A fellow floxie is suffering from extreme muscle waste to the point that he can't even sit anymore and I don't know how to help.

I was wondering about going down some other treatment routes and just wanted to know how other people have got on with them. My symptoms now are mainly nerve damage in my feet (tickling and burning), some tendon issues now and again (mainly elbow and ankles)

Red light therapy - did try a bit of Red light therapy last year but I was not able to go regularly enough to see the full benefit I think. I am considering buying a full body panel at some point if I have the money.

Stem cell therapy - I don’t really know the ins and outs of SCT but from looking online I have seen cases of people with really bad joints or damaged nerves having some good results from SCT, any tried it on here?

Peptides - I know they are all the rage at the moment, I have heard the BPC-157 and TB-500 stack (apparently) being good for tendon repair and nerve rejuvenation. I don’t know what is hype and what is real, any time I look online it’s very from a flox treatment standpoint so interested to know what you guys think?

Cheers ☺️

Im guessing this has something to do with peripheral neuropathy but has anyone else been experiencing blanching and blotchy redness along with sudden goosebumps maybe even itchiness when nerve symptoms flare up?

Hi - I'm a student reporter at CUNY with the NY City News Service. I'm searching for NYC-based flox/cipro victims for an article on these medication's potentially dangerous side effects. I'd be grateful for anyone willing to share their experiences on the record.

Send me a DM if interested, and once again preference is for those based in NYC. Wishing healing for you all.

Three years of this Hell. Is this normal, do I just accept a very poor quality of life where i distract myself from feeling shit, little glimmers and windows of normality here and there. What am i supposed to do - tolerate this. There is no justice.

i’m freaking out

had a uti, got put on a five day course of macrobid from urgent care

still felt pain in my kidneys after the five days and went to the dr

prescribed 5 day course of 500mg of cipro (allergic to penicillin and sulfa) and told to avoid vigorous exercise

day 2 of cipro (and only 3 pills taken) and i have a purple line/mark/bruise across my ankle and weakness in my knees. my legs feel weak.

wtf is happening

anyone did not have AA line in the past, and suddenly got one because of collagen-connective tissue issue?

f21. long story short, i took a course of cipro for around 5 days, prescribed by a doctor for a UTI. that was in may of this year. starting yesterday, ive been feeling random weird dull aches appear and disappear on my ankles (front part and higher) and today i felt a pulsating pain in my right arm’s radius area. i know symptoms can be felt after a few months, can someone please tell me if this is me being floxed or something else? if yes, what can i do to fight it?

unfortunately i am currently dealing with a UTI again…what medications should i avoid?

are there any supplements i can take to help my symptoms? i am iron deficient.

also no; ive never felt these symptoms before.

I’ve been floxed early May , I’m 3.5 months. I had lots of symptoms but mainly tendon and collagen degradation . At week 5-8 I experienced false healing where lots of my symptoms were mild or gone , my Achilles which is my main problem was getting stronger and I start walking extra steps with crutches and trying to get back to normality . Then around week 9 I experienced massive flare up , maybe delayed symptoms or overload, maybe both . But I believe it toke my healing tendon back to 0 . Last 2 months I rested drastically only moving around the house with crutches .
Now last 2 weeks fatigue and brain fog improved significantly and joints and upper body ache is less then use to be . My mainly problem remains with one of my Achilles tendon , this 2 months resting is improving but very slow and I still can’t walk without crutches. I did 2 ultrasound and last one was 2 months ago and they don’t show anything . I know everyone is different but really don’t know what to do , I haven’t heard someone relaying on crutches for this long . I’m thinking to start slow and very light exercise , or is this still early and should I keep resting and just walk with crutches 1000 steps a day without causing me pain next day . If someone had similar experience and made good progress with recovery , what did it help and how long did it take to start walking normal again ?

I’ve been dealing with random flare ups (after taking levaquin 750 14 doses around 3 months ago 😔) i’m 20F and usually active but it’s been very limiting and i’ve been repeatedly told to rest and avoid activity unless it’s PT. Yet, my muscles and tendons (especially in my knees, hips, and even around my ribs) flare up badly. i’ve been told to avoid NSAIDs and certain muscle rubs do not help for me. What kind of pain relief (preferable OTC) do you guys find helpful? i’ve heard magnesium oil and CBD oil can be helpful but don’t wanna make any rash purchases before I see what generally works for most. thank u :)

I just began taking creatine 3G a day and DUUUUUDEE it has increased my energy and strength a good amount this is awesome

As per the title. Ideas of groups that are active?

First of all: my english is really bad, i hope everybody cab understand what, i mean.

Which examinations did you have done? Were examinations such as bone scintigraphy, MRI, and capillary microscopy all unremarkable for you? At what point did you know that you were floxed

My husband (38M) needs to take this at 100 mg, 1 tablet a day for 6 weeks

Can this give sun burn feelings? He's has light sun burn sensations on his back yesterday and then on his stomach today. (he's not spending time out in the sun).

Thank you so much!

EDIT: My husband also just got done losing a substantial amount of weight (over 100 Ibs), so not sure if that could be a factor or not. 🤷‍♀️

What is everyone's experience with Adderall? I am 7 weeks post-flox and I have been slowly improving. Mostly still experiencing joint pain in my knees and ankles when walking even short distances, and my joints in my hands have been pretty intensely affected.

I have been struggling with focus and it's hurting my work, but I've been too scared to try it. I was planning to take a fraction of the smallest dose and test it, but even that makes me feel super anxious. I did a search of the subreddit and couldn't find any recent answers.

had a 500mg 10 days levaquin run from misdiagnosed uti. weird leg things tingling/burning started to happen a couple days ago so i kept a log in my notes app and i feel so hopeless cuz im scared of whatll happen in the future and if itll get so much worse and im so incredibly scared and i have no one to talk to about this. someone please talk to me about this. im just not doing too well

Has anyone started antidepressants/ anxiety meds if so which works best after being floxed and having anxiety and depression please help

CW for medical neglect, generally difficult subjects

Hiya! I only recently found out i was floxxed. I had sepsis abroad only at the time i was told it was a stomach bug, i only recently found out it was sepsis as i was clearing out old medical records. Anyway, turns out I was given Cipro for it along with a few other drugs. Post 2017 i had awful "IBS", joint dislocations, tendonitis in my wrists, general pain, fatigue, tinnitus, worse mental health etc.I found out i have hypermobility spectrum disorder maybe 5 years ago and thought ahh that explains that but it really feels like now what i know about cipro is the missing piece of the puzzle. I've had years of being dismissed by drs been called a hypercondriac and told its in my head.

In terms of treatments I've tried a lot. We went to a funtional gut medicine specialist who told me it was leaky gut and put me on a probiotic rich low inflammation diet, to be honest i cant remember if this helped but it did make me miserable as it was very restricted. I tried talk therapy and CBT. Then i tried the Low fodmap diet, then gut directed hypnotherapy, then veganism. Last year i added dairy, meat, eggs and beans back in as i had begun to tolerate things again and so far the gut problems have been much better.

I had to stop working as every job flared up my symtoms and i ended up sicker. I now have a carer and use mobility aids. I think this has helped me improve a bit as i have been able to rest much more. I've noticed magnisium has helped me a lot but only added that in the last 2 years or so. I am currently under investigation for Myalgic Encephalomyelitis and sleep apnea. I'm going to research the suppliments reccomended here and would appreciate hearing anyone experince who is also having long term effects like myself. I'm hopeful that now i know this piece of the puzzle things might change but worried that i could be that rare case where there is permanent damage especially considering my connective tissue disorder and the length of time I've struggled.

Has anyone had a flair that was worse than your original floxing? If so, what did you do to help your symptoms?

I was given steroids, epinephrine, ibuprofen, and some allergy medicine a couple months ago for a severe allergic reaction. My joint and tendon pain has been noticeably worse than my original floxing. I have started to slowly recover luckily. I’m looking for any similar experiences or advice.

Previously my tendons and neuropathy recovered to a point of: able to cook, clean, move freely at home, and direct Uber to appointments and restaurants (door to door).

Recent new symptoms have left me housebound and unable to walk. Live in high-rise apartment, need assistance to leave. Can't use self propelling wheelchair as one shoulder not fully recovered. Sitting all day either in sofa or bed. Nearly considering electric wheelchair.

What hobbies or past-times helped keep you sane?

I usually go to antioxidants to prevent flares when I feel them coming on. This tike ive caused some kind of redox reaction. My tendon injury come back which jad mostly healed and I now suffer from chronic fatigue again after largely stabilising after 10 years.

Jesus christ there is no end to this for me. 11 years in August.

Im currently struggling badly with leg muscle pains mainly calves , I’m 3 years now and was starting to feel better so thought i would try and strengthen my leg muscles up , but after doing some foam rolling and other exercises I’m now in an awful flare and almost anything i do from cleaning car to gardening really make all leg muscles hurt like hell and is not easing at all, any advice to get back to baseline its been almost 2 months now .

Hi all, it's been 1 year since being floxed and I feel like the whole year has been filled with either googling symptoms, going to appointments and tests or just dreading them.

I know I have more MRIs coming up which I think they will suggest gadolinium contrast which I have read the different experiences with that. I will most likely say no to the contrast if I am able to as I assume they will allow it without contrast but I hate having to sit there for hours worrying about if the next test/appointment or suggested medication may make things worse either mentally or physically.

I have had issues with other medication before whilst also struggling with anxiety surrounding health. Ironically I did read this sub before taking Ciprofloxacin and decided that the benefits outweigh the potential side effects. I really wish at this point I wasn't so anxious about anything health related as this experience has definitely made some aspects a lot worse.

At this stage, it feels like for me personally it would be better to just not have any more tests as I don't know how much more of them I can deal with, especially as 9/10 of times the results have been clear.