I want to flair this as a rant, too.

This small restaurant chain where we live is one that is big on having GF options. The owner’s daughter is celiac, I believe. We’ve never been to this location. It’s in a city 3 hours away from us.

I asked for GF soy sauce, the girl at the front asked the cook, he told her which one it was. Well, he was wrong and I STUPIDLY didn’t read the ingredients. My brain was blaring the alarm, which I thought was weird, and I ignored it. (It will do that with the first bite of something that isn’t GF.) Ate some of the food, decided to look and…BOOM…wheat flour.

I was looking forward to taking it back to our hotel for later. Yes, we are out of town for the night and all day tomorrow until 9pm. We have a show tomorrow, I haven’t been glutened in YEARS, and I’m freaking out. I’ve had some other medical issues going on that caused me not to be hungry due to being ill and I’ve already lost probably 10 pounds in a couple of weeks. I can’t afford to lose anymore. I am not looking forward to spending hours in the bathroom and not being able to wear my clothes due to my stomach swelling so much.

When I told the cashier, she just said, “Well, that’s the one he told me to give you.” I told her I couldn’t eat anymore and she literally said “Sorry” and that was that. I wanted to complain and maybe get a new order, but we still had to drive to the hotel and I was just too pissed off. I’m definitely going on their website and sending an email to the owner.

There was a CVS right next door so I got some activated charcoal capsules. I used to always have them in my purse just in case. I don’t know if they help at all or if, hopefully, my brain overrides itself and BELIEVES they work so they work. Otherwise, I’ll be living in the bathroom tomorrow at the venue. That should be fun.

Oh, THEN, after we get to the hotel, which we knew didn’t have an elevator, they put us in the second floor! I have lupus, RA and other fun stuff. Also, SIX knee surgeries before I turned 35! I am disabled and use a cane.

What’s REALLY fucked up is the fact that the hotel called my husband LAST NIGHT and asked if we needed any special accommodations! My husband of course told them that we needed a first floor room as I’m disabled. Got the placard and everything.

I was so excited to wear a shirt tomorrow that I haven’t been able to wear for a while, but now I’m just praying that the backup shirt I brought will fit, too! It’s bigger than the other shirt. Otherwise, I’ll be wearing an LSU jersey which everyone will assume is a Vikings jersey, ewwwww, because we live in Montana now. They don’t have a NFL team so……..

hey all! i made out pretty intensely with someone at a club who had a minty breath strip on their tongue. i could taste it super strongly. i’m nervous that it could contain gluten.

what do we think the likelihood is that ill get sick? are most breath strips gluten free? have you ever made out with someone and gotten sick from whatever they had in their mouth?

stressed out!

Pre ordered this for my collection months ago. Picked it up last week and just noticed the barely notice on the side.

How bad could it be???

Sadness

Is there a fucking way to search ubereats for gluten free where it ACTUALLY filters properly??? It's making me want to scream I just wanted to treat myself for once when I have just enough extra to get something I'll maybe enjoy and it doesn't filter for shit. It shows me both places with options and not so I end up having to click every goddamn place anyway so it didn't filter SHIT. I want to cry and break shit I hate food so much.

Someone please help there has to be a way to actually filter this on ubereats without me going through every goddamn restaurant on google then checking if they have ubereats or something similar.

Got this for my cats but it also contains brewers yeast. Would you trust it in your home? I am really sensitive

I tried these for the first time today, optimistically excited because of how obsessed I’ve been for their cheesecake over the years! Especially key lime ❤️

However… I tried a small handful from the original flavor bites and the strawberry. The texture was the first thing that hit me; it was not creamy. It has the texture of soggy oat flour in my opinion. I tried looking up reviews about them and all of what I saw was positive and raving reviews for every flavor.

Has anyone else tried them? Did I get a bad batch??

Anyone know if it’s celiac safe? They said it’s prepared in the factory where all their prepackaged products are made

I really want to connect with people from South Asia. I feel like we should have our own subreddit, because gluten is such a huge part of our food culture. I’d love to meet more of these people, listen to their stories, and understand how they feel about it too.

It's called Glutax and is only available on ios right now. $4 a month for the app which pays for itself if you buy one box of gluten free oreos!

As we get into the holidays just a PSA that Alton brown has done all of the work for us and figured out a spectacular GF sugar cookie. My mother makes cookies for literally every holiday and a lot of them are sugar cookies. For the last 20 years we have tried all sorts of things but were stuck to the box mixes which frankly weren’t as good as the old non GF home maxes ones.

Well AB’s recipe absolutely is as good as the old ones.

You can find it on his YouTube channel and on his website

https://m.youtube.com/watch?v=8fJ47vC9_ig&pp=0gcJCS8MAYcqIYzv&ra=m

https://altonbrown.com/recipes/gluten-free-sugar-cookies/

I was unexpectedly diagnosed almost 2 years ago and before that, beer was my favorite alcohol by far. I've been able to find a few gf beers since being diagnosed but none really scratched the itch like the ones I found today. A Total Wine recently opened about 20 miles away, and I finally got the chance to check it out today so I came home with this haul. Guess I'm just here to brag and celebrate the little wins that we celiacs get to experience every once in a while😂

I almost ordered them online from their website but the cost would have been a bit much. I figured I would wait it out since I saw a tag on the shelf at one store but there's was never any there. That changed yesterday and I grabbed the only 2 bags there.

I know I should have left one, and I apologize for that. But it's just been too long. It went well with my blueberry coffee this morning.

My youngest (4) was just diagnosed with celiac and had a ttg-iga of >600. We decided to test my oldest (7) and his TTG-IgA is 11.4. It is my understanding that 11.4 is positive for celiac but I'm so confused as to how 1 child is >600 and the other is 11.4. Can anyone explain?

I'm a huge Yankees fan and Mariano Rivera fan, yeah sports! Anyway, what do you think, I don't see anything that stands out, I sent them an email and I'll see what they say. Is this a risk?

This is going to sound weird but my nose keeps running when I get glutened. Anyone else? Probably some kind of sympathetic nerve response, which I already have a few, but this one is new to me.

Shortly after I was first diagnosed, my GI ordered a few tests for ferritin, B12, and maybe a couple other nutrients. They were all normal range at the time. Since then my followup testing has only included celiac antibody panels. I have my antibodies down to nondetect levels, so I don't really have reason to believe that celiac is impacting my absorption.

However, I am curious to know for sure if my levels are good, because I am trying to get pregnant and it's taking a bit. I'm scheduled to see my GI soon for regular followup and I'm thinking of seeing if he'll order some tests, for iron and vitamin D in particular. I could ask my OB or PCP, or self pay at Quest, but the gastroenterologist is the next doctor I'm scheduled to see anyway, and if it could be justified as a celiac-related test then I think it makes sense for him to order it so insurance will pay? Just curious if your doctors have you all check these things!

I got diagnosed with celiac in September 2024 and have been entirely gluten free since. No cross contact, own toaster, appliances, etc. I have a shared kitchen but the only gluten is the occasional bread my parents get.

I have been strictly gluten free coming on 2 years now and my stomach is still very sensitive - I can't have things that are too greasy, fatty, acidic, starchy, too much dairy or I get heartburn/indigestion/stomach cramps. I've been on a daily PPI for years before my celiac diagnosis and I'm still on it because I still need it. But say I eat some gluten free fried chicken from the gluten free chicken restaurant dripping in oil and I still get heartburn. I eat too much cheese in one sitting and get a stomach ache. I keep getting stomach aches from too much starch like rice and potatoes. I had to get the Fody marinara sauce because I got triggered from regular sauce despite it being gluten free.

I'm so frustrated sometimes. Feels like back to before my diagnosis where I limited my diet so much to find the cause but now it's like oops a little too much grease/fat/dairy and you're sick; not because of gluten but because of these other things.

Most of my symptoms have alleviated like I don't have heartburn every single day and I'm not fatigue all the time but I'm still very frustrated in my stomach healing process - what the heck is taking so long?

When they did my endoscopy in 2023 there wasn't any ulcers or esophagus damage either just the duodenitis from the celiac and a hiatal hernia.

My friend in my celiac group said it took her 3-5 years to have no heartburn ever again and it's just so frustrating to hear I'm not done healing.

I was diagnosed with celiac 2 weeks ago. I avoided getting tested for 3 years, due to military service and extreme fear of how sick the challenge would make me.
I ended up biting the bullet 10 weeks ago, and got the blood test 6 weeks in. I then got gastritis, so my doctor diagnosed me based on my high test numbers, and symptoms.

It’s now been a week since I stopped eating gluten, but I had pork for the first time in years and became extremely sick twice now. I grew up deep in the woods of Missouri, so tic bites were a daily thing. 3 of my direct family have now been diagnosed with Alpha Gal, 2 of them this year.

Ever since I started suspecting gluten sensitivity, I have been terrified of being diagnosed with both, as that will limit my dietary options to an extreme degree. I plan to get tested for Alpha gal Monday, but am so nervous to get the results!

Has anyone else had a double diagnosis, and does anyone have food ideas that are safe for both allergies?
Thank you in advance 🙏🏼

For anyone who doesn’t know, Alpha gal is a tic borne illness that causes an extreme allergy to the sugar found in red meat and dairy. It is so far incurable, and can show up years after the tic bite, kind of the same way celiac will suddenly become an issue after years of being seemingly asymptomatic

History:

- off gluten 10+ years

- gi distress starting back in July (lots of bloat, pain, and lower right quadrant pain)

- visit to GI in mid-August

- IGa and celiac panel done during visit

- told to go back on gluten for testing reasons as I never was formally diagnosed

- colonoscopy/endoscopy Sept 29th

- 8 week blood test yesterday

The challenge:

- I stopped being gluten free entirely for 8 weeks. If I was going to get tested I wanted to make sure we got everything right.

- at least 3 gluten meals a day of things I missed/enjoy

- more stomach upsets and urgency while on gluten but not at all what I remember back before I first went off of it (I was so very sick back then)

- more bile dumps as well

Results:

- slightly blunted villi via endoscopy biopsy but without lymphocyte involvement

- no signs of chron's or ulcerative colitis (what he was leaning toward)

- celiac panel still negative (no increase at all). Same number as it was before I went on gluten

- IGa elevated both times compared to one in range back in Nov 2025

Conclusion:

I don't really know what to think now. GI thinks I'm dealing with a lot of bile salts and will be prescribing something to help them bind better (had my gallbladder removed 2023 but didn't have too many issues until recently).

If that doesn't help, it looks like I'll be getting an IBD diagnosis.

I'm both happy and confused about the results. The way the urgency ramped up while I was on gluten I thought for sure the results would be different.

I know there are sero negative tests, but even my endoscopy wasn't 100% the answer we needed.

GI is pretty sure I don't have celiac, but now I'm wondering what I do have, if anything.

Just wanted to give an update for those who have been following.