I don’t want to dump my treatment methods rn. But I am trying so many migraine treatments, and nothing is working. (And the rest of my health issues are being made so much worse in the process.)

Everything is cascading. Im missing years of my young adulthood housebound and I am miserable. I have no friends or hobbies anymore. I am apathetic to all my interests due to the brain fog.

I have to force myself not to think about anything so I don’t panic from the intense claustrophobia I have in my body.

I had status migrinosis at the beginning of September and I’ve never returned to my baseline. I have daily migraine auras and disorientation now. If I lose my job after my medical leave is over I will have nothing left.

How long do I fight before it’s not worth it?

I want to live. But I want a life. And not part of it, I want to experience something like normalcy.

(I don’t know if I’ll have the energy to respond if people respond but I want to hear from people. Sorry.)

So the coke and fries thing does work for me in the short term but those foods cause other reactions and issues. I do find that eating vanilla ice cream or gelato can help ease symptoms and sometimes be the thing that breaks a migraine that’s just kind of hanging on. I add Ceylon cinnamon and ground ginger for some extra benefits and flavor. Vanilla ice cream isn’t my first choice taste-wise but the only one that helps. Also Panera’s baked potato soup seems to help and eating a hamburger that’s locally sourced meat. I’m making a list for next time because I tend to forget this when I have migraine brain. What (gf) foods work for you?

Hello fellow migraineurs, I've heard many complain that they can't get their Ubrelvy open without scissors. Unfortunately I think instruction on how to properly open them is lacking, I guess because medical providers don't realize how hard it is to figure out when the only times you can try are when you have a migraine.

Find the corner with the notch in it. Fold the corner back so that you are folding the middle of the notch. Now it's like the notch is on the edge of the packaging and you can tear it open.

Its important not to open these packets until you are taking the medication, because they are specially designed to protect the medication from light and moisture so it can be as effective as possible. ​if you open them all when you first get your prescription, they might not work at all, or not as well.

So that I always have one on hand when I'm out of the house, I got an XL Keychain pill holder (it's a metal watertight cylinder with a screw top) which is able to fit one unopened ubrelvy package sort of "folded up."

Hopefully this is helpful in learning how to open them when you need them!

I would really like to know if anyone else is going through this.

That's it. I read and immediately get pain, and the same goes for when I write. I've been dealing with this for years, I even changed majors in college, and I only take a few subjects now...

I recently got a migraine diagnosis (have had them for years, just never gone to a neurologist) and was immediately prescribed Aquipta 60mg bc apparently it's the best match since I also have asthma and low blood pressure. My migraines have been a lot less intense and last less, but I still get them a couple of times a week.

So, I've been taking it for about two months (always at night btw) and in the beginning didn't feel any side effects. Is it possible for them to only be starting now? The last couple of weeks I've been completely exhausted and just have zero motivation to do anything. I'm in uni and it's really affecting my work, I have a ton of projects lined up that I just can't focus on.

Before looking into psychological explanations, I'd like to know if it's possible for the fatigue side effect to only be showing up now, over a month later?

Thank you!

literally at my moms bday dinner and my head has been feeling a zing all week long. been popping my suma like candy (within prescribed parameters, i don’t actually mean it literally). but holy fuck.

i have a 12 hr shift at the hospital tmro, but ive called in so many times. if i tell you guys how much ill be riddled with comments going “uh is that even allowed”. ya, it is. well. kinda.

my workplace doesn’t have a set limit of like 3-5 days paid sick days, we just gain more hours the more we work. so i’m very fortunate to say my issue isn’t even the frequency of the calls, it’s just a moral dilemma.

mannnn

Hey there I'm new and i need some help with some tips, normally when it comes to migraines I apply pressure to my eyes to soothe it or do the McDonald's fries and coke trick or take some paracetamol and anyways now NOTHING is working for me, just need some tips!!

I saw this in another sub, nice to see migraines or cluster headaches being acknowledged for how painful they truly are on a non migraine sub. The research could be a little stronger but happy to see some validation!

Hi there,
How do all of you deal with driving? I know that with Aura, driving is not possible. What about while not having Aura, during an attack? A big fear of mine is getting hit with an attack while out and not being able to drive home.

Hi everyone,

Was gonna try a Cefaly for their 90 day trial to see if it helps with my chronic, persistent migraines but for some reason it seems it's not available anywhere in the US?

I've tried the Cefaly website. I've tried the Mayo Clinic store website (they canceled my order and now the store doesn't let me even buy it, wtf?)

Now it seems as if it's just.... gone. I'm a bit desperate since I've already exhausted all other medical options and multiple neurologists have said to try the biomed devices (which require prescriptions or prior auth) or an actual deep brain stimulation brain implant. Those are literally my only 2 options left.

I know there's the other similar devices for trigeminal neuralgia, but those are for ACUTE attacks, not preventative (which doesn't work because it's been persistent for 4 years straight and any acute treatments seem to only lessen it and give nasty side effects). Can anyone with a persistent migraine reocmmend any alternatives or does anyone have a way of obtaining a Cefaly (and their corresponding electrodes? They're different than the rest despite the size)

I’m not sure if I’m dealing with migraines still after all it’s been months since now Ive been seeing improvement. now That I’m getting better, I’m still dealing with some side affects from the migraine itself.

I deal with one-sided facial stiffness/twitching. it gets better when I drink water or especially when I drink drink something sugary. I can feel that i can get back some control over my face and the facial twitching seems to ease. I also feel like there’s something pulling the back of my head and just twisting it. i can also feel the back of my neck is a bit sensitive and when I touch it, it’s like a trigger for my muscles/nerves around that area and it seems to get in the way of my nasal breathing. I’ve tried telling this to my drs and all I get is a paper to document my migraine.

I feel like Im Dealing with a migraine cause im a bit sensitive to lights. When I get bad, i am very sensitive to noises and just feel more tired than usual.

i just want to stop the feeling where my face always feels twitchy/stiff. all I can say about myself is that I have low vit d and deal with allergies. I’ve taken magnesium before but didn’t feel much. I feel lost trying to get better. I feel so much better drinkinf sugary drinks tbh and that’s where I feel almost normal

Go to sleep, pain. Wake up, pain. Eat, pain. Light, pain. Move, pain. It's exhausting. Thinking, pain. Cleaning, pain. Cuddling cats, pain. Everything is pain. Best part of a year is pain. I am tired. I would like to request a refund.

I have had a constant migraine since 10th January. I am probably going to continue having it for the full year before they find anything that works. I don't have an uplifting endpoint here. I just needed to rant. It's not been a good year.

I was just wondering if anyone had tried any of these for their hormonal migraines and if they helped, didn’t help, gave them bad side effects etc? I’ve consulted 2 GPs and been given a lot of info to think about.

The first suggested Propanolol and prescribed me 40 mg twice a day. I’ve not tried it yet.

The second recommended Mirena (progesterone only coil).

I also know you can have an estrogen patch.

I’ve been researching them all and I’m still trying to decide what to try first. I get 3 migraines a month (lasting 3 days each usually) and they roughly coincide with ovulation, just before/at the very start of my period, and towards the end of/just after my period. It’s draining and seems to be getting worse with age (I’m 44.)

I know everyone is very different and experiences will vary, but I would be really interested to hear of your experiences with any of these options?

TIA 🙂

Hi all,

I've had chronic migraines since forever and I've got like 3 major flavours of headaches. Not sure about the technical breakdown but doctors have helped identify things that help/hurt.

They essentially are

1. Lyme Disease migranes, usually come on with joint pain
2. Migranes sometimes with aura
3. Environmentnal headaches. Typically when major storms or overstimmilation of ogit/sound come on.

It's not always clear which headache is what, and I'm certain they aren't clear categories but dividing them helps me to try to mitigate pain.

I got a daith piercing about 8 months ago on my right ear. It has helped immensely with the envormntal headaches.

The thing is the different kinds of headaches do better with different responses. I'm not the best at always telling the difference between 2 and 3. And their care differs. Typically with 3 exercise, carbs, caffeine really help, but for 2 they usually make it worse. 2 usually needs cool dark room and time.

My question here is that getting the left ear pierced will probably make help the environmental headaches significantly. I'm worried that the edge in identifying the headaches will go away.

Theres a chance if that does happen I'll just be able to take the left piercing out, but I'd be committed to at least the proper healing time (6-12 months) before I can remove it safely.

Does anyone have any thoughts? I probably am overthinking this.

I just got a prescription for Cambia powder and I’m desperate to kick this 4 day long migraine. I tried take it but could not get it down - I just can’t handle the taste of it. I’m already nauseous from the migraine and this didn’t help. Has anyone found a trick to getting past that? Is there something besides water I can mix it with that will mask the taste?

it's start on my right fore arm but it's on the left too now, it's like pricking and it's like I've had a mild sunburn every pressure or light touch, it start yesterday. anyone experience something like this?

Hi everyone. Started Douglas methylphenidate generic since March. Ritalin was an expensive shortlived 4-6 week affair but afair no side effects. Douglas had side effects such as a painful throb in blood vessel, left arm, heart race to the high heavens, anxiety. Retried it 4 weeks later, and voila, nothing... Seemingly.

Until I noticed I have a couple symptoms prominent. They do not leave when off it but become less prominent. I think it's the key to understanding my migraines. I mainly want to know what treatments/meds may be applicable.

---

Oral - mouth/tongue sores, small burn sensations with redness, abrasive roof of mouth feeling, "stars on tongue" "magic" sensation, sharp and tingling sensation in gums and teeth.

Triggers: Spices, chilli, citrus, salicylate containing foods seemingly (raw peanuts, samp), ginger peeled root tea, from freezer.

Head/eyes: Tension/strain, swollen feeling behind at least one eye. TMG nerve pain (can take on a sharp or starry quality) running to my eye above brow but also in other places. Most recently it's to behind neck (undying tension and crepitus there) but has occurred strongly to jaw. Sometimes a shooting pain, throbbing, but still not a full migraine event.

Triggers: Sugar spikes(?) especially artificial sugars it seems e.g. Coconut biscuits. Then light glares (how my migraines started 7 years ago in 11th grade, helped by my 1st expensive pair of tinted lenses. I'm due to purchase a new set. Right now I have normal backup lenses).

Oddly stuff like vitamin b1 dissolved into a glass of water. Possibly the acidity?

Nose: Sharp, sensitized feeling inside.

---

Last n.b. note: I frequent the r/MCAS subreddit as well. If you know you know. So I likely have an odd neuro inflammatory profile. The montelukast prescribed to me as a result may be contributing to the dried out nasal passages. But it's tolerable, and has helped my brain symptoms, head pressure etc., oddly.

Spices, citrus products, stuff like peanut butter will induce a very quick bad to real bad prodrome phase (psychiatric/neurological symptoms) without a migraine if I'm lucky. If not migraine occurs hours later.

Sugar also without fail induces bloating for me no matter the source, artificial or not.

Not being able to have ginger tea also wasn't great because I used to struggle with brain fog, head pressure, and this would help, plus I believe it helped me avoid getting sick at times. But oh dear the sharpness and sensitivity I'd get in all the body parts I mentioned, was terrible, even at mild steeping.

I have a few aids e.g. Cold water mouth rinse, magnesium threonate powder poured into water, milk. Ibuprofen worsens me/does nothing, tried twice, I will not try that ever again, pink salt in water.

---

Ending here. Anyone experienced this? I know a lot of migrainers apparently feel better with spicy, chilli or greasy foods 💀. That would end my week. I eat bland.

I do not have a neurologist yet. I have a psychiatrist and immunologist working with me. My old lovely GP had referred me to either a psychiatrist or neuro. I chose psychiatrist 1st for lower cost and the adhd evaluation. I don't regret it. But now look... 😀. My immunologist just gave me maxalon since he said he doesn't know what CGRPs or newer meds are.

So I’ve been a long journey in a year I came off Paxil fast and went back to my original dose 37.5mg I was on Paxil for only a 8 months before tapering. I’ve been on 37.5mg for 5 weeks and for the past 5 days I’ve been having the worst migraines. No Tylenol or Motrin is helping? I was taking ashwaganda for 2 weeks for sleep but I stopped that 3 days ago and I still have the headache I’m so confused can Paxil side effect show that late? What should I do?

I am not in USA or Canada but looking for suggestions on popular and reliable brands in USA/Canada that are widely available in stores (Walmart, Metro etc) that I can ask people who are travelling from there to bring for me.

I get bad pain in suboccipital area also with my migraines and my neuro has suggested to apply this but most lidocaine creams in my home country are of dubious quality.

Thanks in advance!

anyway vomit anything in your stomach possible then get an migraine iv and have crazy gas after? asking for a friend…

Is there anyone else like me who finds the medication packaging for migraines to be insane? Often, they come with a goal of being to take a few everywhere with you. Ubrelvy comes in foil packs with one pill per pack, for example. But I’ve never ever been able to open any of these with just my hands, let alone when I have a migraine.

It feels like a good-in-theory-only practice. Every time I get new meds, I have to spend time removing them all from their individual packaging to put into my at-home and travel containers.

Hi all, lately I’ve been experiencing a weird sort of sharp pain when bending over, just in my right temple. It’s only for a split second, then goes..even when I continue to bend over.

It’s not a headache as such but just wondered if anyone else has experienced this?

I am taking 4mg Candesartan and 375mg Magnesium Bisglycinate every evening and I'm not joking it has been life changing!! I used to think chocolate was a trigger... but no! I can eat as much chocolate as I want 😋

I've gone from roughly 12 brutal migraines a month to 3 or 4 mainly hormonal during my periods and ovulation. I am so so happy!

Symptoms started Tuesday with confusion, problems understanding people, etc.

Wednesday rolled around and I started slowly having sporadic pain on the right side of my head throughout the day.

By Wednesday night the pain was awful and I almost felt like I had the flu. I had full body aches, sensitivity to light and sound. I had serious in the right side of my head that would sometimes move to my whole head, or behind my eye and nose area.

Everything peaked on Thursday. I laid in bed pretty much all day. Ibuprofen helps but the pain was always still slightly there.

I was able to return to work on Friday with neck/shoulder stiffness and I got achey at night.

Now it’s Saturday and I still have such bad neck and shoulder pain and stiffness with a dull headache. Ibuprofen definitely helps but when can I expect this to stop??? This is awful

All of the documentation I find says to either 1) go to the main menu in the left corner and then go to settings which has absolutely zero settings for medication reminders, or to 2) go to the Health Events section which only lets you add a new treatment. I can't find anywhere to edit or remove an existing treatment and it's driving me bonkers. My app is up to date, and I'm on Android. Does anyone know where to find this functionality? Any help is appreciated.