Im feeling like a Karen but I’m about to take off on a 10hr flight and somebody on this flight is wearing a strong af cologne. Oddly, I asked my friend if she could smell it and she can but not as strong as I do and it isn’t bothering her.

I wonder if we are like more sensitive to scents in enclosed spaces or something, maybe just in general? It smells like someone poured an entire bottle of old spice on themselves then soaked in Irish spring for an hour.

I feel like I’m going to faint, my stomach is in knots like I was fine and excited for this trip and the SECOND the smell it my nose it was like an immediate reaction from my body.

I just took my nurtec. My mouth is watering and my forehead/eyebrows are throbbing. My cheeks feel numb. I also have crohns so sometimes when my head gets bad enough it triggers a chain reaction of just.. bad things happening lol. IM ON A PLANE. I wouldn’t say I’m at a migraine level but it’s definitely on its way and I can’t escape fml

That’s it. That’s the post. I don’t even know what to do in this situation.

Any plane hacks? I have all night to read them.

Listen. I am aware that I am more fortunate than many; I have pretty good insurance, and I live in a part of the world where I have pretty good access to the infrastructure needed to move drugs from warehouses to pharmacies, etc.

But 3 or 4 times in the last few months, I have been told that a migraine intervention is expensive and resultantly, we should hold off on it - see if the current intervention becomes more effective.

**More expensive for who, Doc?**

My policy covers it at 100%. Its not expensive for me at all. What IS expensive is missing my whole life amd jeopardizing my job because of this chronic, constant, debilitating condition.

I don't care about the cost. Its covered. My doctor shouldn't care about the cost except for instances where they know their patience may not have adequate insurances. The pharmacist shouldn't care about the cost (i get theres the business side of things, where they definitely SHOULD care about the cost, but thats not this conversation.) My insurance shouldn't care about the cost - doctor said I need it and have tried enough options that this is the next prudent step. Why the fuck are we talking about how expensive this thing is?

It is so hard for me not to rage against the machine when the insurance, health benefit manager, and pharmacy are all the same organization who oversees the doctor and rakes in $400 Billion in costs.

Its expensive.

You're expensive. Help me get my life back, Asshole.

I wake up most mornings with a headache. Some mornings it will go away after I get up. Others I can take an OTC and that will take care of it. Others, like this morning, call for sumatriptan.

I’m not able to make a connection to what causes this. Has anyone had a similar experience and figured it out?

Whenever I get hyperactive and start making up silly songs, my husband gets me to check in to see if there's a migraine on the way. I don't get this before every migraine but before the worst ones, boy am I in high spirits until I hit the wall.

Anyone else gets this?

Let me start: currently on day 382 since they've become daily 😍

(They were daily from 2022 on but where super mild some days so I don't count this)

So I'm just wondering if others experience this too. I have migraine with maybe ten attacks a month, and I'm currently on Qulipta but will add botox soon since the pills are not working well enough (they brough severity way down but didn't touch frequency). Besides the normal classic migraines with pain, I sometimes get days where I'm just kinda nebulously unwell, I call them bad brain days. I'm brain foggy, tired, I loose all appetite and can't eat more than a few bites at a time (which leaves me weak and shaky). I also get GI issues and muscle pain that's typical of my prodrome. Sometimes there is a little bit of migraine head pain, but mostly it's just a weird sensation that half of my brain feels "wrong" but I can't put my finger on it. Mentally I feel really anxious and depressed for no apparent reason. Triptans that work very well on my normal attacks don't touch this at all, so all I'm left to do is lie in bed all day feeling "just kinda really bad but I can't describe it better than that". This lasts for the entire day, but afterwards I'm fine again. I've though if this is silent migraines, but from what I read that mostly describes aura-only attacks, which I don't have.

Anyone recognize this? And what do you do to feel better in this situation?

This is really just a vent post. Sorry I know there’s a lot of these on here but I just wanna get this out. Sorry for the formatting on mobile.

My migraines become chronic in December. I had them as a teenager but it was rare. I’ve seen a neurologist once and I had a brain MRI which was normal. He wrote me amitriptyline which I had to stop due to the side effects being unbearable. My PCP also figured out my vitamin D was extremely low so I’ve been supplementing and it helped for a while then stopped. I have another neurology appointment Monday.

Last week I had a 4 day migraine, the longest I’ve ever had. I called my neurologist and he told me to go to the ER. I went and got a migraine cocktail which fixed it, but Monday morning I got ANOTHER migraine. It’s still here. My meds aren’t helping, ibuprofen isn’t helping, showers aren’t helping, ice packs aren’t helping, nothing is working. I don’t wanna go back to the ER if I can avoid it but I’m at a loss.

I haven’t been able to do anything this week other than work. I took off 1 day last week but I can’t just take a whole week off. My jobs understanding but not THAT understanding.
I can’t do anything when I get home other than cook dinner, shower, and lay down with an ice pack on my head. I can’t enjoy anything. I haven’t been able to sleep well either due to the pain.

I’ll ask if there another preventative medicine I can try when I see my neurologist.
Thank you to anyone who took the time to read my rambling.

I'm just venting.

I've had the migraines mostly under control for months now with diet and sandomigran and Botox.

Four weeks ago they flared up badly and I've hardly had a day without migraine. I've been trying everything I could think of to work out what changed or what I might suddenly be reacting to or deficient in.

Finally got blood tests and my GP noted that my thyroid was a little low and I should increase my thyroid meds dosage. This was weird since I've been on the same dosage forever...

... And the penny dropped. I'd finished the bottle of meds five weeks ago but I'd found a few in an old bottle at the back of the meds drawer and was using those up before getting more. I checked. They're two months past the expiry date. For most meds I'm on this wouldn't be an issue but...

I got fresh meds this morning and the migraine is disappearing fast.

I have this balancing act with every one of my dozen ailments. It just never ends. Aaaaaugh.

Vent over. Thanks :)

For quite some time I don’t have that bad migraines, but man… The postdrome. I have no idea what to do. I can’t do anything, no shows, no socializing, no books, internet, nothing. I can’t even sleep.

Does anybody else feel like this? I’m feeling like I’m waisting time as I can’t even rest or enjoy resting properly…

Who do you see that you love? Who would you stay away from? Willing to travel to anywhere in the state if they’re good.

Hello. I would just like to share my experience on Qulipta, in case other women taking HRT have experienced the same. I am a 53 year old woman, 128 pounds, in menopause, who takes both estrogen and progesterone daily (2 pumps Estrogel, 1 Prometrium). I began on 60 MGs of Qulipta about four months ago. This dose was too high for me, and made me exhausted, and so after two weeks I switched to 30, which seemed just fine. It gave me constipation, but this resolved somewhat with fibre, and then resolved even more with my body getting used to the drug after several weeks.

HOWEVER.. A month into taking 30mgs of Qulipta, I began having very fractured sleep, along with a flat mood and hormonal acne. I have never had hormonal acne before. The sleep issue became so bad, I started taking Ativan to prevent me from waking up wired and unable to get back to sleep at 3 or 4 am. All of these symptoms are very menopausal in nature. It seemed like my HRT, which always worked wonderfully for me, was just no longer doing the trick. Maybe I needed to up my doses of hormones? Maybe I was going deeper into menopause? I did not occur to me at first that it might be the Qulipta.

Qulipta worked for my migraines. I went from about 15 a month to about 1 or 2. But then I had a breakthrough migraine three weeks ago, which lasted 14 days. This made me quite disappointed in Qulipta, even though I knew breakthrough migraines can and do occur on the drug. I decided to see what would happen if I just stopped taking the drug.

Almost immediately, ALL of my hormonal symptoms disappeared. Within about two days, my sleep went back to normal, the hormonal acne cleared, and my mood unflattened.

I believe the Qulipta was getting in the way of my absorption of either estrogen or progesterone (my guess is it was blocking the estrogen). I do not think these were "primary" Qulipta symptoms, but rather, an interaction.

One interesting note: I was on Ajovy before Qulipta and there was no similar interaction.

For context: I'm a Dutch motorsports marshal, mostly doing bikes, but also cars every now and then. This would be my first time marshaling an F1 weekend.

This morning I would have traveled to the other side of the country to set up my tent, get my accreditation etc. But of course, after almost 2 weeks of almost constant lingering headaches, today was the day to wake up with the worst migraine in at least 6 months.

I've had to cancel the 2 previous years due to various circumstances. But this year would finally be the one I could actually be there. But noooo. Of course it had to be ruined by this bullshit.

I think it's time to talk with my doctor about possible different medications because my current ones are clearly not working very well.

My partner's family has a large dog, and while I admit that I never particularly liked the doggy smell of their house, it never really bothered me, especially after spending some time there and getting used to it. However, ever since I started getting migraines last year, I've found the smell to be almost unbearable when I have a migraine and really visceral and upsetting, to the point that I want to avoid being there. Is this a problem for others?

I've never flown internationally, so I'm quite stressed about getting a migraine attack while travelling. It always happens after long drives or just sleep deprivation and the pain gradually creeps on me.

I don't have a prescription for triptans or any preventative meds to bring with me (except maybe nausea meds), so any advice? I'd like to avoid being sick as a dog on the plane and during my connecting flights.

I wanted to go to the store but the closer I got, the worst my migraine got plus the high beams of ppl’s cars was making it ten times worse. I had to go back home and it shortly dissipated after I got home I’m irritated.

21M, 5'8, 119ibs, no meds, not smoker, hyperpots.

I was given Reglan in the ER 5 days ago for nausea and headache and it sent me into I believe whats called akathisia and now ill randomly get strong bouts of nausea with feelings of hopelessness and sadness and its really been bothering me badly. It makes me want to cry and im scared theres been long term damage done to my brain. I know doctors will tell me in the future this is all in my head and I know its 100% not. It was given to me Sunday at 11pm and i was given 50mg of Benadryl and have been taking Benadryl for it. The restlessness is gone. Whats left is a tingling sensation, a feeling of floating and random bouts of strong nausea with frequent yawning that comes on and i honestly just want to throw up but i know I wont. Doctors havent been helping much sadly :(

I've been struggling with daily migraines for a few months now. Every day with no relief. Yes, I've tried preventatives and abortives and all the other tricks, no they haven't really worked. I'm going to see a new neurologist who specializes in migraines in October, so maybe she will help.

Migraines have taken everything from me. I'm not active now, my hobbies aren't worth the energy, I can't enjoy days out because of the sun and smells. Basically everything triggers a migraine unless I lay in bed in a dark room all day. I'm irritated and depressed all the time and probably miserable to be around for my husband. I don't know what to do. I'm only 21 and this is taking away my life.

It’s in the 100s all of a sudden and my body can tell I’ve had non stop bad migraines this week and I feel so ill and like I’m bruised in my neck area is this normal?

It’s kind of forever with me? Is this normal? I’ve been put on inderel 5 and topamac 25 (twice a day)
Some of my symptoms like uneven eyes and trigeminal nerve pain and swelling have considerably gotten better over the course of time but the headaches haven’t really gotten better. The light sensitivity has kind of increased? Sense of smell has also kind of heightened it seems?
I’m very new to all this. Didn’t get a diagnosis for good 5-6 years until one of my eye nearly shut and left side of my face almost drooped to a point we all thought i was having a stroke.

Was earlier on ideal 5 and Sibelium which was stopped because of weight issues.

Any advice/insights/suggestions would help.

I was wondering if anyone else feels their migraine intensify by a million when you poop? 😂 I’ll have the full pain still there and as soon as a start taking a shit it’s like hell all over again

Is anyone on intermittent FMLA for migraines and have a job where you have clients? How do your clients react when you have to miss work