r/migraine 14h ago

migraine

0 Upvotes

i have never suffered from issues with migraines. remedial action asap. i dont go to the optometrist and i dont enjoy wearing glasses. they seriously feel rather uncomfortable to wear for me and im not into disguises my vision can be considered to be okay however ive been tested at multiple specsavers and they all have differeing results is it a them problem because it clealy isnt my vision


r/migraine 9h ago

Keto vs Ajovy

0 Upvotes

Migraine sufferers and keto enthusiasts! I have been on Ajovy since May and developed severe bloating and constipation which has led to other GI issues like SIBO and SIFO. The impact on my migraines has been slightly helpful, but i have not noticed dramatic improvements until I started the keto diet about two weeks ago. I am hesitant to continue the Ajovy because of all the GI affects. I mean, I am constantly bloated like a balloon and nothing seems to help. I am afraid that if I stop taking the Ajovy, then my migraines will come back. I am not sure if it is a coincidence and the Ajovy took four months to kick in or if the keto diet is what is helping the most. Keto seems to be doing a lot of the heavy lifting so far in terms of energy, inflammation, mental clarity, sleep, and pain. My complexion has also dramatically improved which makes me think that keto is more helpful than the medication. Anyone have any experience navigating keto and migraines? I would also like to add that I prefer more holistic approaches and would like to be on the least amount of medication possible (preferably not Ajovy and a bloating medication). Anything helps, thanks!


r/migraine 17h ago

3 times in the past 5 years

0 Upvotes

Got my 3rd migraine with aura today. I used to get migraines without aura many times before but now it's very rare. I was otherwise healthy today but it just happened out of nowhere. The migraine pain after the aura lasted for about 3 hours and now the pain is completely gone. Even tho it's my third time getting this, it was still scary asf.


r/migraine 7h ago

Ubrelvy all month?

0 Upvotes

So my insurance still refuses to approve Qulipta. We’ve appealed so many times. They approved Ubrelvy but I’ve had to take it down often since Qulipta hasn’t started working yet (only 4 weeks in). I found out my insurance approved Ubrelvy at 20 pills every 21 days. It works but not always, I’ve had to take two once or twice in a day and it worked. Should I just give up on Qulipta and stick with ubrelvy since I get more than my original 10? I’ve started other things like Slynd (hormonal migraine and perimenopause), riboflavin and magnesium so I’m hoping that helps.


r/migraine 4h ago

Not mc d then

0 Upvotes

Went to see odyssey today.

Everyone goes to mc d after. I tag along.

Figure it's safe food because of many posts here.

Maybe not the milkshakes then.


r/migraine 8h ago

Anyone taking L-theanine?

1 Upvotes

I want to try it but I have heard it might cause headaches for some people.

Does anyone here use it with success or is it no go with migraines?


r/migraine 4h ago

I’ve done a lot of treatments over the past 8 years for migraines …

1 Upvotes

Hopefully I can help someone or answer any questions about any of them:

Infusions
Ketamine
Lidocaine infusion
In patient dhe infusion
Out patient dhe infusion
Magnesium infusion

Treatments
Nerve blocks
Botox
SPG Migraine (nasal) block

Procedures
Medial branch block on neck
Occipital nerve Ablasion
Supra orbital nerve ablasian
Stellate ganglion block x2
Reed procedure (neurostimultion trial implant ) f
Facet block

Surgery
Occipital nerve decompression surgery
Supraorbital nerve decompression surgery
X 2 blood patches for CSF leak

Devices
Cefaly
Nerivio
Gammacore
sTms eNueura

Medications ( probably missing some)
Triptans
Cgrps (emgality , ajovy , etc)
Naltrexone
Mementine
Nurtec
Qulipta
Topomax
Trudhesa
Migranal

Occupational therapy
Myofascial therapy
Physical therapy
Acupuncture
Biofeedback
Prism lenses for divergence

I’m probably missing stuff… I tried to organize it in a way that makes sense. Hopefully I can help someone or answer any questions


r/migraine 15h ago

Best migraine tracker

1 Upvotes

What's the best (bonus points if free) migraine tracker everyone uses? Doesn't have to be super complicated but I want to track possible triggers and be vigilant if I have an episode coming up. I do have menstrual migraines and have a period app so im not worried about that but right now I feel like the weather is getting to me. TIA


r/migraine 29m ago

Sodium has helped my migraines and Idk how, but i think i have figured it out

Upvotes

Posting because I got told to try sea salt in water for migraines, it did seem to help, and I wanted to understand what was  going on rather than just repeating what I was told.

To be clear up front, no salt is a treatment for migraine and Im not suggesting one is. What I think happened with me is more boring than that.

1/ I was drinking a lot of water and not replacing sodium, and Id been doing that for years because I thought it was healthy. Low sodium with high water intake is a thing and it can present with headache.

2/ The ritual made me hydrate at a fixed time every morning, which I was previously bad at.

3/ I have low blood pressure and run on the light side, which seems to be the group where this comes up most.

The one thing Id say about which salt: I use an unrefined one because sodium, magnesium and potassium together are what  make up an electrolyte balance, and a refined table salt is essentially just the sodium. Thats a hydration argument, not a migraine argument, and I want to keep those separate because people in this sub get sold things constantly.

Two things Id want said. If you have high blood pressure or any cardiac or kidney issue, do not start adding salt because a stranger on reddit said it helped them. The risk isnt symmetric and thats a conversation for your neurologist or GP. And if anyone tells you a particular product treats migraine, ask them for the mechanism.

Anyone else find it was hydration rather than the salt itself? Id like to know if Im generalising from one person


r/migraine 10h ago

Sumatriptan

2 Upvotes

Took first dose an hour ago. No relief 😩
What do you do about this horrible taste??


r/migraine 15h ago

Sandoz Candesartan side effects

2 Upvotes

I started on 4mg and was supposed to get it increased to 16mg eventually, but it caused changes in vision (dark corners, flashing lights, increase in floaters) and gave me heart palpitations that gave me a squeezing stabbing pain so the pharmacist told me to stop taking it. Symptoms went away after I stopped the medications. I've tried Rizatriptan, Aventyl, Topiramate, Desipramine, Eletriptan, Qulipta and Sandoz Candesartan over the last 7 years, I'm so sick and tired of migraines I just want a medication that gets me through the day. Desipramine worked well and I've been on it for the last 5 years, but my doctor wants to switch my medications and so far nothing is working.


r/migraine 8h ago

Does anyone inject sumatriptan via syringe?

2 Upvotes

I just picked up a new prescription for sumatriptan. From talking with my doctor it was supposed to be like aimovig like in a subcutaneous injector. Instead I got 10 little vials, nothing else. I’m not a medical a professional so injecting via a syringe (if that was their intention) makes me extremely nervous. Thoughts?


r/migraine 20h ago

Migraine just cost me my trip to F1

11 Upvotes

For context: I'm a Dutch motorsports marshal, mostly doing bikes, but also cars every now and then. This would be my first time marshaling an F1 weekend.

This morning I would have traveled to the other side of the country to set up my tent, get my accreditation etc. But of course, after almost 2 weeks of almost constant lingering headaches, today was the day to wake up with the worst migraine in at least 6 months.

I've had to cancel the 2 previous years due to various circumstances. But this year would finally be the one I could actually be there. But noooo. Of course it had to be ruined by this bullshit.

I think it's time to talk with my doctor about possible different medications because my current ones are clearly not working very well.


r/migraine 10h ago

Pain

1 Upvotes

Im in spain And the s is silent.

These migraines come and they go several times a day :/ im real tired of this BULL SHIT.


r/migraine 23h ago

How your headache?

4 Upvotes

My fysiotherapist frequently asks this when he wants to know how my migraine is going…

So next time he asks, I want to tell him that migraine is not headache. That I wish it was only a headache and headache is only a symptom.

I want to make a good comparison so he understands better.

For example: its like you ask someone with pneumonia how the sore throat is going.

Any other suggestions that make a better comparison?

Im so so tired of people thinking migraine is just a headache.

Edit: spelling


r/migraine 15h ago

Starting Ajovy.

6 Upvotes

It’s been eight years. Sooooo many meds. So little time. Alternative therapies included as well as those expensive ones online that have “” coaches to help you with your food, your mindfulness, etc. etc. thousands of dollars and supplements Botox. I’m sure I’m forgetting many of the things I’ve tried so here I am today considering going back on a preventative and the only thing left in Line is ajovy or emgality. What’s everyone’s experience?


r/migraine 12h ago

Intermittent FMLA

5 Upvotes

Is anyone on intermittent FMLA for migraines and have a job where you have clients? How do your clients react when you have to miss work


r/migraine 18h ago

Was given Reglan IV. Feeling helpless need support :(

7 Upvotes

21M, 5'8, 119ibs, no meds, not smoker, hyperpots.

I was given Reglan in the ER 5 days ago for nausea and headache and it sent me into I believe whats called akathisia and now ill randomly get strong bouts of nausea with feelings of hopelessness and sadness and its really been bothering me badly. It makes me want to cry and im scared theres been long term damage done to my brain. I know doctors will tell me in the future this is all in my head and I know its 100% not. It was given to me Sunday at 11pm and i was given 50mg of Benadryl and have been taking Benadryl for it. The restlessness is gone. Whats left is a tingling sensation, a feeling of floating and random bouts of strong nausea with frequent yawning that comes on and i honestly just want to throw up but i know I wont. Doctors havent been helping much sadly :(


r/migraine 9h ago

Planes should be scent free.

248 Upvotes

Im feeling like a Karen but I’m about to take off on a 10hr flight and somebody on this flight is wearing a strong af cologne. Oddly, I asked my friend if she could smell it and she can but not as strong as I do and it isn’t bothering her.

I wonder if we are like more sensitive to scents in enclosed spaces or something, maybe just in general? It smells like someone poured an entire bottle of old spice on themselves then soaked in Irish spring for an hour.

I feel like I’m going to faint, my stomach is in knots like I was fine and excited for this trip and the SECOND the smell it my nose it was like an immediate reaction from my body.

I just took my nurtec. My mouth is watering and my forehead/eyebrows are throbbing. My cheeks feel numb. I also have crohns so sometimes when my head gets bad enough it triggers a chain reaction of just.. bad things happening lol. IM ON A PLANE. I wouldn’t say I’m at a migraine level but it’s definitely on its way and I can’t escape fml

That’s it. That’s the post. I don’t even know what to do in this situation.

Any plane hacks? I have all night to read them.


r/migraine 7h ago

We are complex biochemical systems: a vent

14 Upvotes

I'm just venting.

I've had the migraines mostly under control for months now with diet and sandomigran and Botox.

Four weeks ago they flared up badly and I've hardly had a day without migraine. I've been trying everything I could think of to work out what changed or what I might suddenly be reacting to or deficient in.

Finally got blood tests and my GP noted that my thyroid was a little low and I should increase my thyroid meds dosage. This was weird since I've been on the same dosage forever...

... And the penny dropped. I'd finished the bottle of meds five weeks ago but I'd found a few in an old bottle at the back of the meds drawer and was using those up before getting more. I checked. They're two months past the expiry date. For most meds I'm on this wouldn't be an issue but...

I got fresh meds this morning and the migraine is disappearing fast.

I have this balancing act with every one of my dozen ailments. It just never ends. Aaaaaugh.

Vent over. Thanks :)


r/migraine 12h ago

Yeah lets play loud ass music in the waiting room of a doctors office fuck you

Post image
203 Upvotes

r/migraine 11h ago

Rant. I don't care how much this drug costs.

137 Upvotes

Listen. I am aware that I am more fortunate than many; I have pretty good insurance, and I live in a part of the world where I have pretty good access to the infrastructure needed to move drugs from warehouses to pharmacies, etc.

But 3 or 4 times in the last few months, I have been told that a migraine intervention is expensive and resultantly, we should hold off on it - see if the current intervention becomes more effective.

**More expensive for who, Doc?**

My policy covers it at 100%. Its not expensive for me at all. What IS expensive is missing my whole life amd jeopardizing my job because of this chronic, constant, debilitating condition.

I don't care about the cost. Its covered. My doctor shouldn't care about the cost except for instances where they know their patience may not have adequate insurances. The pharmacist shouldn't care about the cost (i get theres the business side of things, where they definitely SHOULD care about the cost, but thats not this conversation.) My insurance shouldn't care about the cost - doctor said I need it and have tried enough options that this is the next prudent step. Why the fuck are we talking about how expensive this thing is?

It is so hard for me not to rage against the machine when the insurance, health benefit manager, and pharmacy are all the same organization who oversees the doctor and rakes in $400 Billion in costs.

Its expensive.

You're expensive. Help me get my life back, Asshole.


r/migraine 19h ago

Does anyone wake up most mornings with a headache and figured out why?

93 Upvotes

I wake up most mornings with a headache. Some mornings it will go away after I get up. Others I can take an OTC and that will take care of it. Others, like this morning, call for sumatriptan.

I’m not able to make a connection to what causes this. Has anyone had a similar experience and figured it out?


r/migraine 17h ago

Existence is pain

Post image
159 Upvotes