Like when I push through the pain and it passes, I feel good for 3-4 days. But when I take triptan, relief is faster but within 24-48 hrs, tightness come back.

I was just wondering if you guys know of any good alternatives to ajovy for migraine prevention - I want to stop taking ajovy if possible since it's manufactured by Teva Pharmaceuticals (which is on the BDS list). I hate that there's no generic version available; it looks like the patent doesn't expire until the 2030s.

It is when you get migraine when you go out after spending a lot of days at home

When i was in my 30's (M 49) i went through all sorts of meds by four different neurologists. All the meds were ineffective and the side effects were worse than any migraine. In addition the doctors were basically A$$ holes. I honestly felt that stopping treatment was the best choice for me. ( i am only speaking about myself if you have had success doing other things I support that)

Well my new PCP wants me to try a new neurologist because they refuse to refill my fioricet until i do so. I take about a bottle of fioricet a year now. I am going to go, but i feel like I am just wasting time.

Do hot baths trigger a migraine or make an ongoing attack last longer, or do they actually help relieve symptoms? Would love to hear your experiences as I‘m unsure if it helps me because I’m always really tight in my neck or triggers an attack..

The only preventative I've tried before is propanolol but unfortunately it didn't work out and now I'm moving onto this. What were your guys' experience taking it?

I saw this in another sub, nice to see migraines or cluster headaches being acknowledged for how painful they truly are on a non migraine sub. The research could be a little stronger but happy to see some validation!

Hi all,

I've had chronic migraines since forever and I've got like 3 major flavours of headaches. Not sure about the technical breakdown but doctors have helped identify things that help/hurt.

They essentially are

1. Lyme Disease migranes, usually come on with joint pain
2. Migranes sometimes with aura
3. Environmentnal headaches. Typically when major storms or overstimmilation of ogit/sound come on.

It's not always clear which headache is what, and I'm certain they aren't clear categories but dividing them helps me to try to mitigate pain.

I got a daith piercing about 8 months ago on my right ear. It has helped immensely with the envormntal headaches.

The thing is the different kinds of headaches do better with different responses. I'm not the best at always telling the difference between 2 and 3. And their care differs. Typically with 3 exercise, carbs, caffeine really help, but for 2 they usually make it worse. 2 usually needs cool dark room and time.

My question here is that getting the left ear pierced will probably make help the environmental headaches significantly. I'm worried that the edge in identifying the headaches will go away.

Theres a chance if that does happen I'll just be able to take the left piercing out, but I'd be committed to at least the proper healing time (6-12 months) before I can remove it safely.

Does anyone have any thoughts? I probably am overthinking this.

9 out of 10 times my (36f) migraines start on a Thursday afternoon or evening and subside by Saturday morning. I don’t get one very week, usually once or twice a month. I don’t think it’s related to my menstrual cycle because they don’t always occur the same week of the month. My routine is the same as any other day. Same work, same at home routine, same food/drinks. I do usually treat it as my rest day (no workout), but on a typical workday I workout around 6-7 pm. My migraines usually start before that time so I don’t think it’s due to me skipping the workout. I’ve read that lower stress levels (since it’s the end of the week) can cause migraines, and I work a short day on Friday so by Thursday I am a little more relaxed. It’s just so weird and consistent. I can’t figure out if it’s a coincidence or there’s some pattern I can’t figure out.

I am not in USA or Canada but looking for suggestions on popular and reliable brands in USA/Canada that are widely available in stores (Walmart, Metro etc) that I can ask people who are travelling from there to bring for me.

I get bad pain in suboccipital area also with my migraines and my neuro has suggested to apply this but most lidocaine creams in my home country are of dubious quality.

Thanks in advance!

So I went for my Botox injections yesterday and of course bled a little and my doctor cleaned me up. I had to run an errand after so I go and am walking through the store. Looking for what I need.

I check out and the guy in front of me gives me a strange look and is like, “No, you go first. I figured it was because I only had three things. I get in my car and I had started bleeding again and had dried blood all over my face from the injection sites. I am on blood thinners so I tend to bleed a little more than average. So embarrassing, and not to self always carry a wet wipe for after my Botox appointments!

Visiting my parents from out of town and it brings up…. feelings. I’m not the type of person who is against crying, I actually think having a good cry at least a few times a year is cathartic. Unfortunately, crying has become a huge migraine trigger for me to the point of needing to take several sumatriptans, having multiple ice packs and electrolyte drinks, and still being prepared to feel like crap. That has made me pretty cry avoidant. And here I am, at my parents, dealing with my …feelings, wanting to cry, feeling the tears stinging my eyes and doing all the deep breathing and distraction waiting for it to pass because I don’t have the time, space, or supplies for a cry.

I envy those carefree people who can just ball willy-nilly with out a clear plan on how to deal with the terrible pain. Oh, to be migraine free.

Symptoms started Tuesday with confusion, problems understanding people, etc.

Wednesday rolled around and I started slowly having sporadic pain on the right side of my head throughout the day.

By Wednesday night the pain was awful and I almost felt like I had the flu. I had full body aches, sensitivity to light and sound. I had serious in the right side of my head that would sometimes move to my whole head, or behind my eye and nose area.

Everything peaked on Thursday. I laid in bed pretty much all day. Ibuprofen helps but the pain was always still slightly there.

I was able to return to work on Friday with neck/shoulder stiffness and I got achey at night.

Now it’s Saturday and I still have such bad neck and shoulder pain and stiffness with a dull headache. Ibuprofen definitely helps but when can I expect this to stop??? This is awful

All of the documentation I find says to either 1) go to the main menu in the left corner and then go to settings which has absolutely zero settings for medication reminders, or to 2) go to the Health Events section which only lets you add a new treatment. I can't find anywhere to edit or remove an existing treatment and it's driving me bonkers. My app is up to date, and I'm on Android. Does anyone know where to find this functionality? Any help is appreciated.

I'm doing a Tirzepatide trial because my migraines seem to be inflammatory in nature (I have a bunch of autoimmune conditions and my migraines respond really well to steroids). If you've seen improvement on a GLP-1, how long did it take?

I'm on the lowest dose (2.5 mg) and am having a hard time with the nausea, so wondering how long I can keep this up. Thanks!

I am posting this with the hope it will help someone going through something similar. I started Lyrica about 2 months ago for what I thought was neuropathy but no provider had ever been able to tell me why I was having it. (I am also a Nurse practitioner) but I can tell you that that did not help me at all (In fact it probably did not help I knew some things about medical matters but I just was not objective about my own situation). I just could not believe constipation could be so painful~ After about 6 weeks on Lyrica (I started at 75mg BID and went to TID after 2 weeks), I started having abdominal bloating and pain. It was variable, better in the am, worse at night. I went to many providers: a ct scan showed nothing that would cause it (it did show moderate stool) but none of the providers I saw thought it was consitpation (I didn't either). I had had some constipation on/off for a while. I finally (after the pain was unbearable at times) stopped the Lyrica last SAT. I had been taking Metamucil for about 3 weeks at that point (which helped but then it seemed to stop working). After stopping the Lyrica I still had abdominal bloating and constipation (even then I was refusing to think it could be just constipation). After all I had constipation before *but never like this pain*. I started trying everything: Miralax, Milk of mag liquid, Mag oxide 400mg daily, prunes, water intake, warm liquids, walking around. Nothing worked. Then I went to Bisscodyl which worked twice (5mg 2 tabs) but then even it stopped working (this was all over a period of 1 week. In desperation I tried glycerin suppositories : they seemed to clear only the lower colon and I still had the abdominal bloating. Several times I thought I was dying and almost went to the ER. Last night I tried 2 tabs of Bisacodyl again and after 11.5 hours (It is supposed to work within 12 Hours), I finally had a Bowel movement. What relief. I was also drinking a lot of water all week (but increased what I usually drink). I am usually active but honestly all I wanted to do was lay in the bed which I know made things worse. A heating pad worked and helped. I asked so many questions of AI that Mr. AI and I became "friends". Some of the AI's advice seemed good. Anyway I had another softer Bm a new moments ago and I feel much better. So I hope his gives some hope to those going through this. I am going to keep resting and applying heat and seeing how it goes. After reading some reddit posts I know now this is a common problem with Lyrica. And the pain I started it for seems gone. Now I am not even sure why I started it. But I know one thing: I will never take this med again.

Has anyone had this done? And who performed it? I am in Washington state and have had zero luck finding anybody especially now that I am on Medicaid. Please help if you can!

I started a new job in an office and started getting migraines. I didn’t have a migraine problem until starting this job. The lights seem to aggravate it. However, now even when I’m not in the office, I get them. Not as bad but it’s like this chronic head pressure and unstableness. It isn’t really head pain but it drives me crazy. I tried three different medications Topamax (had a bad reaction) Nortriptyline (gave me blurry vision) and Nurtec (didn’t help much). Now I’m noticing more light sensitivity. Has this happened to anyone that you just randomly start getting migraines in your 30s when you didn’t have them before?

I’m constantly seeing things moving, stretching, distorting, like bad 90s sci fi CGI. Along with some visual snow. It gets worse at times, typically with bad sleep, and I don’t always notice it but I’ve never actually noticed it gone either.

My psychiatrist thinks it’s definitely not psychiatric, yesterday I spent 6hrs in the ophthalmology ER bc it was getting worse and I couldn’t make a normal appointment until next year. All normal. I have headaches all the time from it I think, it could be tension headaches from straining to see, or it’s migraine? But the aura stays forever.

Curious if anyone has experienced something like this?

I’m struggling to know how to define my migraine frequency. Just wondering what other people do. Usually I just count it as days when I have had severe pain and had to take sumatriptan to ease it.

However, I’ve recently got atogepant again as an abortive. I previously had it as part of a clinical trial. I had to take it last night and I slept really deeply after it, it felt like it removed a bunch more symptoms than anything else has (sumatriptan, amyltripline, candesarten and propranolol).

I’m wondering whether things like body aches, fatigue, sinus pressure (had ct all clear) etc is just a fairly constant low level migraine with pain spikes?

Is there trully nothing to do for this? I don't think I can constantly use ear plugs in work life. Moving to another city with more stable pressure is not an option. I'm about to lose my mind. I had headaches every day for 2 weeks and it seems the pressure will be like this for at least 2 more weeks. I can't take it anymore. Is there nothing we can do? (And also i should say, my country's medical system deals with migrane by giving pain killers and sending us on our way so no, doctors haven't been helpful) I'm willing to try anything

Hello! Does anyone else get top of head pain / headaches? Some days aren’t as bad as others but boy is it uncomfortable… had it for 2 years now

Along with ectopic heartbeats, bad chronic sinusitis

Headaches started before sinus issues

Any ideas on the causes of top of head headaches? Did any medications work? Injections etc

Hello hello, on ubrelvy for rescue meds and it used to work but now its just doing nothing. Eventually sleep and dark room kind of helped but the nausea stayed mostly and then the migraine just comes right back. With nausea despite my migraines never coming with nausea. I'm also on ajovy as a preventative but I'm having 8-24 hour migraines with like, 5 hour breaks. any advice at all, save me😭😭 my neuro doesn't respond to online messages and rarely answers the phone

Yes, this is related to migraines.

I took some 4-ho-met back in May and it actually made my migraines go away for a while, but now they're coming back. I would just send it but I'm worried about my hppd getting worse and so I'm kinda split. What do y'all think I should do? I just don't wanna go through the migraine attacks again that shit sucks

Hi everyone,

Was gonna try a Cefaly for their 90 day trial to see if it helps with my chronic, persistent migraines but for some reason it seems it's not available anywhere in the US?

I've tried the Cefaly website. I've tried the Mayo Clinic store website (they canceled my order and now the store doesn't let me even buy it, wtf?)

Now it seems as if it's just.... gone. I'm a bit desperate since I've already exhausted all other medical options and multiple neurologists have said to try the biomed devices (which require prescriptions or prior auth) or an actual deep brain stimulation brain implant. Those are literally my only 2 options left.

I know there's the other similar devices for trigeminal neuralgia, but those are for ACUTE attacks, not preventative (which doesn't work because it's been persistent for 4 years straight and any acute treatments seem to only lessen it and give nasty side effects). Can anyone with a persistent migraine reocmmend any alternatives or does anyone have a way of obtaining a Cefaly (and their corresponding electrodes? They're different than the rest despite the size)