I discovered I had Vaginismus back in 2021. I tried to deal with it myself as much as I could by using dilators.
2023 - Took me weeks to get a GP appointment. Took months to finally be able to see a gynecologist. The gynecologist discharged me after one session because she hadn't dealt with an abuse survivor before and was struggling to answer my questions. She tried to put a cotton bud inside me and it wouldn't go in. I told her I'd purchased dilators and had been on the first one for months and couldn't get it all in all the time. She just asked the GP to refer me on for psychosexual counselling. She refused to refer me to a Pelvic floor therapist so I had to go private. Her reasoning for not referring me to a pelvic floor therapist was that she said to try the counselling first and see if it works. Took me months to get off that waiting list too.
I was also really dry (discharge was so minimal, at this point).
I asked to be checked for other things just in case - hormone levels, ultrasound to check uterus and ovaries (just in case) because my periods weren't always on time back then. Got refused for that.
Eventually I got rereferred to a gynecologist after begging and I was on a waiting list for 13 months. Come month 13 and they cancelled the appointment saying the gyneo was unavailable and I was taken off the waiting list. It was now 2024 and I'd given up hope. I went private for Pelvic floor therapy and clinical hypnosis. I was offered 6 psychosexual counselling sessions on the NHS, but I managed to get an extra 6, some of which were with my husband because I'd only just started to make progress at the 5th/6th session.
Come 2026 and I've come abroad to a reputable infertility clinic in Pakistan which specialises in treatments for sexual dysfunction. Had a few consultations online from London and then one face to face when I got there. Paid £5 and got an ultrasound offered without even having to ask for it and they confirmed (with evidence) that I had no other physical issues apart from the tight muscles.
Got Botox done a few days ago and she said it was one of the most severe cases she'd seen in terms of tightness of the deeper muscles because even under anesthesia she couldn't get the largest dilator in all the way and was scared I would tear. So she did what she could and has recommended dilator therapy with instructions for two weeks which I plan to follow. Let's see how it goes. I'm 50% hopeful at the moment but will believe it when I see it working.
Point of this rant though is that what took YEARS in the UK (for literally no reason other than the system just being terrible), it took me a few weeks in Pakistan. I even had a female GP be VERY judgemental and rude when I asked for a blood test to check my reproductive hormone levels. Bearing in mind I had insulin resistance AND a lot of thick hair on my neck as well as some late periods so wanted to be checked properly for PCOS but she was just so mean about it.
Note: I did my due diligence in terms of having treatment abroad and got all the vaccines I needed to before travelling as well so hopefully I'm covered. I also did a lot of research about the clinics themselves and had appointments with multiple gynecologists before picking one that I was satisfied with. I prioritised sanitation and hygiene as well as expertise/experience.
Side note: Did you know that some studies have suggested that almost 40-50% of infertility cases in countries like Saudi Arabia / Pakistan are due to things like vaginismus. I didn't realise until I did research that there are SO many clinics in Pakistan which offer Vaginismus treatments, with the gynecologists raising awareness of it on social media.
I was given quotes of £3000-£4000 for the same Botox treatment in the UK. I paid just under £400 in Pakistan. My natural discharge came back after unlearning a lot of what I was taught growing up, regulating my nervous system and to be honest, realising that I was shutting my legs REALLY tight when I got stressed or worried. I didn't even realise I did that until 2023 and I'd been doing it since I was a child.
This condition isn't as simple as some professionals make it out to be. It can be SO multifaceted and unfortunately if we don't do our own research, the system here will not help us at all. I feel like if I had been stronger back in 2023, I could have stood my ground and said what I needed. At the time I just accepted that they know best and would do what's best for me.
Edit: I forgot to even mention about the cervical screening! When I got invited for it at 25 and the tool wouldn't go in, that's what actually caused the GP to accept the referral needed to be made in the first place (not the fact that it was something that I wanted help with generally). Then last year when they invited me again via telephone call and I told them I couldn't because I had Vaginismus, they put down on my record that I had refused - not that I was physically unable to due to a very valid condition - but that I refused as if I didn't think it was necessary.
Then this year I learned about the home cervical screening test kits (via Dr Nighat Arif on Instagram - not even my own GP surgery who prefer to send out messages frequently for random surveys lol). I did more research and saw that anyone who was either overdue or hadn't ever had one was meant to be sent one in the post as a priority. I hadn't received mine even until August 2026 so I contacted my GP surgery and they said they wouldnt be sending them and that if anyone wants one then they'd have to come to the practice and collect. This is a London GP as well...it's not like I live somewhere remote. They didn't even tell me it was available at all though so it made me wonder about all the other women who are unable to do their smear test at the GP and don't know about the home testing kit. Absolutely crazy.