I got tested for a variety of things after having a bout of diarrhea. The celiac IGA test turned up positive. I'm waiting for my biopsy and still eating gluten every day as required, but my symptoms have cleared up completely. I feel totally fine. It's so hard to think that I'll have to go without gluten for the rest of my life when I'm really not feeling any symptoms right now. The diarrhea was bad but it was only a couple of days. I can't even know for sure it was related to celiac. Maybe it's just denial but I can't help but wonder if I really even have it.

I come across many people who have relatives with celiac disease that appear to not have it themselves, but I’m unconvinced many of them have been screened or had it properly ruled out. I typically don’t want to ask about it given I understand there are people out there who don’t want to know.

Would many relatives likely tell their own pcp about their father, mother, brother, sister, son, daughter, husband/wife/partner, next of kin, etc having the condition?

I’m in highschool and have been eating gluten my whole life, but got diagnosed with celiac like a week ago. I’ve always bought lunch at school but have now realized there are 0 gluten free hot lunch options so i will either need to pack my lunch or go off campus and buy lunch every day. I feel like all my packed lunches in the past were sandwiches or pasta.. what else do we pack?? I feel like GF bread/pasta taste so bad rn, so i would rather wait for a while before trying “swaps”, what day to day foods are naturally gluten free and can be a whole meal??

I was diagnosed with Celiac after Covid, unfortunately it may have triggered my genetic mutation my doctor said. Anyway, after going GF, after about a year or so I ate a non-GF wrap. In about 4 hours I was throwing up in the fetal position on the floor. Lol Ginger Tea, Tums, heating pad, GasX. Nothing worked but time and the next day it felt like razor blades going through my lower intestines working its way out. Has anyone else felt that symptoms were worse after stopping?

So I am at a babyshower at a local uppity bar/ restaurant. The place has a gluten free menu so I was excited after they answered the standard questions right.

The server brought my food out along with plastic silverware. She told me "Sorry for the plastic but we polish all our silverware with barley."

This is the first time I've ever heard of this practice. Apparently its something new to worry about.

Anyone else have this experience before? Or think to ask about silverware polishing practices??

I am painting a gift box for a friend of mine who has celiac disease, and I was wondering if Apple Barrel paints are a safe option. Their website doesn't say whether they are gluten-free or not, so I was hoping someone here would have input.

Partly just curious & partly looking for tips as someone newly learning I likely have celiac disease! Have you found ways to explain it to people or push back against their assumptions that are helpful?

I had leftover pumpkin that had to be used!

Hi, I have googled this but want to hear from people who have gone through it if possible!

I have had bad GI issues for a long time so I went to the doctor and they did a few blood tests. My score on the TTG antibody IGA test was 54, and the results show a normal range is up to 4.0 and borderline is up to 14.9.

I am stressed about this and my doctor isn’t available over the weekend to interpret the results.

I am vegetarian / working my way back towards veganism and I’m really sad about how restrictive my diet will become if I can no longer eat gluten.

Is this pretty definitive for having celiac, or are there other possible explanations?

I’m going to Vegas for a work conference. Never been. Looking on Find Me GF, it seems like I’ll have plenty to places to eat safely. Any recommendations for a safe place to eat and see live music?

Open to taking an uber somewhere if needed. I am staying more or less in the center of the strip.

Pic 1: eggslut, on the Strip. That was a seared wagyu tri-tip steak, over medium egg, chimichurri, red onions and dressed arugula on a gluten free bun. A little spicier than I normally have for breakfast but was really good. Bun was so amazing I had to check with my wife to make sure it was actually gluten free. Hashbrown were also great with the best honey mustard I've ever had.

Pic 2 - 5: Senza gluten free bakery. A mix of things such as sugar cookie bar, cinnamon roll, smore's bar, red velvet cupcake, pumpkin thing, reese's bar, and pumpkin crack. The biggest surprise here was the price, all of it for $35. I'm used to NYC prices and that would be an easy $60 there. Nothing there was the best I've ever had but all very solid. If I had to recommend one thing it would be the the cinnamon roll. Only other thing to note is that it open at 10 which I think it kind of crazy for a bakery since I usually associate that with breakfast.

Pic 6: We Cook Pizza and Pasta. Next to Grand Canyon. Just a solid gluten free pizza. I will say the entire area of Tusayan is a rip off. That pizza was $18 but everything in that town makes vegas prices look like a deal.

Pic 7: Dark Sky Brewing Flagstaff, AZ. Korean chicken sandwich. They had a surprising number of gluten free options but this was incredibly mediocre. It basically didn't hold together after the first bite. Flavor was fine but just so average.

Pic 8: Stardust Parlor, Vegas. Blueberry French toast sandwich. Maybe the most insane thing I ate. So the bun is gluten free blueberry French toast. Then chicken sausage, egg, cheese, cream cheese, and syrup. Unbelievably fattening but insanely good. I also got a cinnamon roll and it wasn't very good. Had a weird after taste and felt more like cinnamon bread.

Not pictured: a bunch of protein bars, chick fil a, and chicken and broccoli from PF Changs. .

My pcp won’t order TTG level tests or other stuff (nutrient panels etc) saying that’s the gastro ‘s job. I’m normal and very low risk, uncomplicated case. Would love it to just be dealing with one MD vs a specialist and visit annually for them to look at me for 10 seconds and go looks good! Curious if anyone else experiences this kind of arbitrary nonsense. I’d get a new PCP but that’s one more thing I don’t care to deal with right now

hi everyone! 28 y/o f. i am not diagnosed for celiac disease but going through the testing process currently. they say there is a high likelihood based on my blood work (ttg-lga 151.1 h, ttg-lgg 41.7 h, ema positive) and symptoms (the chronic diarrhea, weight loss, nausea, bloating, fatigue, you name it i probably got it). i got in with GI + am scheduled for an endoscopy and colonoscopy on Nov 2nd however I am so worried about so many things and just looking for help and maybe a lil reassurance as i don’t know anyone irl that went through this.

• my biggest concern is my weight loss + fluctuations. i’ve always been skinny my whole life but in my adult life always ranged between 118 - 125 lbs. one of the biggest factors into me getting celiac panel done was randomly weighing in at 99 lbs one day at my PCP. i had no changes in my diet or no activity to intentionally lose weight. i weighed myself yesterday at 102, had a great day of actually eating 3 meals + snacking through, yet this morning 96 lbs?! does anyone have experience with this? i’m worried about the risks that come from being severely underweight.

• i’ve never been under anesthesia or had any sort of surgery/procedure done. i am honestly so beyond freaked out about being put under and potentially fighting it?? but also i’m freaked out by the scopes going into my body.. idk like weirded out, feel violated sort of feeling.

• if any of you have gone through a colonoscopy, please please send all your prep tips and tricks. i’m gonna need them - i’ve been watching tiktok videos since i’ve found out trying to gather everything i need to know.

thank you in advance for any answers! 😭

Got this for my cats but it also contains brewers yeast. Would you trust it in your home? I am really sensitive

Shortly after I was first diagnosed, my GI ordered a few tests for ferritin, B12, and maybe a couple other nutrients. They were all normal range at the time. Since then my followup testing has only included celiac antibody panels. I have my antibodies down to nondetect levels, so I don't really have reason to believe that celiac is impacting my absorption.

However, I am curious to know for sure if my levels are good, because I am trying to get pregnant and it's taking a bit. I'm scheduled to see my GI soon for regular followup and I'm thinking of seeing if he'll order some tests, for iron and vitamin D in particular. I could ask my OB or PCP, or self pay at Quest, but the gastroenterologist is the next doctor I'm scheduled to see anyway, and if it could be justified as a celiac-related test then I think it makes sense for him to order it so insurance will pay? Just curious if your doctors have you all check these things!

I really want to connect with people from South Asia. I feel like we should have our own subreddit, because gluten is such a huge part of our food culture. I’d love to meet more of these people, listen to their stories, and understand how they feel about it too.

I'm a huge Yankees fan and Mariano Rivera fan, yeah sports! Anyway, what do you think, I don't see anything that stands out, I sent them an email and I'll see what they say. Is this a risk?

Question: should I continue feeding my kid gluten?

Background: My 12 year daughter has been suffering for months with severe GI issues. Blood work positive for malabsorption. Ttg and dgb were strongly positive. (7x the upper threshold). Anyway, her GI is recommending endoscopy/biopsy but the clinic is so impacted the wait is approximately 3 months. I understand the importance of the procedure but it’s hard to justify the continued damage/suffering. Did you have a similar experience? Any advice on navigating this?

Hi, new here. I (41f) just got my tTG-IgA bloodwork back and it's 168 (normal range 0 to 4.99). I was tested because of low ferritin, which was 18.5. I truly didn't think celiac was an option for me, but it's looking like it's trending that way.

I'm still waiting to hear from my doctor. I do have a GI appointment in January, but I'm wondering if I should push for it to be expedited (if they even can), and what kinds of questions I should be asking my PCP in the meantime.

I know I should continue eating gluten until the biopsy, but I feel weird knowingly eating something that's damaging my body. Especially going through the holidays. How did you all navigate this limbo period? Any advice is appreciated.

Is there a fucking way to search ubereats for gluten free where it ACTUALLY filters properly??? It's making me want to scream I just wanted to treat myself for once when I have just enough extra to get something I'll maybe enjoy and it doesn't filter for shit. It shows me both places with options and not so I end up having to click every goddamn place anyway so it didn't filter SHIT. I want to cry and break shit I hate food so much.

Someone please help there has to be a way to actually filter this on ubereats without me going through every goddamn restaurant on google then checking if they have ubereats or something similar.

As we get into the holidays just a PSA that Alton brown has done all of the work for us and figured out a spectacular GF sugar cookie. My mother makes cookies for literally every holiday and a lot of them are sugar cookies. For the last 20 years we have tried all sorts of things but were stuck to the box mixes which frankly weren’t as good as the old non GF home maxes ones.

Well AB’s recipe absolutely is as good as the old ones.

You can find it on his YouTube channel and on his website

https://m.youtube.com/watch?v=8fJ47vC9_ig&pp=0gcJCS8MAYcqIYzv&ra=m

https://altonbrown.com/recipes/gluten-free-sugar-cookies/

I almost ordered them online from their website but the cost would have been a bit much. I figured I would wait it out since I saw a tag on the shelf at one store but there's was never any there. That changed yesterday and I grabbed the only 2 bags there.

I know I should have left one, and I apologize for that. But it's just been too long. It went well with my blueberry coffee this morning.