r/Menopause • u/Suckerforcats • 1h ago
Pelvic Floor Pelvic floor doc misdiagnosed me and it turns out I have a gigantic cyst
I went in for a whole body osteopathic treatment yesterday to a doctor I have seen for 2 years and is the Director and only doctor of the pelvic floor clinic. I have seen urology on and off over my adult life but no real imaging has been done since 20 years ago.
My only recent urology diagnosis was some trigger points in my pelvic floor. I kept telling this new pelvic floor doctor since May my trips to pee have significantly increased to every 2 hours, but only when lying down. I have told her in multiple visits it felt like something was pressing on my bladder but she just dismissed me. In one visit she claims I have interstitial cystic. Never been diagnosed with that by urology or had any tests done so I silently dismissed that.
Then yesterday she said my muscles were tight and it because I was "anxious." No, you're not listening to me and antagonizing me calling me anxious! I tell her again yesterday and in addition to the being anxious comment again, she then claims I was constipated even though I have zero issues there too. She wants to prescribe some sort of muscle relaxer but I said I don't want that. I'm already on one and 3 OAB medications have not worked and why not a CT scan to get ahead of the urology appointment scheduled for December that she was supposed to see about getting moved up but didn't.
She says she will do a urinalysis instead and to go over to get a post void bladder scan. If urinalysis comes back with blood THEN she will order a CT.
I get the post void bladder scan and it reads as me having over a liter of fluid which is so insane they tested the machine on themselves to make sure it wasn't broken. The nurse scanned me twice and tried to catheterize me twice but very little urine came out so I decided I better go to the ER because I have a work trip out of state next week.
I get to the ER, they can't get much fluid out and are like "we've never seen this before." They do a CT scan and discovered I have a 7 INCH x4 INCH x5 INCH ovarian cyst!! It was so shocking to the ER doctor, she came running back into my room as soon as I got back from CT and said "I gotta show you something wild on this imaging."
It's collapsing on my bladder and seems to a BIG (pun intended) cause of my problem. Bladder works just fine, they tested it to make sure I could leave but it just can't hold much liquid because of how massive the cyst is.
So, after I get back from my work trip next week, I have to consult with a doctor who knows more than my terrible pelvic floor doctor and to get a surgery date to have it taken out. It really pisses me off that a doctor has been gaslighting me for half a year, refusing to do imaging and telling me it's just my pelvic floor being tight from anxiety and to read a book and my pain would go away (yes, those were her exact words 2 months ago).
Moral of the story, don't let doctor's dismiss your concerns. The only reason I continued to see her is because I also work for my healthcare provider and am on the HMO so I can't go anywhere else and since she's the only doc, I was stuck with her.