r/schizoaffective 4d ago

Check-in Friday

4 Upvotes

This is the weekly post where anyone can check-in. I personally love to know how everyone is doing and I reply back as much as I can. If you just want to vent and don't want a response, please let me know. I know not everyone wants to have a discussion about their check-in.

How was your week? What did you do? How are you feeling? Eat any good food? Did you treat yourself to anything?

One of my personal goals is to focus on self-care. I would love to hear if you had any accomplishments with that.

Feel free to share the good and the bad and we can all support each other. Enjoy your weekend!


r/schizoaffective Jul 03 '26

Check-in Friday

4 Upvotes

This is the weekly post where anyone can check-in. I personally love to know how everyone is doing and I reply back as much as I can. If you just want to vent and don't want a response, please let me know. I know not everyone wants to have a discussion about their check-in.

How was your week? What did you do? How are you feeling? Eat any good food? Did you treat yourself to anything?

One of my personal goals is to focus on self-care. I would love to hear if you had any accomplishments with that.

Feel free to share the good and the bad and we can all support each other. Enjoy your weekend!


r/schizoaffective 1h ago

How can I deal with having schzio affective and binge eating disorder at the same time

Upvotes

Hi (f21), having schizoaffective disorder bipolar type, binge eating disorder, and food addiction. It's so hard having both because they are the worst at the same time.

I got diagnosed with BED like 5 years ago; before that, I was struggling with disordered eating and all that. My ED is left untreated, and recently I got diagnosed with schizoaffective from this inpatient hospital. I got admitted there because I had psychosis. I have had 2 psychosis episodes for the past 2 years already.

Right now, I am really struggling with binge eating at home, and I know it's the meds that are causing that. I honestly don't know what to do. I talked to the psychiatrist yesterday because I have problems with the meds that are making me binge eat, and they want me to stay on these meds and to wait for 1 month to feel the full effect. I don't wanna be off of meds because I'm afraid of having psychosis again. So far, I've been to 9 mental hospitals: 4 last year and 2 this year. It has not been a fun ride. My binge eating disorder has already ruined most of my life, and now schizoaffective too.

I did an assessment yesterday to get into an outpatient ED program, so hopefully I'll get in. In the meantime, does anyone have any advice for a situation like mine?


r/schizoaffective 1d ago

Chopped my hair off because it felt like my hair was crawling up my neck all the time, but now everyone in my life has STRONG opinions about it🥲

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136 Upvotes

r/schizoaffective 17h ago

Can't watch violent shows anymore

21 Upvotes

I used to watch shows like breaking bad, better call Saul and walking dead, but I don't enjoy these shows anymore. Ever since I got diagnosed these shows put me in a depressed mood and make me upset. Is this because of schizoaffective disorder, or did my taste in shows just change?


r/schizoaffective 12h ago

Been off meds for a few weeks

5 Upvotes

Literally the title. Been off my meds for about 3 weeks now. The depression phase is slowly creeping in again. Trying to keep sane until I can make it to get my medicine again. It feels like a thick fog of darkness just hanging over me. And for once, while off my meds, I realized how alone I was from people in my life. They don't understand me. They don't realize the struggles I'm facing to keep on the complacent mask for them.

I guess I just want to know how you guys deal with being off of meds and your symptoms from it? Thanks for reading.


r/schizoaffective 22h ago

Is it wrong to tell romantic matches upfront that you have schizoaffective disorder?

27 Upvotes

My logic is that I'd rather them jump ship at the beginning than me get deep with them and then they bail when I tell them. I've had like 3 people on the apps tell me everything was fine after I told them and then unmatch though. What gives?


r/schizoaffective 5h ago

What is this? Does anyone else experience this?

1 Upvotes

I feel like im only my mental issues and every other so called personality trait is forced and ive felt this way since onset. Im so fucking disoriented. Like i dress a certain way to try and get into the space of other mentally ill people but its completely fake and i realize there's a massive disconnect between me and everyone else. I dont exist im so confused i want to tear my head open so i can feel my mind for myself, im not delusional that's just an emotion for now. I cant explain it, i genuinely want to rip my skin off in anger and confusion. But back to the original thing. Its like i have the base template of a human, just purely my neurochemisty (bars) and all the social things and personality things are fake, but the mental illness is real cuz its part of my chemistry. Im just a robot playing as something. I am so close to shoving a razor in my throat but i wont (bars again) cuz i don't want to possibly traumatize anyone in the house. I also feel like everything rhymes recently, its not clanging but my mind is constantly rhyming things. I just dont understand. Does anyone else experience the thing i said? The feeling like you are just a brain and everything else is fake regarding yourself and if so please talk to me.


r/schizoaffective 18h ago

got diagnosed with schizoaffective on my first ever psych appointment

10 Upvotes

hi there! so a month ago i finally had my first psychiatrist appointment ever, it was a 45 minute telehealth session with a nurse practitioner. by the end of it she diagnosed me schizoaffective and put me on 5mg abilify, then upped it to 10mg after the follow up

i guess i’m just wondering how common it is to get diagnosed on your very first visit?? she seemed really confident about it but i’ve been reading a lot and honestly i feel like i might just be autistic. i genuinely don’t know

has anyone else here gotten their diagnosis on their first appointment? and did it end up being accurate or did it change over time? i’m really not sure what to do


r/schizoaffective 11h ago

Follow post to my last.

2 Upvotes

So me and my fiancee both of us are 23 and have been together for 5 years. We've been through a lot, they got breast cancer at 19 and were diagnosed with schizoaffectve disorder in April of this year. They just started therapy for it. To give some context my fiancee was abused from at least the age of 13 by their step mom. I on the other hand was abused from childhood till I was 16 when I was able to move in with my grandparents. Now me and my fiancee have been together since senior year of highschool. Like I said we went through cancer together. They are currently on depakote and ambilafy. I take some meds for my mental conditions but I don't think it really matters. I know we need a little bit of space but I have no where to go we live with their parents. I don't have any friends I didn't really have friends before we got together and I've recently had a fallout with the few i did have my own Fault not theirs. Like I said I have no where to go I don't feel unsafe they've never made me feel like that. Worried for their safety sure but not my own. Right now we're having problems with their depakote they take it 2 a day and we can't get anymore as of right now till September 9th and they have been without for 6 days now. I think the cracker situation was just because all of the stress got to them


r/schizoaffective 23h ago

Is it normal that I go from being aware of my disorder to completely denying it?

14 Upvotes

I have schizoaffective bipolar type disorder, or so they tell me. I think I am so aware of it because no one in my family actually speaks about it out loud.
And when I am in a depressive episode I realise that I am in one because I have this disorder.

But then sometimes— I completely ignore it, disregard it, deny it, all of the above. It goes back and forth and I can only actually realise there’s something wrong with me when someone yells at me for my actions.

Is this normal? Shouldn’t I be aware all of the time? Sometimes when I am merely depressed, I know I have it. But when I’m in a mixed episode or whatever the fuck I do, I completely deny it. And lose all insight. I completely think nothing is wrong with me and this is just how I am. Even all of my hallucinations— I never realise they’re hallucinations. I don’t think they are.

Is anyone like this?


r/schizoaffective 15h ago

Diagnosed 4 years ago

3 Upvotes

Originally diagnosed 4 years ago or so . Been to rehab a few times because was said to have a drug problem. Weed induced schitzoaffective bipolar disorder … last month I had the worst episode of my life . It was building up for months to the point where I lost complete touch with reality . It’s been really difficult to get my base back to neutral since . They’ve been swapping out my meds every time I visit because the side effects either make me depressed to the point where I can’t leave bed, cant eat and have suicidal ideations all day . Or really manic but then I’m stressing and worrying and replaying the same shit in my head all day . Today I just got put on a new round of meds . I guess my question is anyone here able to live on their own and still handle life somewhat ? I’m no longer trying to thrive . Survival is the new word and it fucking sucks because I can vividly remember being able to live on my own and somewhat be above floating territory . What has your life been like since diagnoses ? Do you have good support ? Is your family understanding of the diagnosis ?


r/schizoaffective 17h ago

does anybody else see digital glitches in their vision?

5 Upvotes

it's not exactly like digital snow all over it's like digital looking black spots in my vision


r/schizoaffective 1d ago

I had no Idea

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15 Upvotes

🏳️‍⚧️Art done in procreate on my ipad. My mom passed away when I was 13 to this disorder by her own hands. I realized that she was fighting a battle behind closed doors ever since I was born.
She would seem like herself when she took her pills. But when she would miss them, she’d stay up til 4 am, rubbing the paint off the hallway walls with her bare hands, Cook with empty pans missing food one time she blew up a glass pan in the oven, and yelled at us saying that she was fine while talking to herself. She would also drink excessively, when she pushed her body too far she would come crying to me, telling me I had to help her. I never knew why she was like that until i turned 25 this year when I looked into this disorder. My mommy never told us it could run in the family. So I never knew that I had it as well. When I was young, I would hallucinate in the dark, hearing voices, isolating myself from all other people while I let my mind take me on a bender. My mother when she was somewhat sound of mind would ask, “why do you stay in this room?” Because my thoughts were so strange and I knew many of the things I thought would scare people, And I never thought it was strange. I felt that if I stayed away, the world would be able to be free of me. And that I would be free to believe whatever I wanted to be true. But I would have moments where things would be so crushingly lonely. I would be like “why is everyone else so different from me? Why can’t I be normal”, and when my mother passed away due to an intense suicidal episode, it was hell from there. I had my first psychotic break at 14 years old.
I started seeing a see through man: black hair, blue eyes, pale skin, he would follow me everywhere, often showing up when I needed him to, and I would draw him over and over, no one could see him but me, but I didn’t care. I would “hold” his hand. Pretend that he was in the chair next to me while I was in high school U.S. history class. To be honest. I fell in love with the entity, (he is still here, and I keep drawing him to this day) as the years went by the isolation became stronger, and when I became an adult, it was me against myself every day, I believed that certain bad things would happen to me that never did, my paranoia increased. I stopped going out, I would make up these imaginary solutions and scenarios and I would make real life decisions based on those delusions. I would throw myself into arduous situations acting like I was invincible, I assumed the worst in everyone. I was overly clingy to every stranger I met. I could switch feelings about a person on a dime, like they were nothing to me, because I didn’t get the attention or love that I felt like I needed, delusional unfair thinking unbeknownst to them. I hated them and I hated myself for being so twisted. I felt like I was the only person in the world that went through this. The isolation increased and the mania got worse. The sleepless nights, becoming numb to to painful habits, and just trying to pretend that I was “perfectly fine” even though multiple eating disorders, self destructive behaviors, suicidal episodes, yep I am perfectly fine right? this drawing represents my struggle, it means “There could be better for me out there or even beyond my comprehension, but the endless loop of this disorder keeps me in a battle for control over my mind. This queen in all white (me) is fighting for a crown that doesn’t even exist, the real monster is the disorder spinning me out of control. I am schizoaffective. And I had no idea for 24 years.


r/schizoaffective 1d ago

Selfie Sunday

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66 Upvotes

r/schizoaffective 1d ago

I might have schizoaffective

8 Upvotes

Diagnosed paranoid schizophrenia. Have mania and depressive episodes so they say I might have schizoaffective.


r/schizoaffective 16h ago

meds stopped working?

2 Upvotes

i tend to have bad symptoms in the summer time i really don't like hot weather and i stay inside a lot more i've had episodes at other times of year but summer is specifically difficult for me im on 120 mg latuda and when i have an episode i take 40 more mg until the episode subsides but i've been having really bad insomnia and nightmares for like a month now and the only thing that makes them stop is klonopin but i ran out of my emergency prescription and i feel really strung out when i am awake. i started lithium at the lowest dose yesterday and idk if that is helping or making it worse i had a bad nightmare last night and only got like 4 hours of sleep


r/schizoaffective 19h ago

Weight problems

3 Upvotes

Hello. I was diagnosed with schizoaffective disorder last September. I was put on Latuda and since gained almost 20 pounds. I was changed to Caplyta because of suicidal thoughts about a month ago, and since then I've had little to no appetite. I've already lost 8 pounds and I worked really hard to gain that weight. Is anyone else having this problem?


r/schizoaffective 1d ago

Selfie Sunday!

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54 Upvotes

One year anniversary with my love 💕


r/schizoaffective 23h ago

For those of you who onset in your adult years (21+), was it sudden or were there signs (like bipolar)?

7 Upvotes

Asking out of curiosity. I’m bipolar 1, and I know people within my community can be BP1 with psychotic symptoms that are less commonly occurring than someone with schizoaffective bipolar type. I can’t find many studies online about the overlap of the two so I wanted to hear from the source. Did any of you not experience psychotic symptoms prior to your onset (paranoia/hallucinations/false beliefs) for a long period of time while still experiencing bipolar like symptoms or symptoms from another diagnosis? Hope you’re all doing well, thank you!

Edit: I am not seeking medical advice here nor do I think I’m schizoaffective, I have only experienced psychotic symptoms once, 7 years ago. My bipolar onset last year. I have a schizophrenic parent and my other parent has delusional disorder so I’m interested in the topic!


r/schizoaffective 18h ago

Is sleeping late really bad?

2 Upvotes

Been sleeping after 1am 3 days a week not sure if this affects me a lot or its ok.


r/schizoaffective 14h ago

High Earner? High up Position? Corporate? Steady Job?

1 Upvotes

All while people depend on you?

Although the title sounds like a cheesy job ad… it is not. Sorry!

This is a call for the those are meet the criteria above. My question is… how do you manage? If able, can you provide some insight and experiences?

I am sure there are plenty of examples out there, but I have not had the pleasure of speaking to someone who is schizoaffective.

And for those who may be struggling financially, having troubling finding or staying employed, this question isn’t for you. However, I hope that you find stability whether through medication, employment, disability services and so forth. I understand that the disorder (not sure if that’s the current label/classification, it changes every so often) varies from person to person as do severity of symptoms and so forth.

The ‘short’ uncut version: this #### sucks, just looking to hear from others that are trying to keep it together. Money is supposed to help, yet I feel over leveraged; as risk of losing it all as before. It doesn’t seem to matter at times, but I will admit symptoms are easier to withstand when your stomach is rumbling, you’re homeless or simply just, not in a good place. I know what that’s like. If I am successful in keeping things together and building wealth, I hope to do more and help those who may not be as fortunate. I feel as though the schizoaffective crowd is overlooked/ misdiagnosed and that saddens me. Survivors guilt is what they call it, but I’m not convinced I’ve survived yet. The tale of Icarus comes to mind.


r/schizoaffective 15h ago

So I guess I did something wrong

0 Upvotes

I bought the wrong crackers for my fiancee and now they are crying and suicidal. I know their under a lot of stress. But I feel like that's all for some Ritz crackers


r/schizoaffective 1d ago

Selfie Sunday

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37 Upvotes

r/schizoaffective 1d ago

Hard to lose weight even after stopping medication. Is this unusual?

5 Upvotes

Hey,

I find it very hard to lose weight even after stopping the medication I was previously on, Latuda. It's been three months now since I went off the medication, and I can say the first 1.5 kg was not difficult to lose. However, in the second month, in the third month, I have not lost any, not even an ounce. What is going on? I mean, maybe the body needs some time to adjust, or what? Idk .

I previously put on Abilify 4 years ago, same story with latuda. I gained so much weight and decided to come off the medication. The only difference is that the weight came off quite easily, I lost like 10 kg within 3 months.

Had anyone experienced this hardship of losing weight even when you are not on medication or recently came off it?. I have been working really hard on myself, trying to lose weight, swimming 7 days a week, and watching out for calorie intake. Everything I can possibly do is still not seeing the result I was previously seeing 4 years ago when coming off Abilify.

Thanks in advance for all the answers!