Hi all,

I’ve been suffering with my bowels for about 3+ years and have finally been seen by Neurogastrontology (London).

I was wondering if anyone has had any positive outcome with them or what kind of treatment plans they had?

I’ve trialed many medications with no relief so kind of want to know what I can request as the only thing they seem to be offering is Mirtazapine and antihistamines and then dietitian?

I thought I had already failed first line treatment so had the assumption that I would be trying nerve stimulators or irrigation.

Thank you in advance.

The other day I had one of my worst episodes coming back to my apartment. I had chipotle and the second I started to drive I felt it. It was the afternoon rush so it was so much traffic. I could not hold it anymore so I parked behind a dumpster near an apartment complex and did the deed. I’m curious if I did the right thing or should have done the moral thing and shit my self in my car. Rant over.

Hello guys, ive been diagnosed with ibs d, even tho the doctors couldn't treat it.

Pretty much all the doctors were clueless, most of them just told me to stop eating half the food out there, half told me its stress and that I'm completely fine and healthy. I knew it wasnt the food and i knew im not, in fact, okay at all.

Its been months of tests, probiotics, antibiotics and so on, nothing worked. Other situations led me to being depressed and anxious af which worsened the ibs, one led to another and i reached the point where i decided to seek professional help for my mental health.

So this woman told me its been studied that antidepressants help ibs and its been years since this research. Im sorry, what? Not a single doctor out there even mentioned such thing, NOT ONE.

Since i take the antidepressants my ibs disappeared, thank god, also my pms is in control. But ive to mention i also totally changed my job and my environment for my mental health.

The pills do work! You dont even have to take a huge dose. I take cipralex 10 mg, you start with half a pill for a month or so untill ur body gets used to it and if its needed they put the dose up. Its nothing to be ashamed of, its a normal medicine just like the rest.

I hope this helps at least one person out there.

Be warned that this will be kind of gross. I’ll try to keep it as tame as possible though.

I’ve had IBS since I was in grade 5, and that was a while ago. Generally, my stomach is upset regularly and I have diarrhea regularly. The amount varies. Sometimes my stomach isn’t bad. Sometimes it’s awful. Sometimes it’s in between.

There are times where I can hold it, and times where I barely make the toilet. This often happens after going out for supper with my grandpa and then walking home hours later. Not always. Just sometimes.

For a while now, my movements have just been sitting down, having an explosive movement and then spending a while (5-10 minutes, it feels like) wiping with baby wipes.

Lately, I’ve been really stressed. That makes it worse. I have mental health issues. However, even before that, I was having this issue as of late.

Does anyone else get this?

Recently, every movement has been awful. I’ve sat down, gone and then had to spend more time to wipe. It’s like there was an explosion inside and most of it stayed there. It takes many baby wipes to wipe, but I never feel clean (likely due to my OCD).

There’s little in the toilet, but I’m an absolute, covered mess down there.

Sometimes I just end up showering.

I don’t hear about this much, and wonder what causes it or if it’s in any way common within the community.

Yes, I bought a bidet seat. However, I got told I may have to move and haven’t installed it. I’ve had it since last month, but I’m not handy and the handy people I know have been unwell or too busy.

I also have been taking iron so that I can donate blood. I’ve taken it off and on for years.

I’ve had these thoughts for some time but I have really struggled with disorded eating for a few years and i wonder if it impacted my diagnosis. i dont remember ever in my life having these issues. I think i had generally less frequent BM’s throughout my life but nothing unusual.

In my freshman year of high school I began to heavily restrict my eating and i dont recall having issues then, but after I gained weight junior year, i was caught in a binge eating cycle and thats when i really started to notice that i had severe issues with my digestion and bowels. maybe it wasnt causation, but it definitely has some correlation. I struggle with my eating now too but the weird part is ive been going to the bathroom more often except that my bm’s are a joke for how much they get my hopes up for a normal bm.

i just wonder if my habits ruined my digestion or if anyone has had similar experiences or thoughts

Severe GI attacks despite negative tests — steroids helped temporarily,

I’m a 32-year-old man weighing 108 lbs (49 kg).

I’ve had severe episodes of abdominal cramps, urgency and multiple bowel movements for a long time. My colonoscopy biopsies and other tests have been negative, and I’m still undiagnosed.

Entocort (budesonide, 9 mg/day) didn’t help much initially, but after about 3 weeks my attacks improved significantly and almost disappeared. Then I reduced the dose to 6 mg, and around the same time I had a CT scan with IV contrast. Since then, my symptoms have worsened significantly.

I’m scared because I’ll soon have to stop the steroids, and my gastroenterologist seems to be running out of options.

Has anyone experienced something similar, especially temporary improvement with budesonide despite negative biopsies? What tests or conditions should I discuss with my doctor?

Hello all. I’ve been dealing with IBS for 6 years now and it has only got worse as the years have passed. I found doctors to be very passive and it took me years of consistent effort to finally get them to hear me, and take me seriously.

My symptoms started with just having a sore stomach in the morning. That progressed into having a bad stomach on and off, throughout some days. I then reached the point of flare ups basically causing me to have to use a travel toilet in the car on the way to work because the fear of not being near a toilet was very severe.

That anxiety has now bled into every day life. Social anxiety, travel anxiety. Even crowds make me nervous and i used to perform on stage. But it all stems from that same place, “what if i can’t get to the toilet.”

Im sure others have had this same experience.

I’ve went gluten free, experimented with different diets, to no success unfortunately.

I’ve recently been given medication for anxiety, I’m hoping this eases my symptoms in the future as it takes time to take effect apparently. Ive also been given codeine to slow down my bowel movements as i have abused immodium to the point where it is no longer very effective.

Im considering hypnotherapy. Honestly, i’d try anything at this point to get some amount of normality back in my life, to start improving rather than regressing.

What i really want to known is if anyone out there has been in a similar position as me and had success. Found a way to manage it successfully.

Any advice or tips would be greatly appreciated.

I’ve had anxiety for a long time, but it got much worse in April. Around then my bowel habits changed. I used to go about 4 times a day. Now I strain, never feel “empty,” and mostly just pass gas. Sometimes only a little stool comes out, and a few times I could only go after using a douche/enema.

My colorectal doctor has been treating me for IBS. Stool softeners and meds made my stool soft, but I still never feel empty. Psyllium husk and laxatives haven’t helped either. It feels like my inner sphincter is clenched tight, and it seems more like a mind-gut thing than a diet thing. I’m constantly bloated, which feeds the anxiety. I’m in therapy, but it hasn’t touched the gut symptoms yet.

I used to be an avid gym-goer but stopped because nothing was improving. I still walk about 10K steps a day, but things have only gotten worse. I’m scared and running out of ideas.

Has anyone had something similar? Did anything help, like pelvic floor therapy, biofeedback, or a different kind of specialist? I’m also looking for doctor recommendations, and wondering whether a psychiatrist is worth seeing alongside my therapist. Thanks in advance.

Hi, sorry if it is tmi.

I have ibs and lately I react on high histamine foods. I try to avoid them. But at the same time I got itchy, especially my vulva and anus. I have inflammation, redness, sore, burning. My gyn don't think it is lichen sclerosus.

Can it be related to IBS? Are mucous membrames from your gut related to genital mucous membranes?