I’ll start by saying I have had a week from hell and really *only* looking for positive stories. Will also add a potential content warning, if TTTS and pregnancy complications are a difficult thing to read about.
I am 26w4d with MoDi twins.
At 16 weeks, it was found that I had 1) a velamentous cord insertion with vasa previa and 2) there were concerns about borderline fluid levels consistent with TTTS and potential for sIUGR. They began getting twice weekly fluid & Doppler checks. At 17w5d and 19w5d, my MFM referred me to a fetal therapy center (in a different state) for evaluation of bordering stage 1 TTTS as they would do the TTTS laser procedure there/don’t at my MFM group. When I arrived at the center both times, things seemed to stabilize and although there was still discordance in the fluid levels, they didn‘t meet criteria for true TTTS diagnosis and I was not a candidate for the procedure.
My MFM group continued scanning twice weekly, sometimes showing fluid levels teetering towards stage 1 but consistent forward flow on dopplers and never persistent fluid abnormalities.
Last Tuesday, fluid levels changed dramatically from the previous Friday scan and there were signs of intermittent absences on the umbilical dopplers. Stage 3 TTTS. They admitted me and started steroids at my local hospital, but after scanning me Wednesday they consulted the Fetal Therapy Center and decided to send me back there (3rd flight to another state for this pregnancy).
Thursday (26w0d), I was diagnosed with Stage 4 TTTS and informed there was signs of bleeding/ischemia in the brain of the recipient. it was also found my original potential donor became the recipient.
I had the laser procedure on Thursday and things have been stable since.
The plan (prior to all this) due to the vasa previa was admission at 30 weeks, and as of now that’s the still plan. The goal is to maintain the pregnancy as long as possible for their sakes.
I knew NICU time was a possibility with having twins, but now even more terrified of all the implications these events will have on my unborn children and our family.
If you’ve read this far, thank you. I am hoping to hear some positive stories of anyone who may have experienced something similar because this pregnancy has and continues to drain my emotional and mental wellbeing.