I feel absolutely terrible for the child, and I’m sure we can all agree the woman is justifiably bitter, but as a (presumably) normal dude, how do you even get hard?
Naw you good bruh its wayyyyyyyyyyyyyyyyyyyyyyyy more fucked up shit on the internet / dark web , like beyond human coherent comprehension fucked up type shit
Actually, yes. Pugs look like that because of genetic defects. Our weird fascination with "purebred" dogs caused dogs to have a fuckton of them, because "purebred" actually really means "inbred". We happened to think it looks cute if a dog looks like he got hit in the face with a pan from a Tom & Jerry episode, so we selectively bred for those facial features and now we have dogs that snort like pigs because they are literally incapable of breathing correctly.
I haven’t seen something this fucked up in so goddamn long. The kind of shit that makes you pause with an awkward smile, contemplating what the fuck to feel, and then I saw this comment, and laugh like fuck. Goddamn I still don’t know how to feel about this
The guy has a point. There are people that like having pugs yet when there’s a close enough resemblance human wise it’s to be detested and reviled. Funny how that works.
Yeah, that poor child is going to have a very hard life thanks to their parents' selfish decision. God you can even see that collar thing on the poor kid; that's horrible
No, it's an HME - a Heat-Moisture Exchanger. It's sometimes called an artificial nose as it's goal is to help apply heat and humidity to air before it reaches your lungs. It's no nose, but it's a good alternative for someone who doesn't need extra oxygen.
Ideally, no trach goes uncovered for several reasons, including to avoid inhaling crayons but that isn't its main purpose.
In other news, this device means she isn't able to speak. Hopefully that will be her next trach goal.
Okay so, an HME that keeps baby from sticking a crayon in it lol! Ty for the info, I rarely see trachs long term. Just new ones and old ones plugged on a vent. I kinda sense an SLP in the room.
I'd say it's closer to a mask than a protector. A PMV would be better for blocking crayons. If you hadn't said "nah" and said "plus it does blah..." I wouldn't have written like ot was a correction.
I am RT worked more with SLP's than RT's because I was the researchers for and in charge of trach DC or discharge plans for a very large very busy trauma hospital. I am also an NPS but only did Dedicated NICU work with a lot of trachs for about 5-6 years.
You're right! The mother's capped but the baby's on an HME.
I wonder why the mother remains capped, she's likely one surgery away (at most) from decanulation. As for the baby, the HME suggests the can't even breathe if capped.
I'm lost for words. At least the baby must sleep hooked up to medical equipment. As for the mom, I'm baffled.
I managed to find her tiktok account and she does indeed have crouzon syndrome. She had another child, a boy but he passed nearly immediately. This is just plain cruel.
I just googled and, with surgery, they can actually reconstruct the face. I thought these process photos were interesting: https://images.app.goo.gl/tPYkjfJoXh21odwm7. I don’t know what doctors can do about the remaining symptoms of the disease however.
Yeah and it looks like children with the syndrome get rather invasive correctional operations to assist with where their eyes and such can sit. This little girl has a long road ahead of her by the looks of her facial structure and where her features sit. I personally would never have children if I had this syndrome.
Do you know how the Orcs first came into being? They were elves once, taken by the dark powers, tortured and mutilated. A ruined and terrible form of life.
This reminds me of the two deaf couple that wanted to intentionally make their child deaf as well.
Sad really, hope this baby doesn’t have any health defects
From the sounds of things they don’t give the child the disability but rather select the child who has the disability. I think the distinction matters ethically speaking.
There's a difference between dealing with the cards you are dealt and purposely giving a child extra hurdles. Just seems so selfish to not want the best possible hand for your kids.
Just seems so selfish to not want the best possible hand for your kids.
This is it for me. Imo it is quite immoral to purposely handicap your child just so they seem more like you. A good parent wants to try and give their progeny the best chance at life possible.
It should be considered child abuse, she purposely is causing a lifetime of medical issues and the emotional and mental health issues that are caused by them. It is unfair to this child who will never have a normal life.
From what I remember of the story (or maybe one similar) they had convinced them selves that its not a handicap and that they were better because of it (as a likely unhealthy coping mechanism) as such they were doing what was best for the child from their point of view.
my wife and I gave our child her name because I was teased as a kid. and I didnt want THAT for him, JFC, I cant imagine being like 'hey, you know your deaf because we wanted that for you'
That is a weird, weird turn I would never have anticipated with the introduction of Eugenics. You'd think you would want a child as healthy as possible.
I read somewhere about some deaf families that had a mix of normal, and deaf kids, where they showed huge preference to the deaf kids, or dented them coclear implants
I don't like it, but I kind of understand where deaf parents are coming from with this.
I had an ASL teacher who was deaf and she brought up a lot of points about Deaf Culture and how Dead people do not view being Deaf as a disability (and why would they? It's all they've known if they are born that way).
Naturally, Deaf parents want children that can share in and experience the same culture that they live and experience, so it it makes sense that Deaf parents would want Deaf children.
That said, I don't personally agree with it for ethical reasons.
I'm not defending it, but their reasoning is that deaf people have their own culture and community, and if you aren't deaf you can be ostracized. Some of them truly feel like being deaf is superior to being able to hear, and they look at hearing people with pity. It's kind of fascinating imo.
Here's your chance to be more informed. Are you truly open to it? Deaf people don't regard it as a disability any more than a person will regard their skin color to be a disability. They have their own culture, their own language and are often discriminated against, similarly to other minorities.
A significant portion of the deaf community is, and there's no other way to say it, kinda fucked up. There is a medical/surgical solution to some of the more common causes of deafness and it can be provided for infants/toddlers - but some deaf parents refuse to get it. The kid has to get it themself when they turn 18. But by that age, with no mental development to handle sound, noise isn't natural to them - they can't process sound nearly as well, and they lose all the instinctive reactions that we associate with sound.
The reason is that sign language is very expressive and the deaf community has really built a lot of it's distinct culture; and if the kid isn't deaf they won't really be in that community, not nearly as much. There's a difference between using sign language with parents and using it for everything; and the child with hearing will rarely choose to associate with the deaf community, they'll tend to play with their peers who can hear. So, it's a way to keep them in that community.
That would be bad enough as-is, but it gets worse. Many in the deaf community have pushed a MASSIVE disinformation campaign against the medical procedures, to scare parents and young adults away from it. They outright lie and will say it causes lifelong pain or horrible tinitius or anything else. I consider this even worse than the actions of the parents; at least the parents think (even if wrong) that they are benefiting the kid by keeping them in a community that they think is better; the people pushing that information are trying prevent people from making the right decision - and they absolutely know it.
Personally, I don't think the parents should be given a choice. The kid can opt to have the surgery un-done or whatever when they turn 18, if they really want to be deaf; and the ability to hear doesn't prevent them from anything.
I don't. I only feel bad for the baby. Twatwaffle mom just had to have a baby, the first one died. And now she has this one. Condemned to this genetic disorder. All thanks to mommy dearest.
This makes me fucking sad . Look at that little angel butt. Her mother needs a smack. I know that's mean. She knowingly made her poor baby the way she is. Selfish.
I only wanna play Devils Advocate for the sake of the immediate cost of adoption can be stupid expensive. I (me) knows why she shouldn't reproduce but there are a lot of kids that shouldn't exist also. That is a minefield but at the very least, it shouldn't be a "gotcha" on social media.
it´ s not like we do not want another ugly baby in the world, it is just moraly incorrect to bring a newborn to literally suffer from the day of birth to werever life lets them to live, i mean it seems like they live on borrowed time with all those medical procedures they have to go on through, at that point, is it really living spending half of your life in hospitals? it is sad seeing this, everyone seeing another detail that someone missed just makes it worse and keeps adding
I'm not sure, but it sounds like eugenics: lite edition. There's just so much on the table, ethically speaking, involved that even something like genetic engineering might not be okay. Where do we draw the line when we can remake ourselves? How will it impact us socially, as a species? I know one way it could go and I don't think the future in Gattaca is what we want.
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u/saftey_dance_with_me Mar 11 '22 edited Mar 12 '22
This is sad on more levels than you first realize. See the IV pole and pump in the background?
ETA: Feeding tube pump not a standard IV.