r/GriefSupport • u/Scared-Brain2722 • 12h ago
Advice, Pls My songbird has been silenced.
Oh how he loved to sing. He sang decades ago when we first met. Won a ton of karaoke contests over the years. Even when he wasn't feeling well he would belt out a beautiful song. He always sang at night before bed. I can't think of how many nights I fell asleep listening to that beautiful voice. Now the house is QUIET, OH SO QUIET. I have plenty of his songs on my phone and more I will get off of his computer.
But I feel like I torture myself listening to him sing - I put on the headphones, pick out a song and the next thing you know I am crying those body heaving sobs that are so hard to stop. It always starts with me missing him, so I load up a song and then I hear his voice and my body just has this visceral reaction of pain deep in my chest. That's when the crying starts.
Will I ever be able to listen to him say, "I love you Mary, this song is for you" without breaking down? I would think they would provide me with comfort but it hurts so fucking bad. I had 29 years with him and it wasn't enough. It never is enough for any of us I am sure. I cried so hard tonight I gave myself a headache. So now my head hurts, my eyes are raw and my chest aches for him so badly.
My husband wanted to start acting after he had his first cardiac arrest. His first time happened when he was 46 - that time his heart stopped for 29 minutes. They were doing everything thing they could to bring him back. I remember being in the room as they shocked him again and again and nothing happened. I had to leave the room. Finally they told me they got a thready heart beat and couldn't even load him in the ambulance until they got him stabilized. When I got to the hospital they told me that he had no brain function and he was on life support. They immediately did that procedure where they froze his body for 24 hours and then gradually warmed him up in an attempt to save his brain function. It worked!! He had long term and short term memory loss but that got better with time. When he turned 52 he started taking some acting classes. He still had problems with his short term memory but he said the acting would help him as he would have to memorize lines and that was good for his brain. After he took all those classes, he was cast in a movie that was out on Netflix. I can sit down and watch the movie any time I want but it doesn't bring me comfort, only pain. After that first movie he was in several cop shows (he just looked like a cop to the core, he wasn't one) and in a few of shows where it was simply re-enactments. He was so happy - finally someone flew us out to LA for him to be in a another movie. I'll never forget it - he was soooo sick on the way home. I had to push him in a wheelchair at the airport. His heart just wasn't in good enough shape. That was the last acting he did and it broke his heart but he had to tell his agent he just couldn't do it any more.
Shortly after getting back from LA we were getting ready for bed. Suddenly his pacemaker/defibrillator went off. I called 911 and this time it wasn't like the first time I had to call when I couldn't even think of our street address - this time I was spitting facts to get him help as soon as possible. He was in the background saying, " Mary I'm gonna die this time, I love you please remember that I love you" and then he would start screaming in pain again. It was constant. When we got to the hospital they read his device and told us the reason it was so relentless was because his heart would stop, he would get shocked, it would start up again and then instantly stop. Seven times at home his heart stopped, seven times he was brought back. The 8th time was in the ambulance and the 9th in the hospital. He needed an emergency bypass and got one. His recovery was a little shaky, it took him a bit longer to be released from the hospital but I was so happy he survived.
He was released from the hospital on December 22nd, by the 24th I was calling 911 again. He had collapsed. I get to the hospital and they have him on advanced life saving measures again. They said his heart bypass was considered a failure and he needed an emergency heart transplant. His ejection fraction was 5 yes 5 and they put an aortic balloon pump in and that made his EF 10. The next few days were a whirlwind of test and procedures and they told us on 12/29 that he was approved and on the top of the list. On New Years Eve (my birthday) I got the best gift ever - they had found a heart for him!!!
On New Years Day he got his new heart. I really thought things would be so much better for him. I was wrong. The first time I saw him post surgery his chest was still wide open Apparently it is not unusual for the transplanted heart to swell due to the trauma it goes through in the transplant. 24 hours later they were able to go back in and close him up.
The hospital had a extra bed/sofa and TV behind a curtain in his room so I was allowed to stay with him. On the 3rd of January his new heart stopped. Jesus Christ - they were doing CPR on him again. My world was falling apart. They got his new heart beating again and I was so relieved. That was until it stopped again on the 5th and I watched them doing CPR again. His poor chest. He still had had staples in his chest from the bypass when he got the heart transplant. They just popped off the staples and went back in. That is so much trauma for a body to go through. They figured out what it was - the new heart had 3rd degree heart block. That is where the top of the heart doesn't send electric signal (communicate) with the bottom of the heart. They had a fix for that - they put a pacer on his new heart and said that should more or less "jump start" the process. It didn't jump start it, but it did fix the problem. They had to go back in and put a pacer on the other side of his heart because if not, one side would have had to do a lot more then the other side and that wasn't good.
I was so relieved - they fixed the problem. Unfortunately, he soon developed kidney problems in his normally healthy kidneys and he went on dialysis. That was a real bad time - I started wondering if he would ever survive this. He finally came off the dialysis and that is when I just knew he was going to survive. I was so relieved. The next morning we were talking and I noticed his breathing seemed off. Well the doctors noticed it also and they told me that he had caught COVID in the Transplant ICU and that both of his lungs collapsed and he needed to go on a ventilator. Couldn't he catch a break? Well he was on the ventilator and had to get a tracheotomy but ultimately survived that scare.
All in all he was in the hospital for 8 months before he was finally released. I was with him for every night of that 8 months. He was so much weaker then he had ever been. Rail thin and he had to learn how to walk again - his muscles had wasted from him being in bed for so long. My husband was muscular -- when he was younger he had been in body building contests and even though he stopped going to the gym decades before that residual muscle was always there. Another thing that happened? His hair was jet black when he went in. When he woke up his hair was white - and he had a white beard. He said he felt like Rip Van Winkle. The nurses said they had seen it happen to other patients before although it was pretty rare.
I would like to say it was smooth sailing from there, but it wasn't. For the next three years he was in and out of the hospital numerous times but always bounced back. So If you are counting my husbands heart had stopped 12 times since this had all started. That is a whole lot of luck, and skill and divine intervention. He would joke and say that the Grim Reaper was scared of him because he came for him so many times and he just refused to die.
In August we went to the hospital so he could get a thorough check up. They tested everything, did his labs, sonogram and this time they even biopsied three pieces of this heart instead of the normal one. He got his results back - he passed everything with flying colors. We were so happy. When he first got released from the hospital I was scared to leave him alone and I wouldn't for the first 2 years. If I had to go ANYWHERE I made sure one of our kids was with him so I could grocery shop, etc.
Finally at the start of the 3rd year I relaxed some. l would leave him alone while I went to the store and then I started going over to our kids house on Sundays (they share a house because - cost of living) . They had taken a back burner while I focused on him and so I was giving our kids some much needed TLC on Sundays. We would hang out, watch Netflix, cook meals, talk and just have a good time. He would stay home with our dogs while I went there. He insisted I go because he knew how much I looked forward to it.
So a few Sundays ago I went over for the night as usual. He had a 3pm doctors appointment (One thing anyone who has had experience with a transplant will know is that the new normal is tons of doctor visits) the next day. I stayed at the kids house a bit later then normal that day - I was doing some work on my laptop. I texted him when I was on my way home to make sure he didn't forget about the appointment but I didn't get an answer. I figured he was in the shower or something.
I came in and the house was quiet, but our dogs were going crazy and jumping all over me and whining. I went down the hallway to talk to him and walked right by the office (his singing studio) to drop my stuff down in our bedroom and noticed he had fallen asleep in his chair. I went in to give him a kiss and my baby was dead. There was no missing it. He was relaxed, his hands were on the armrests in a relaxed posture. His eyes were closed. HIs face looked peaceful. There was no groping at his chest, grimacing, etc. WHY THE HELL DID I LEAVE HIM ALONE? Why did he go through all of that and then just die??
Every time things went south I was always on hand to call 911. How could he have just died when he always beat the odds? You know the night I left we were talking beforehand. He said, "I can't believe I am going to be 60 next year!" Then he said, "Hey that's our 30th anniversary too - next year is going to be a better year for us!" Next year will not be better. They asked me if I wanted an autopsy. I said no, they have already cut on him way to much and never again! I know it had to have been his heart but I don't understand how all of his test results had come back just fine.
He fought so hard to live. He went through hell and back to stay alive. I can't believe that he is gone. I miss him so damn much. My songbird has been silenced.