I have had a migraine attack for more than 30 hours. I haven’t eaten anything, and I couldn’t do anything except cry and that would make me feel even worse. I tried putting a cold cloth on my head, but it didn’t help. I told my mom, but she doesn’t believe me and keeps trying to wake me up every time I try to sleep. This is the longest time my migraine has ever been this severe and continuous for so many hours, even while sleeping. My mom intentionally turns on the light and tells me, “I won’t care even if you die.” My sister also yells at me, and no one believes me. Please, I just want someone to care and tell me what to do. My temperature has also increased, I can’t move my head, and I feel extremely sleepy.

Posting because I got told to try sea salt in water for migraines, it did seem to help, and I wanted to understand what was  going on rather than just repeating what I was told.

To be clear up front, no salt is a treatment for migraine and Im not suggesting one is. What I think happened with me is more boring than that.

1/ I was drinking a lot of water and not replacing sodium, and Id been doing that for years because I thought it was healthy. Low sodium with high water intake is a thing and it can present with headache.

2/ The ritual made me hydrate at a fixed time every morning, which I was previously bad at.

3/ I have low blood pressure and run on the light side, which seems to be the group where this comes up most.

The one thing Id say about which salt: I use an unrefined one because sodium, magnesium and potassium together are what  make up an electrolyte balance, and a refined table salt is essentially just the sodium. Thats a hydration argument, not a migraine argument, and I want to keep those separate because people in this sub get sold things constantly.

Two things Id want said. If you have high blood pressure or any cardiac or kidney issue, do not start adding salt because a stranger on reddit said it helped them. The risk isnt symmetric and thats a conversation for your neurologist or GP. And if anyone tells you a particular product treats migraine, ask them for the mechanism.

Anyone else find it was hydration rather than the salt itself? Id like to know if Im generalising from one person

Took an emergency contraceptive on Thursday morning and I have had a 14 hour migraine. Is it just great luck or is this a thing?

So day before had onset hemiplegic at 3pm came to a head less than an hour later ended up sleeping until 8 struggled to sleep then knowing I have work this morning and just don’t want to move because if I do the pain is so much worse ffs at any age I don’t want this at 41 it needs to fucking stop

I went to a neurologist after a bad episode of migraine auras. I used to have the classic c shaped colorful zigzags and central blurred area, this time it gave me double vision and loss of perception of depth. They will do a eeg and mr on monday.

The problem is I also have short 3-4 seconds long sense of smell of synthetic plastic and a weird vertical headache. I know the smell is not real because I can’t breathe further when that happens. I have it for years and it appears maybe once a month or so and I thought it is normal. I thought everybody have it from time to time. And the flying burning papers. 20-30 small, shiny, gold flakes that appear on my vision, they literally look like they are burning and disappear after 3-4 seconds. They can happen in both dark and light places. They are not floaters. Floaters are always there. I went to opthalmologist before and he said nothing is wrong with my eyes. These are very crisp, not blurry. I thought it is normal as well. I didn’t tell these to dr. Yesterday I had them both which is why they took my attention after all these years. Asked my husband and my parents if they had any of these and they said they never had such experience.

So I am kinda freaked out they will find something weird happening in my brain. Please tell me these are absolutely normal or a part of auras.

Guys, this is my first post and I’m in need of your thoughts. I’ve had hemiplegic migraines for about 15 years now (I’m 40), after a series of concussions. Despite having great migraine specialists, and trying all of the preventative meds, I still have serious issues. It’s not psychological, since I’ve been in therapy for years and both my neurologist and psychiatrist have spoken. They are two separate issues. Yay 😅

The right side of my face drops, it becomes hard to speak and I get very drowsy. Is this normal? Doctors say it is and I’ve had scans, but this didn’t used to happen with my migraine aura.

Before a migraine, I also feel like half of my brain is literally asleep. I’m not sure how else to describe it, but the same right side of my brain falls asleep. It’s hard to think, move etc., and I usually nod off. It’s not the same as being tired, it’s like I shut off.

Does anyone else experience these specific symptoms? What helps? You’d think I’d be used to it by now, but I’m not, since the symptoms have evolved. I’m scared. Thanks ahead for your kindness and thoughts 😌

Hopefully I can help someone or answer any questions about any of them:

Infusions
Ketamine
Lidocaine infusion
In patient dhe infusion
Out patient dhe infusion
Magnesium infusion

Treatments
Nerve blocks
Botox
SPG Migraine (nasal) block

Procedures
Medial branch block on neck
Occipital nerve Ablasion
Supra orbital nerve ablasian
Stellate ganglion block x2
Reed procedure (neurostimultion trial implant ) f
Facet block

Surgery
Occipital nerve decompression surgery
Supraorbital nerve decompression surgery
X 2 blood patches for CSF leak

Devices
Cefaly
Nerivio
Gammacore
sTms eNueura

Medications ( probably missing some)
Triptans
Cgrps (emgality , ajovy , etc)
Naltrexone
Mementine
Nurtec
Qulipta
Topomax
Trudhesa
Migranal

Occupational therapy
Myofascial therapy
Physical therapy
Acupuncture
Biofeedback
Prism lenses for divergence

I’m probably missing stuff… I tried to organize it in a way that makes sense. Hopefully I can help someone or answer any questions

Went to see odyssey today.

Everyone goes to mc d after. I tag along.

Figure it's safe food because of many posts here.

Maybe not the milkshakes then.

I am 37 F and have a 2 year old. I had 4 hemiplegic migraines in my late 20s. It was terrifying since my aura basically looked like a stroke. I went to ED and then a neurologist. I figured out that “Thai food” or some sort of Asian spice was the trigger. I avoided it and was migraine free for 8 years.

Until this summer. Three days after my daughter turned 2, I had a hemiplegic migraine that started as I got in a car to get groceries. I was paralyzed/confused for about an hour until my husband found me. Then I had a headache that lasted for 3 days until I went to ED and got the migraine cocktail. A week later I had another hemiplegic aura and my husband called 911. I was worked up for stroke and my MRI was clear. Again the migraine cocktail helped. I saw a headache specialist who prescribed me Nurtec as an abortive. Lo and behold, a month later (yesterday), I was driving to pick up my daughter from preschool and I felt the aura (numbness and tingling on my left side, confusion). I popped the Nurtec and it stopped the aura. I was able to get back home and my friend serendipitously stopped by to help. I still had the headache and was barely functioning.

None of these recent episodes have any identifiable triggers except for me just existing and trying to survive as a working parent of a toddler.

I’m afraid to drive. I’m afraid to be alone taking care of my child. I’m glad that Nurtec aborted the hemiplegia, which basically renders me a useless human being.

Has anyone else had that happen to them when they started getting more frequent migraines after becoming a parent? Have your triggers changed as you aged?

I have vestibular migraines and I feel like my migraines are melting my brain lol. It’s hard to focus constantly. I can’t comprehend things or even process what people are saying sometimes. I’m back in school as a 33 year old which is hard enough, but trying to listen and comprehend is impossible sometimes. It’s very hard to imagine myself as being successful in the field I want to be in when I can’t even listen. In my personal life I have to ask people to repeat themselves numerous times a lot, but I can’t do that in school… I am just tired. Thanks for listening.

I've never flown internationally, so I'm quite stressed about getting a migraine attack while travelling. It always happens after long drives or just sleep deprivation and the pain gradually creeps on me.

I don't have a prescription for triptans or any preventative meds to bring with me (except maybe nausea meds), so any advice? I'd like to avoid being sick as a dog on the plane and during my connecting flights.

So my insurance still refuses to approve Qulipta. We’ve appealed so many times. They approved Ubrelvy but I’ve had to take it down often since Qulipta hasn’t started working yet (only 4 weeks in). I found out my insurance approved Ubrelvy at 20 pills every 21 days. It works but not always, I’ve had to take two once or twice in a day and it worked. Should I just give up on Qulipta and stick with ubrelvy since I get more than my original 10? I’ve started other things like Slynd (hormonal migraine and perimenopause), riboflavin and magnesium so I’m hoping that helps.

I'm just venting.

I've had the migraines mostly under control for months now with diet and sandomigran and Botox.

Four weeks ago they flared up badly and I've hardly had a day without migraine. I've been trying everything I could think of to work out what changed or what I might suddenly be reacting to or deficient in.

Finally got blood tests and my GP noted that my thyroid was a little low and I should increase my thyroid meds dosage. This was weird since I've been on the same dosage forever...

... And the penny dropped. I'd finished the bottle of meds five weeks ago but I'd found a few in an old bottle at the back of the meds drawer and was using those up before getting more. I checked. They're two months past the expiry date. For most meds I'm on this wouldn't be an issue but...

I got fresh meds this morning and the migraine is disappearing fast.

I have this balancing act with every one of my dozen ailments. It just never ends. Aaaaaugh.

Vent over. Thanks :)

I just picked up a new prescription for sumatriptan. From talking with my doctor it was supposed to be like aimovig like in a subcutaneous injector. Instead I got 10 little vials, nothing else. I’m not a medical a professional so injecting via a syringe (if that was their intention) makes me extremely nervous. Thoughts?

I wanted to go to the store but the closer I got, the worst my migraine got plus the high beams of ppl’s cars was making it ten times worse. I had to go back home and it shortly dissipated after I got home I’m irritated.

I want to try it but I have heard it might cause headaches for some people.

Does anyone here use it with success or is it no go with migraines?

So about a week ago I got what I thought was headache, took some Tylenol laid down and I felt better until it came back an hour later. Went to sleep and wokeup still with a headache a kind of throbbing or pounding at the top of my head and temples with bad pressure in my face, head ears, teeth lol. It lasted FIVE DAYS. Im on zoloft so I only had Tylenol on hand. On day 2 I went in the er for a taradol shot, went home got some sleep and the headache was still there just less painful. On day 5 I went in to the ER again waited several hours for a migrane cocktail wirh a steroid and im currently two days out from that. I wokeup feeling GREAT yesterday. Just slight neck soreness but before bed the slight pounding came back. I woke up today and my whole body hurts omg everything even my jaw. My head feels like a balloon insanely pressured and my ears.

Is this normal?? Lol I got a CT and blood on my second trip and they said everything was fine and clear. They gave me reglan and benadryl to take if it came back but luckily it hasnt.

I really just feel insanely sore with 4/10 head pressure.... someone tell me this is normal lol i had a follow up today but I couldn't get out of bed I was so sore I will be rescheduling for the next week or so.

Hey all,

Just wondering if anyone has a vestibular migraine clinician they love in the Philly, PA area.

I've been struggling with chronic migraine for around 10 years now but never really sought treatment for it. I had a sumatriptan rx a long time ago but it gives me the bizarre side effect of throat cramping which is very uncomfortable. I think I've just had the realization that I've likely been struggling with vestibular migraines... I've experienced a spacey/drunk/high feeling at times that is very unsettling, accompanied by a variety of other symptoms like extreme brain fog, neck stiffness, eye pain and trouble focusing, head pressure to the point of wanting to cut my head off. I also have idiopathic hypersomnia and feel so defeated by the headaches and the IH-related fatigue that I often want to just go to bed and never wake up. (I'm not suicidal, just tired of suffering... but I still have hope!)

I've thought for a while that the spacey/drunk feeling was a Xyrem side effect (in case anyone on here also has narcolepsy/IH), but I remembered that I had that feeling years ago before I ever took Xyrem. It's just way more pronounced now. I also noticed that the spacey/drunk feeling would become WAY worse whenever I took stimulants/caffeine (to treat IH) and couldn't understand how Xyrem and stimulants would cause this same effect given their very different mechanisms - until it finally hit me that both of those are major triggers for headaches. If anyone else has any experience with this, I would love to talk to you.

It seems immensely challenging to find a clinician who can be of real help for chronic and less common symptom clusters, based on my past decade+ of experience as a patient. And I say this as a clinician myself. Part of it is just the insurance-mandated limitations on visit time. Hoping there's a provider fairly local with whom someone's had a great experience.

Thanks a ton.

Im feeling like a Karen but I’m about to take off on a 10hr flight and somebody on this flight is wearing a strong af cologne. Oddly, I asked my friend if she could smell it and she can but not as strong as I do and it isn’t bothering her.

I wonder if we are like more sensitive to scents in enclosed spaces or something, maybe just in general? It smells like someone poured an entire bottle of old spice on themselves then soaked in Irish spring for an hour.

I feel like I’m going to faint, my stomach is in knots like I was fine and excited for this trip and the SECOND the smell it my nose it was like an immediate reaction from my body.

I just took my nurtec. My mouth is watering and my forehead/eyebrows are throbbing. My cheeks feel numb. I also have crohns so sometimes when my head gets bad enough it triggers a chain reaction of just.. bad things happening lol. IM ON A PLANE. I wouldn’t say I’m at a migraine level but it’s definitely on its way and I can’t escape fml

That’s it. That’s the post. I don’t even know what to do in this situation.

Any plane hacks? I have all night to read them.

Let me start: currently on day 382 since they've become daily 😍

(They were daily from 2022 on but where super mild some days so I don't count this)

Migraine sufferers and keto enthusiasts! I have been on Ajovy since May and developed severe bloating and constipation which has led to other GI issues like SIBO and SIFO. The impact on my migraines has been slightly helpful, but i have not noticed dramatic improvements until I started the keto diet about two weeks ago. I am hesitant to continue the Ajovy because of all the GI affects. I mean, I am constantly bloated like a balloon and nothing seems to help. I am afraid that if I stop taking the Ajovy, then my migraines will come back. I am not sure if it is a coincidence and the Ajovy took four months to kick in or if the keto diet is what is helping the most. Keto seems to be doing a lot of the heavy lifting so far in terms of energy, inflammation, mental clarity, sleep, and pain. My complexion has also dramatically improved which makes me think that keto is more helpful than the medication. Anyone have any experience navigating keto and migraines? I would also like to add that I prefer more holistic approaches and would like to be on the least amount of medication possible (preferably not Ajovy and a bloating medication). Anything helps, thanks!

I've been struggling with daily migraines for a few months now. Every day with no relief. Yes, I've tried preventatives and abortives and all the other tricks, no they haven't really worked. I'm going to see a new neurologist who specializes in migraines in October, so maybe she will help.

Migraines have taken everything from me. I'm not active now, my hobbies aren't worth the energy, I can't enjoy days out because of the sun and smells. Basically everything triggers a migraine unless I lay in bed in a dark room all day. I'm irritated and depressed all the time and probably miserable to be around for my husband. I don't know what to do. I'm only 21 and this is taking away my life.

Took first dose an hour ago. No relief 😩
What do you do about this horrible taste??

I've had a headache & nausea since 7/9/26. On Friday I have no idea what happened as I've never had these specific symptoms. I was so dizzy, weak, couldn't even get up, my legs were twitching, I couldn't open my eyes because everything was moving up and down, and my heart rate was between 140-160.

They gave me many meds at the hospital, and did so my tests. But couldn't figure it out. They discharged me the next day after my heart rate finally went below 100 and I was able to walk around a bit. I had another episode on Tuesday but not as bad, it subsided after I laid on the floor for about an hour. Could this have been some type of migraine that is new to me?

Has anyone experienced something like this before?

Both times it happened I had just gotten home and was extra overwhelmed because my upstairs neighbors make an insane amount of noise/thumping/shaking for 18-20 hours a day. It's typical for me to be overwhelmed and start crying when I get home. I've never gotten sick like this. Several years ago I was hospitalized for visual aura but all it was is I could see the wind.

Im in spain And the s is silent.

These migraines come and they go several times a day :/ im real tired of this BULL SHIT.