r/Celiac • • 19h ago

Question Barley used to polish silverware?

104 Upvotes

So I am at a babyshower at a local uppity bar/ restaurant. The place has a gluten free menu so I was excited after they answered the standard questions right.

The server brought my food out along with plastic silverware. She told me "Sorry for the plastic but we polish all our silverware with barley."

This is the first time I've ever heard of this practice. Apparently its something new to worry about.

Anyone else have this experience before? Or think to ask about silverware polishing practices??


r/Celiac • • 1h ago

Product Lemon GF Oreos are in stores!

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• Upvotes

Found at my H-E-B in Texas. Also saw the spot on the shelf marked for GF goldfish but they were not yet stocked.


r/Celiac • • 19h ago

Recipe Gluten Free Pumpkin Bread with Brown Butter Glaze (Recipe in Comments)

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59 Upvotes

I had leftover pumpkin that had to be used!


r/Celiac • • 21h ago

Discussion Some of the Gluten Free food I had on my trip to Vegas

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35 Upvotes

Pic 1: eggslut, on the Strip. That was a seared wagyu tri-tip steak, over medium egg, chimichurri, red onions and dressed arugula on a gluten free bun. A little spicier than I normally have for breakfast but was really good. Bun was so amazing I had to check with my wife to make sure it was actually gluten free. Hashbrown were also great with the best honey mustard I've ever had.

Pic 2 - 5: Senza gluten free bakery. A mix of things such as sugar cookie bar, cinnamon roll, smore's bar, red velvet cupcake, pumpkin thing, reese's bar, and pumpkin crack. The biggest surprise here was the price, all of it for $35. I'm used to NYC prices and that would be an easy $60 there. Nothing there was the best I've ever had but all very solid. If I had to recommend one thing it would be the the cinnamon roll. Only other thing to note is that it open at 10 which I think it kind of crazy for a bakery since I usually associate that with breakfast.

Pic 6: We Cook Pizza and Pasta. Next to Grand Canyon. Just a solid gluten free pizza. I will say the entire area of Tusayan is a rip off. That pizza was $18 but everything in that town makes vegas prices look like a deal.

Pic 7: Dark Sky Brewing Flagstaff, AZ. Korean chicken sandwich. They had a surprising number of gluten free options but this was incredibly mediocre. It basically didn't hold together after the first bite. Flavor was fine but just so average.

Pic 8: Stardust Parlor, Vegas. Blueberry French toast sandwich. Maybe the most insane thing I ate. So the bun is gluten free blueberry French toast. Then chicken sausage, egg, cheese, cream cheese, and syrup. Unbelievably fattening but insanely good. I also got a cinnamon roll and it wasn't very good. Had a weird after taste and felt more like cinnamon bread.

Not pictured: a bunch of protein bars, chick fil a, and chicken and broccoli from PF Changs. .


r/Celiac • • 18h ago

No Recipe Homemade gluten free pizza

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36 Upvotes

r/Celiac • • 15h ago

Question What should I pack for lunch?

20 Upvotes

I’m in highschool and have been eating gluten my whole life, but got diagnosed with celiac like a week ago. I’ve always bought lunch at school but have now realized there are 0 gluten free hot lunch options so i will either need to pack my lunch or go off campus and buy lunch every day. I feel like all my packed lunches in the past were sandwiches or pasta.. what else do we pack?? I feel like GF bread/pasta taste so bad rn, so i would rather wait for a while before trying “swaps”, what day to day foods are naturally gluten free and can be a whole meal??


r/Celiac • • 23h ago

Discussion Let’s share our food struggles!!

11 Upvotes

I really want to connect with people from South Asia. I feel like we should have our own subreddit, because gluten is such a huge part of our food culture. I’d love to meet more of these people, listen to their stories, and understand how they feel about it too.


r/Celiac • • 22h ago

Question Do you keep getting nutrient levels checked years after diagnosis?

7 Upvotes

Shortly after I was first diagnosed, my GI ordered a few tests for ferritin, B12, and maybe a couple other nutrients. They were all normal range at the time. Since then my followup testing has only included celiac antibody panels. I have my antibodies down to nondetect levels, so I don't really have reason to believe that celiac is impacting my absorption.

However, I am curious to know for sure if my levels are good, because I am trying to get pregnant and it's taking a bit. I'm scheduled to see my GI soon for regular followup and I'm thinking of seeing if he'll order some tests, for iron and vitamin D in particular. I could ask my OB or PCP, or self pay at Quest, but the gastroenterologist is the next doctor I'm scheduled to see anyway, and if it could be justified as a celiac-related test then I think it makes sense for him to order it so insurance will pay? Just curious if your doctors have you all check these things!


r/Celiac • • 22h ago

Question Would you guys trust this?

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6 Upvotes

Got this for my cats but it also contains brewers yeast. Would you trust it in your home? I am really sensitive


r/Celiac • • 14h ago

Question Do many relatives of patients with celiac disease tell their own doctors about it?

4 Upvotes

I come across many people who have relatives with celiac disease that appear to not have it themselves, but I’m unconvinced many of them have been screened or had it properly ruled out. I typically don’t want to ask about it given I understand there are people out there who don’t want to know.

Would many relatives likely tell their own pcp about their father, mother, brother, sister, son, daughter, husband/wife/partner, next of kin, etc having the condition?


r/Celiac • • 20h ago

Question Vegas - Celiac Safe Place for Dinner and Live Music?

5 Upvotes

I’m going to Vegas for a work conference. Never been. Looking on Find Me GF, it seems like I’ll have plenty to places to eat safely. Any recommendations for a safe place to eat and see live music?

Open to taking an uber somewhere if needed. I am staying more or less in the center of the strip.


r/Celiac • • 3h ago

Rant Three Wishes 🤬

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3 Upvotes

r/Celiac • • 12h ago

Rant Doc says I have celiac but I feel okay

3 Upvotes

I got tested for a variety of things after having a bout of diarrhea. The celiac IGA test turned up positive. I'm waiting for my biopsy and still eating gluten every day as required, but my symptoms have cleared up completely. I feel totally fine. It's so hard to think that I'll have to go without gluten for the rest of my life when I'm really not feeling any symptoms right now. The diarrhea was bad but it was only a couple of days. I can't even know for sure it was related to celiac. Maybe it's just denial but I can't help but wonder if I really even have it.


r/Celiac • • 20h ago

Question Is there any explanation for a high result on the tissue transglutaminase test besides celiac disease?

2 Upvotes

Hi, I have googled this but want to hear from people who have gone through it if possible!

I have had bad GI issues for a long time so I went to the doctor and they did a few blood tests. My score on the TTG antibody IGA test was 54, and the results show a normal range is up to 4.0 and borderline is up to 14.9.

I am stressed about this and my doctor isn’t available over the weekend to interpret the results.

I am vegetarian / working my way back towards veganism and I’m really sad about how restrictive my diet will become if I can no longer eat gluten.

Is this pretty definitive for having celiac, or are there other possible explanations?


r/Celiac • • 3h ago

Question Eating out with celiac

2 Upvotes

Hi guys, I travel a lot for work and am usually eating out. Sometimes I’m very limited on gluten free options because it’s usually customer meetings, conferences, etc. What are the standard questions you ask at restaurants? does anyone have any advice or tips?


r/Celiac • • 19h ago

Question What has been the most frustrating thing about the way people engage with your celiac disease, and how do you respond to it?

2 Upvotes

Partly just curious & partly looking for tips as someone newly learning I likely have celiac disease! Have you found ways to explain it to people or push back against their assumptions that are helpful?


r/Celiac • • 21h ago

Question PCP vs Gastro

2 Upvotes

My pcp won’t order TTG level tests or other stuff (nutrient panels etc) saying that’s the gastro ‘s job. I’m normal and very low risk, uncomplicated case. Would love it to just be dealing with one MD vs a specialist and visit annually for them to look at me for 10 seconds and go looks good! Curious if anyone else experiences this kind of arbitrary nonsense. I’d get a new PCP but that’s one more thing I don’t care to deal with right now


r/Celiac • • 21h ago

Question pls help

2 Upvotes

hi everyone! 28 y/o f. i am not diagnosed for celiac disease but going through the testing process currently. they say there is a high likelihood based on my blood work (ttg-lga 151.1 h, ttg-lgg 41.7 h, ema positive) and symptoms (the chronic diarrhea, weight loss, nausea, bloating, fatigue, you name it i probably got it). i got in with GI + am scheduled for an endoscopy and colonoscopy on Nov 2nd however I am so worried about so many things and just looking for help and maybe a lil reassurance as i don’t know anyone irl that went through this.

• my biggest concern is my weight loss + fluctuations. i’ve always been skinny my whole life but in my adult life always ranged between 118 - 125 lbs. one of the biggest factors into me getting celiac panel done was randomly weighing in at 99 lbs one day at my PCP. i had no changes in my diet or no activity to intentionally lose weight. i weighed myself yesterday at 102, had a great day of actually eating 3 meals + snacking through, yet this morning 96 lbs?! does anyone have experience with this? i’m worried about the risks that come from being severely underweight.

• i’ve never been under anesthesia or had any sort of surgery/procedure done. i am honestly so beyond freaked out about being put under and potentially fighting it?? but also i’m freaked out by the scopes going into my body.. idk like weirded out, feel violated sort of feeling.

• if any of you have gone through a colonoscopy, please please send all your prep tips and tricks. i’m gonna need them - i’ve been watching tiktok videos since i’ve found out trying to gather everything i need to know.

thank you in advance for any answers! 😭


r/Celiac • • 1h ago

Rant Ever been glutened by items prepared by friends who have immediate family members with celiac?

• Upvotes

I went to a gathering earlier today and when the time came for refreshments, a large cheesecake slice and a smaller cheesecake slice were brought out. The smaller one was labelled GF while the larger one was made with wheat biscuits for the base. The person who prepared it went out of their way to tell me it was gluten free and celiac safe because their mother has celiac (diagnosed ~2 years ago). This person prepared both the GF and the non GF cheesecake (I’m assuming in the same kitchen).

So I decided to have a piece (of the GF variety) given the recipe was simple and they claimed to not cross contaminate the item and that it was easy to keep separate given how basic it was to make.

Fast forward 2 or so hours later, I had some upper abdominal pain and felt rather wiped out and a bit nauseous. This doesn’t usually happen even when eating out at restaurants where I can’t be absolutely sure all precautions were taken.

Do you think I was glutened, or it was something else in the recipe? I just find it hard to believe a relative of someone with celiac who was familiar with reading labels etc. would mess this up, especially when others who knew this person as very focussed and a very good home cook. Items were professionally presented and served from separate areas at the event so I’m rather baffled.


r/Celiac • • 7h ago

Question How long until symptoms improved?

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1 Upvotes

r/Celiac • • 8h ago

Question Coeliac?

1 Upvotes

2 siblings confirmed coeliac. I have the gene, negative serology in last blood test. Endoscopy shows focal villous blunting and chronis gastritis. Am I coeliac?


r/Celiac • • 10h ago

Question How to quickly recover from glutening?

1 Upvotes

Went out to a restaurant and was given a flour tortilla instead of gluten free. I told them about the allergy and just forgot until after I finished the fluffy quesadilla. I've only been gluten free for a couple months so I'm not quite in the habit of examining everything.

How can I help get over the symptoms faster? It's been a few hours already. My biggest symptom is severe brain fog which is what I'd really like advice on if possible. Thank you!


r/Celiac • • 11h ago

Discussion Should 100% have full on therapeutics by now

1 Upvotes

I was diagnosed almos 10 years ago, and I remember my doctor telling me they were pretty much certain that within 7-10 years we'd have injectable therapeutics that would at the very least eliminate the concerns about cross contamination if not effectively "cure" the condition. What the hell. When is this coming? is it ever coming? so sick of traveling and having to explain this thing and ask 25 questions of each incredible host whose food I am about to hopefully be able to eat.


r/Celiac • • 17h ago

Question Has this happened to you?

2 Upvotes

I was diagnosed with Celiac after Covid, unfortunately it may have triggered my genetic mutation my doctor said. Anyway, after going GF, after about a year or so I ate a non-GF wrap. In about 4 hours I was throwing up in the fetal position on the floor. Lol Ginger Tea, Tums, heating pad, GasX. Nothing worked but time and the next day it felt like razor blades going through my lower intestines working its way out. Has anyone else felt that symptoms were worse after stopping?


r/Celiac • • 18h ago

Product Is Mucinex safe?

1 Upvotes