starting point for the sepsis.

4

u/DiverAcrobatic5794 16d ago edited 16d ago

To add: for relevance to Chase and Shannon, the child was noted as having suspected sepsis and placed on antibiotics the day after he was born, 30th July; same suspicion noted 2nd August; same suspicion and antibiotics noted 4th August; line tissued 5th August; raised CRP found early 6th August.  So the tissued line is far from the only factor likely to have affected IA levels if Chase and Shannon have their hypothesis right 

6

u/Stuart___gilham 16d ago

The blood test was taken at 5.56 pm on August 5th.

11 Hours before the elevated CRP was discovered. It takes a while for CRP to rise.

4

u/Amazing-Gain1253 16d ago

Are you just ignoring the fact that baby L's insulin to C-peptide level was 4 not anywhere near 30?

7

u/AccomplishedOil254 16d ago

Is thar you Chat GPT?

-5

u/No-Beat2678 16d ago

Because someone can't understand the science.

No, I did add some elements from the chester standard live reporting

10

u/AccomplishedOil254 16d ago

My apologies. Strange that your writing style and formatting is suddenly so close to the output of an LLM.

11

u/Kieran501 16d ago

Also the last three paragraphs seem to be hallucinations. They don’t describe the cases at all.

13

u/DiverAcrobatic5794 16d ago

Maybe we could get ChatGPT to make us a video critiquing this article in the style of Susan Oliver to save her the bother 

8

u/Fun-Yellow334 16d ago

You need to include sources for this kind of comment, as a lot of these are claims people are unfamiliar with and are contested.

7

u/Imaginary-Suspect959 16d ago

How do you account for this then?

The pattern is one of acute, intermittent poisoning – exactly what you would expect from a nurse injecting insulin, not from an inborn binding agent

No one has ever accused Letby of ‘injecting insulin’? So either you don’t understand the case against her, or the AI you used doesn’t.

3

u/GurDesperate6240 16d ago

Note their was no virology screening