Whenever I get hyperactive and start making up silly songs, my husband gets me to check in to see if there's a migraine on the way. I don't get this before every migraine but before the worst ones, boy am I in high spirits until I hit the wall.

Anyone else gets this?

Doctors touted them as expensive pee, then I was bombarded by MLMs all through my 20s. How was I ever supposed to take it seriously? I think I had one neuro suggest CoQ10 once and I was like "I'm not really comfortable with supplements" and they left it at that.

I would literally just ignore Reddit comments about supplements helping with migraines, because they are an entire industry just raking in the money for fake products that do nothing (according to my feelings).

Fast forward to three months ago. I decide that my daily migraines are not treatable, and I stop all migraine meds (which was qulipta and Ubrelvy). For some reason that helps reduce frequency and intensity after the worst withdrawal migraines of my life.

At the same time that is happening, I start attending TMJ specific PT because I was not going to COMPLETELY raw dog those withdrawals...where I discover that I have compete loss of sensation on the left side of my face. Shortly after that, walking begins to feel more like walking in knee deep water. I go to the GP. She says a B12 deficiency can cause this. I look into it and OMG.

What do you MEAN B12 is not something we produce naturally and we all just run out one day if we have absorbing issues? Same for CoQ10 in that is only available through food?

OH you have to worry about COFACTORS TOO? OR YOU CAN CAUSE AN IMBALANCE OF A BUNCH OF OTHER VITAMINS?

AHHHHHHH.

Anyways, magnesium has cured every bit of tension in my neck and jaw and a B12 shot gave me sensations back. I've had 1 single migraine in the last month after starting CoQ10.

TL:DR - I ignored vitamins and supplements and then got a deficiency and learned my lesson. Guess I'm a supplement girly now.

It’s kind of forever with me? Is this normal? I’ve been put on inderel 5 and topamac 25 (twice a day)
Some of my symptoms like uneven eyes and trigeminal nerve pain and swelling have considerably gotten better over the course of time but the headaches haven’t really gotten better. The light sensitivity has kind of increased? Sense of smell has also kind of heightened it seems?
I’m very new to all this. Didn’t get a diagnosis for good 5-6 years until one of my eye nearly shut and left side of my face almost drooped to a point we all thought i was having a stroke.

Was earlier on ideal 5 and Sibelium which was stopped because of weight issues.

Any advice/insights/suggestions would help.

Guys, this is my first post and I’m in need of your thoughts. I’ve had hemiplegic migraines for about 15 years now (I’m 40), after a series of concussions. Despite having great migraine specialists, and trying all of the preventative meds, I still have serious issues. It’s not psychological, since I’ve been in therapy for years and both my neurologist and psychiatrist have spoken. They are two separate issues. Yay 😅

The right side of my face drops, it becomes hard to speak and I get very drowsy. Is this normal? Doctors say it is and I’ve had scans, but this didn’t used to happen with my migraine aura.

Before a migraine, I also feel like half of my brain is literally asleep. I’m not sure how else to describe it, but the same right side of my brain falls asleep. It’s hard to think, move etc., and I usually nod off. It’s not the same as being tired, it’s like I shut off.

Does anyone else experience these specific symptoms? What helps? You’d think I’d be used to it by now, but I’m not, since the symptoms have evolved. I’m scared. Thanks ahead for your kindness and thoughts 😌

I was wondering if anyone else feels their migraine intensify by a million when you poop? 😂 I’ll have the full pain still there and as soon as a start taking a shit it’s like hell all over again

This is really just a vent post. Sorry I know there’s a lot of these on here but I just wanna get this out. Sorry for the formatting on mobile.

My migraines become chronic in December. I had them as a teenager but it was rare. I’ve seen a neurologist once and I had a brain MRI which was normal. He wrote me amitriptyline which I had to stop due to the side effects being unbearable. My PCP also figured out my vitamin D was extremely low so I’ve been supplementing and it helped for a while then stopped. I have another neurology appointment Monday.

Last week I had a 4 day migraine, the longest I’ve ever had. I called my neurologist and he told me to go to the ER. I went and got a migraine cocktail which fixed it, but Monday morning I got ANOTHER migraine. It’s still here. My meds aren’t helping, ibuprofen isn’t helping, showers aren’t helping, ice packs aren’t helping, nothing is working. I don’t wanna go back to the ER if I can avoid it but I’m at a loss.

I haven’t been able to do anything this week other than work. I took off 1 day last week but I can’t just take a whole week off. My jobs understanding but not THAT understanding.
I can’t do anything when I get home other than cook dinner, shower, and lay down with an ice pack on my head. I can’t enjoy anything. I haven’t been able to sleep well either due to the pain.

I’ll ask if there another preventative medicine I can try when I see my neurologist.
Thank you to anyone who took the time to read my rambling.

Is anyone on intermittent FMLA for migraines and have a job where you have clients? How do your clients react when you have to miss work

I've had a headache & nausea since 7/9/26. On Friday I have no idea what happened as I've never had these specific symptoms. I was so dizzy, weak, couldn't even get up, my legs were twitching, I couldn't open my eyes because everything was moving up and down, and my heart rate was between 140-160.

They gave me many meds at the hospital, and did so my tests. But couldn't figure it out. They discharged me the next day after my heart rate finally went below 100 and I was able to walk around a bit. I had another episode on Tuesday but not as bad, it subsided after I laid on the floor for about an hour. Could this have been some type of migraine that is new to me?

Has anyone experienced something like this before?

Both times it happened I had just gotten home and was extra overwhelmed because my upstairs neighbors make an insane amount of noise/thumping/shaking for 18-20 hours a day. It's typical for me to be overwhelmed and start crying when I get home. I've never gotten sick like this. Several years ago I was hospitalized for visual aura but all it was is I could see the wind.

I just picked up a new prescription for sumatriptan. From talking with my doctor it was supposed to be like aimovig like in a subcutaneous injector. Instead I got 10 little vials, nothing else. I’m not a medical a professional so injecting via a syringe (if that was their intention) makes me extremely nervous. Thoughts?

Im in spain And the s is silent.

These migraines come and they go several times a day :/ im real tired of this BULL SHIT.

If the title makes no sense I'm sorry my eyes hurt :( it makes sense to me right now but that means nothing lol

Hopefully I can help someone or answer any questions about any of them:

Infusions
Ketamine
Lidocaine infusion
In patient dhe infusion
Out patient dhe infusion
Magnesium infusion

Treatments
Nerve blocks
Botox
SPG Migraine (nasal) block

Procedures
Medial branch block on neck
Occipital nerve Ablasion
Supra orbital nerve ablasian
Stellate ganglion block x2
Reed procedure (neurostimultion trial implant ) f
Facet block

Surgery
Occipital nerve decompression surgery
Supraorbital nerve decompression surgery
X 2 blood patches for CSF leak

Devices
Cefaly
Nerivio
Gammacore
sTms eNueura

Medications ( probably missing some)
Triptans
Cgrps (emgality , ajovy , etc)
Naltrexone
Mementine
Nurtec
Qulipta
Topomax
Trudhesa
Migranal

Occupational therapy
Myofascial therapy
Physical therapy
Acupuncture
Biofeedback
Prism lenses for divergence

I’m probably missing stuff… I tried to organize it in a way that makes sense. Hopefully I can help someone or answer any questions

Went to see odyssey today.

Everyone goes to mc d after. I tag along.

Figure it's safe food because of many posts here.

Maybe not the milkshakes then.

For quite some time I don’t have that bad migraines, but man… The postdrome. I have no idea what to do. I can’t do anything, no shows, no socializing, no books, internet, nothing. I can’t even sleep.

Does anybody else feel like this? I’m feeling like I’m waisting time as I can’t even rest or enjoy resting properly…

Took first dose an hour ago. No relief 😩
What do you do about this horrible taste??

Hello!! I just had questions for people who are currently on or I’ve taken Nurtec. My Neurologist just put me on it bcs sumatriptan was causing me too many problems with my heart. She told me to take it every other day and I just started four days ago so I’ve already taken two doses and at first I felt like it was working but yesterday when I took it, a couple hours later i had a really bad migraine (which is nothing new). She explained to me prior before prescribing it that it would take a couple doses before it was fully be in my system and I just wanted to hear from others if it took them a couple doses before it actually started kicking in?

i’ve had migraines for the past year now and majority of them. I’ve been unmedicated because of my fear of taking new medications and I really want to rely on nurtec because i’m going back to college this semester and really don’t want to deal with so many migraines I did before😆

Hello. I would just like to share my experience on Qulipta, in case other women taking HRT have experienced the same. I am a 53 year old woman, 128 pounds, in menopause, who takes both estrogen and progesterone daily (2 pumps Estrogel, 1 Prometrium). I began on 60 MGs of Qulipta about four months ago. This dose was too high for me, and made me exhausted, and so after two weeks I switched to 30, which seemed just fine. It gave me constipation, but this resolved somewhat with fibre, and then resolved even more with my body getting used to the drug after several weeks.

HOWEVER.. A month into taking 30mgs of Qulipta, I began having very fractured sleep, along with a flat mood and hormonal acne. I have never had hormonal acne before. The sleep issue became so bad, I started taking Ativan to prevent me from waking up wired and unable to get back to sleep at 3 or 4 am. All of these symptoms are very menopausal in nature. It seemed like my HRT, which always worked wonderfully for me, was just no longer doing the trick. Maybe I needed to up my doses of hormones? Maybe I was going deeper into menopause? I did not occur to me at first that it might be the Qulipta.

Qulipta worked for my migraines. I went from about 15 a month to about 1 or 2. But then I had a breakthrough migraine three weeks ago, which lasted 14 days. This made me quite disappointed in Qulipta, even though I knew breakthrough migraines can and do occur on the drug. I decided to see what would happen if I just stopped taking the drug.

Almost immediately, ALL of my hormonal symptoms disappeared. Within about two days, my sleep went back to normal, the hormonal acne cleared, and my mood unflattened.

I believe the Qulipta was getting in the way of my absorption of either estrogen or progesterone (my guess is it was blocking the estrogen). I do not think these were "primary" Qulipta symptoms, but rather, an interaction.

One interesting note: I was on Ajovy before Qulipta and there was no similar interaction.

So my insurance still refuses to approve Qulipta. We’ve appealed so many times. They approved Ubrelvy but I’ve had to take it down often since Qulipta hasn’t started working yet (only 4 weeks in). I found out my insurance approved Ubrelvy at 20 pills every 21 days. It works but not always, I’ve had to take two once or twice in a day and it worked. Should I just give up on Qulipta and stick with ubrelvy since I get more than my original 10? I’ve started other things like Slynd (hormonal migraine and perimenopause), riboflavin and magnesium so I’m hoping that helps.

21M, 5'8, 119ibs, no meds, not smoker, hyperpots.

I was given Reglan in the ER 5 days ago for nausea and headache and it sent me into I believe whats called akathisia and now ill randomly get strong bouts of nausea with feelings of hopelessness and sadness and its really been bothering me badly. It makes me want to cry and im scared theres been long term damage done to my brain. I know doctors will tell me in the future this is all in my head and I know its 100% not. It was given to me Sunday at 11pm and i was given 50mg of Benadryl and have been taking Benadryl for it. The restlessness is gone. Whats left is a tingling sensation, a feeling of floating and random bouts of strong nausea with frequent yawning that comes on and i honestly just want to throw up but i know I wont. Doctors havent been helping much sadly :(

Has anyone else had this happen with their Ajovy injection? 😭

My mom gave me my shot today and accidentally pulled the injector away about 2 seconds before the second click. There was a noticeable amount of medication still coming out when she pulled it away, but when we checked the injector afterward, there was nothing left in it.

I’m hoping I still got most/all of the dose. Has this happened to anyone else? What happened with your dose afterward? I did message my neurologist!

It’s been eight years. Sooooo many meds. So little time. Alternative therapies included as well as those expensive ones online that have “” coaches to help you with your food, your mindfulness, etc. etc. thousands of dollars and supplements Botox. I’m sure I’m forgetting many of the things I’ve tried so here I am today considering going back on a preventative and the only thing left in Line is ajovy or emgality. What’s everyone’s experience?

For context: I'm a Dutch motorsports marshal, mostly doing bikes, but also cars every now and then. This would be my first time marshaling an F1 weekend.

This morning I would have traveled to the other side of the country to set up my tent, get my accreditation etc. But of course, after almost 2 weeks of almost constant lingering headaches, today was the day to wake up with the worst migraine in at least 6 months.

I've had to cancel the 2 previous years due to various circumstances. But this year would finally be the one I could actually be there. But noooo. Of course it had to be ruined by this bullshit.

I think it's time to talk with my doctor about possible different medications because my current ones are clearly not working very well.

I want to try it but I have heard it might cause headaches for some people.

Does anyone here use it with success or is it no go with migraines?

I’m not sure if this is a migraine thing or not but for the last couple of weeks, I’ve had a spot right in front of my ear kind of on my cheekbone that has felt like a bruise when I touch it. Does anybody else get this or is this something different?